u/InevitableEternal

I posted already that at my latest horrible pain management appointment the doctor mentioned I met the diagnostic criteria for fibromyalgia but minimized the findings because I already take Gabapentin for nerve pain. To me, shouldn’t I be checking with my primary or a rheumatologist to confirm or deny that possible diagnosis or rule in/out differentials? I already canceled my follow up appointment, he acted like he couldn’t be bothered with me anyway like my chronic pain from CRPS was all in my head and the problem was how I was psychologically. I’m debating on returning to my original orthopedic pain management doctor who is too busy to see me except for procedures or move on again and risk more maltreatment. Or do I just accept having an Athena based patient provider relationship with this doctor and just be thankful I get that?

I’ve been some form of either PT or OT since March, diagnosed with CRPS in April, but made great progress with my left hand. My left wrist is still completely stuck and now I have frozen shoulder and I honestly think it has just spread into the joint and locked that one too. I haven’t had normal mobility in my shoulder since May, despite therapy and stretching and fighting my body for it. I go for two hours twice a week and it’s a hamster wheel of pain and no progress. Is it even worth putting myself through all of this pain anymore?

I had a busy week last week topped off with a weekend with my family at an amusement park. We had a wonderful time, my kids had a great end to their summer break and we enjoyed our time together. Over the next couple of days I get hit by a truckload of symptoms culminating in chest pain that landed me in the ER that ruled out a heart attack. My blood pressure has been elevated the last few weeks from my pain barely being manageable already and me pushing through because I was testing for (and rejected from) the US clinical trial. I am still learning what my body needs with this condition and how it reacts to activity versus resting. So I’m venting over doing this to myself so my family and I could have a great time before school started and we could make some memories together. I’m limping through on my normal schedule of meds and topical lidocaine patches, I don’t have a rescue plan for breakthrough pain or stronger medication. I see pain management in 2 weeks because I asked for an appointment to develop a treatment plan going forward. I can’t keep living like this.

I’m struggling through I guess a flare from doing too much just trying to live life keeping up with my family and not have them limited by my diagnoses. We went to an amusement park last weekend, spent a full day there and a second day doing tours and fun but tiring indoors activities before making a 3.5 hour drive home just to get up and go to work the next day. Last night it finally hit me hard enough that my chest started hurting, it was scary and it didn’t help I’ve been having high blood pressure since 2 weeks ago. I went to the ER today and had a heart attack ruled out but I still feel like trash, my shoulder is killing me and I’m exhausted. Right now I absolutely have to work full time, I carry health insurance for my kids and I and am fighting with Child Support Services to file for a modification and show cause since my ex is supposed to be providing this. Half of my income goes to premiums, I can’t not work. But with my informal survey last week and what I’m reading here, am I just outrunning disability until I’m in too much pain to work? Like I work through the pain now but I’m not sure how to do that long-term. I can’t leave my family without my income, but I see how it’s a process of denial after denial and drives a person further into poverty.

This is non judgmental and asked in pure curiosity as someone who is less than 6 months diagnosed. What is your work situation? Feel free to elaborate on your experience because we are unique in how we live with this condition.

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Feeling defeated, went through all of the things to see if I could get into the clinical trial and I was rejected because my swelling isn’t bad enough. I’m not in a bad enough position to justify going to Italy, if I were unable to work I’d consider it. So I guess I just keep shoving on in pain…

So I’ve been divorced after being cheated on by my now reinstated ex husband since 2021; he is in minimal contact with our kids and has no overnights because of his living situation. He is now in contact with members of my family who I am no contact with in order for them to try to have contact with our underage children. I know I can’t prevent this because he is their parent also and I cannot dictate who he has our kids in contact with unless it presents a clear legal or safety issue. My family is planning something that they are intentionally excluding my husband and I from, which is my exact issue with my family members, that they cannot dictate access to my kids and exclude a parent, but I guess now that my ex is back he will have to do. It just disgusts me the level of betrayal they’ve sunken to, siding with the man who betrayed and abandoned us, refused to financially support our kids without a legal fight and continued state-level enforcement and garnishment, willfully refuses to follow court orders whenever he wishes and puts all of the responsibility of parenting our kids on my husband and I and dares to call himself a father. Like I’m the enemy for waking up to the hypocrisy of the organization and the people who run it (the same thing Jesus pointed out with the Pharisees), deciding my principles and values I carry in my heart are more important than checking off a list of rules that never end, that seeking the truth about God in sincerity like I’ve been taught since birth is exactly what led me outward to where I am now. I know my family collectively and my mother individually have rejected me as the unwanted child since birth, she specifically made it very clear I was not a part of the plan and I was not the right gender and my birth was difficult so I had an assigned role my whole life to be the scapegoat. It took 40 years for me to figure out I was strong enough to walk away from a family that never wanted me but even a few years later it still hurts to see how much they hate me. It’s like I was never there.

Kinda random but I just mopped my kitchen floor today and now in both of my hands my fingers are tingling, mostly my right hand. I didn’t scrub hard or carry anything heavy, I have some known issues with my left hand, wrist and shoulder so I am in PT for help with those but it’s good for me to use my left arm in my daily routine.

