u/Happy_Sad_8710

How do I take torsemide during my busy days?

Hello everyone. I recently got diagnosed with heart failure with preserved ejection fraction. I'm 19 and work as a camp counselor. But torsemide is literally making me go crazy. It is genuinely ruining my mental health because of the stress it gives me. Every day I have to figure out when to take it to least impact my life. Because every day is different, I change when I take it and some days I'm taking it at nighttime because it's the only time I can take it, and then it impacts my sleep. I definitely can't take it during my work shifts​​​​​​​, but by the time I'm done, it's already 6 or 7 pm and I have to go to sleep soon. I have no idea what to do. Does anyone have any advice? Thank you so much! ​​​

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u/Happy_Sad_8710 — 11 days ago

Tomorrow I'm becoming a "real" adult and I'm terrified

I'm 19F. Tomorrow I'm flying across the country to start a job and the anxiety just hit me. I'm terrified. I'm terrified to be away from my mom and dad, I'm terrified of the responsibility, I'm terrified of being alone for the first time ever. I seriously don't know what to do. I know I have to suck it up and deal with it, because sooner or later this was going to happen, sooner or later I was going to grow up, I just didn't see it creeping up on me until now. I'm very sad too. I am just really going to miss my mom and dad and my family and I'm going to be so far away. I can't run back home if things don't work out. I know that some days are going to be so hard and being alone during that is what makes me sad. I think it's also the realization that this is it, this is legitimately me becoming an adult, and isn't that hard to swallow? I don't even really know what I'm asking, maybe some advice to get through this easier? I just feel like my heart is breaking and I don't know how to feel better.

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u/Happy_Sad_8710 — 13 days ago

What can I do to love water again after taking pills everyday?

I used to love water. It used to be my absolute favorite drink and I drank it all the time. However, I've had some heart problems and now I have to take a bunch of medication everyday, and that has completely ruined water for me. Everytime I drink water I almost gag because it reminds me of the disgusting bitter and powdery pills, and I hate it. Does anyone have any advice on how to love water again without making this mental comparison?

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u/Happy_Sad_8710 — 15 days ago

Hello all. I'm 19F. About a month ago, I was diagnosed with heart failure with preserved ejection fraction. I got an echo because my brother has a bicuspid valve and coarctation of the aorta, and his cardiologist said everyone in my family should be checked. So I get the echo, I have an rsvp of 42 and an ejection fraction of 72. I had also had shortness of breath for about 5 or 6 months at this point, but I didn't pay much attention to it because I had moved and thought that was my body readjusting. I also had pitting edema in both my legs for a couple months, but I am not sure for how long because that wasn't something I checked. Anyway, my cardiologist did a lot more tests and ​​she diagnosed me with this.

On top of that, my cardiologist sent me to a pulmonologist who ruled out basically all the major lung conditions, including sleep apnea, and told me she is worried about pulmonary hypertension. My pulse ox gets low after exertion (along with extreme shortness of breath), and so I think that played into it as well. So, I am getting a right heart catheterization in August.

Some extra info: I have high blood pressure, I am overweight. I am on torsemide, potassium, spironolactone, and wegovy.

Now to my questions:

-Why is HFpEF so rare at my age? My cardiologist told me that this is very uncommon in a teenager.

-Could this be related to my brother's heart problems?

-Is this something I will have for the rest of my life? I know you can't really answer this because you don't know me, but in general, is this something people have for the rest of their lives?

-Could the pulmonary hypertension thing be related to my heart, if I were to have it?

-My doctor mentioned this being something that can go away with weight loss and blood pressure control. If it were to go away, am I at a higher risk of it coming back?

Thank you so much for reading. I know that my questions can't be answered very well because you don't know my exact health history, but I'd appreciate generalities and just general info on hfpef. Thanks!

u/Happy_Sad_8710 — 22 days ago