Hey guys, joining the club [37 M] need some people to talk to
Living in Australia btw.
About 3 weeks ago I had an episode of sudden onset sensorineural hearing loss, treated immediately with steroids and hyperbaric and per audiograms this pretty much fully resolved but there was some high frequency hearing loss on the right, and I recalled noticing that my hearing seemed a little reduced on that side prior to this. 100% speech recognition.
Had an MRI today and the radiographer (not radiologist) clearly had seen something and asked me to come back soon for a contrast scan. Being a health care professional I asked her to level with me and she said she saw something "pressing on the nerve", that is looked benign and probably an acoustic neuroma. I know what they are due to my profession but I have never really deep dived if I'm honest.
Anyway so now I'm in the terror phase, no idea what to expect or how to process this, awaiting the contrast scan tomorrow and then I guess a specialist review in a week.
Any words of wisdom or things to keep in mind at this stage would be very welcome. I am asking ChatGPT to find my posts by people who are, regardless offering outcomes etc., living life happily years later - that kind of thing would be nice.
Also I have quite intense sinus and eustachian tube symptoms on the same side (crackling, popping, fullness that comes and goes, post nasal drip, crazy sinus pressure, boominess to loud noises when that ear is crackling and blocked feeling) which really throws me off and constantly make me worried for my ear, although it seems very intermittent, most of the time the ear feels basically fine and hearing fine other than pre-existing tinnitus flaring lately.