There’s a chance my coparent may move to another state, likely California, and I’m curious how that would look for interstate reciprocal payments. My orders are in Delaware, and enforcement will pursue to obtain payment from other states but I only have experience when he’s moved to a neighboring state (Maryland). Can anyone comment from experience how their experience has been with dealing with a similar situation, obtaining garnishments from a California employer?

My 16 year old daughter got a text message from her former friend saying it was so great to hear about her dad being reinstated last night. Just another example of how JWs don’t know how to live without meddling in other people’s lives. My ex is a POS, cheated on me, blamed me for it, has dodged and deliberately avoided financially supporting our children until state enforced penalties have been unavoidable, abandons his already limited access to our children as he chooses and leaves parenting and resources up to me completely and makes no efforts to stay in contact with our children on a regular basis unless they reach out to him. Right now while he’s being congratulated for returning to Jehovah I’m working to pay 48% of my income to cover our children’s health insurance premiums because he refuses to follow a court order to be the provider for it. Part of me wishes I could write a letter to the BOE stating the committee who deemed him worthy of reinstating was clearly not operating under the Holy Spirit in light of his attitude towards providing for his children and citing 1 Timothy 5:8 but I know it’s pointless.

Everything I’ve read and heard tells me that CRPS is rare and I expected maybe down the road in life to meet another person with it. I’ve only been symptomatic since March and diagnosed in April and have come a long way with my hand and wrist despite some setbacks. Well today in doing my job I met someone else not only with CRPS but with it in the opposite hand and wrist of me. She has more limitations in mobility and was diagnosed a month after me. In the type one diabetes community we get excited when we spot one another “in the wild”, does the same apply to the CRPS community?

Please tell me I’m not the only one who had the lightbulb moment outside of the Truman show that is JW life of realizing A. everything you “know” about scripture is doctrinally wrong and B. You actually know nothing regarding scripture because you have been deceived your entire life. This hit me hard yesterday when my husband’s uncle, who is a former church leader and a deep scripture student, blew my mind on some research he was doing on the 144,000 from Revelation (he found that the tribe of Dan is not included and he’s trying to figure out why). Hearing him and my husband, who was also involved in church leadership and a deep studier of the Bible, brought up all of my scriptural knowledge inadequacies and inferiority, and dredged up my anger that men twist the scriptures for their own selfishness. I wish I could erase all of the JW garbage from my brain so I could learn the truth from the bible right.

I’m a little over a year disassociated and two years mentally out and recently blocked my mother and siblings after yet another judgement session by text. I can own up to my sins but what I won’t do is be dehumanized by the process of repentance the JW and grovel for my brother’s liking. So that’s the context of my family right now.

Today at church my pastor called for us to pray for those who have hurt us and forgive them and let them go in their own ignorance and let us move forward in peace. So I sobbed like a baby, this is all very fresh with my family and having to orphan myself. When will I be a normal person and not just a raw wound human who cries over everything?

My ex is supposed to provide health insurance for our 2 kids but either changes jobs frequently or chooses employment without benefits so he doesn’t have to pay for it. When my open enrollment started I gave him the costs for covering them on my insurance versus his (which he elected not to cover them on due to cost) and he agreed on me covering them on my policy. So July 1st they were enrolled and my payroll deduction increased to 48% of my income. Now that I’ve had 2 paychecks that reflect the impact on my income, I’ve filed for a child support modification based on him not following the medical support order and my income reduction. Our custody normally is I have primary and he has less than 80 overnights annually, he’s had no overnights since April. He is working at the moment. Can I request that his medical support order be revoked since he’s too unreliable to follow it and I am responsible enough to keep our kids insured? I know this only benefits him but I’m tired of him cherry picking if and when he will provide them with health insurance.

My ex is supposed to provide health insurance for our 2 kids but either changes jobs frequently or chooses employment without benefits so he doesn’t have to pay for it. When my open enrollment started I gave him the costs for covering them on my insurance versus his (which he elected not to cover them on due to cost) and he agreed on me covering them on my policy. So July 1st they were enrolled and my payroll deduction increased to 48% of my income. Now that I’ve had 2 paychecks that reflect the impact on my income, I’ve filed for a child support modification based on him not following the medical support order and my income reduction. Our custody normally is I have primary and he has less than 80 overnights annually, he’s had no overnights since April. He is working at the moment. Can I request that his medical support order be revoked since he’s too unreliable to follow it and I am responsible enough to keep our kids insured? I know this only benefits him but I’m tired of him cherry picking if and when he will provide them with health insurance.

My ex has a medical support order in place but dropped our kids from their insurance due to a job change in January. I was on medical leave so my employer would not allow me to add them to my insurance then or even when I returned to work due to reduced hours. I added them during open enrollment after providing my ex with the amounts for both kids and him again refusing to cover them on his insurance and requesting that they be covered on my policy. In my first paycheck with this change their coverage is 43% of my gross income. Even with adjusting my hours (without medical approval), I will still pay 35% gross just for my kids premiums, while he gets a credit for insurance he dropped six months ago. Should I file now knowing it’s going to take months before family court schedules anything to address this? Even though it’s barely started and I just have one paystub so far to document the situation?