u/MistakeRepeater

This came as a total surprise to me. I eliminated all the other plants because of MCAS and salicylates intolerance. I was 100% expecting that I'll still have bloating because I eat statches, but it's actually the opposite.

Note: my constant bloating was always in my lower abdomen, so in the colon; but I'd also get bloated in my upper GI (small intestine) after certain foods (I'm IMO confirmed).

So, the morning bloating I had for decades disappeared completely.

One thing worth mentioning is that I have considerably less bowel movements, which is expected given my low fiber diet. But even if I hadn't had a bowel movement in 4 days, my belly is still flat, I don't feel any discomfort and don't get any negative symptoms.

This is my own body... I have no idea how many would get the same results but I thought it was worth sharing.

I have MCAS and HIT and I'm about to start the meds I mentioned. Thing is, NaturDao gives me bad insomnia (via MCAS) and racing mind and I'm curios if someone became tolerant after those meds.

If they won't work for me, I'll give them away for free.

Also, can't take porcine based DAO because I also have Alpha-Gal which causes a severe, long lasting anaphylaxis episode.

Sharing my experience because only this community can trully understand this.

3 years ago I tested negative for IgE milk allergy. 2 years ago I realized that I'm EXTREMELY allergic to milk but with delayed symptoms (I literally get cold shivers in the middle of the Summer, hard to breath, zero concentration, congestion, swollen fingers and eyes). Then I quit dairy, felt better, but those symptoms returned randomly, and I started questioning the milk theory - got back to consuming dairy.

During these 3 years, I kept changing my diet but never felt good. My disease stack: Histamine Intolerance, Alpha-Gal, MCAS and Gluten sensitivity (possibly Celiac).

1 month ago I got back to the alpha gal theory, confirmed it with symptoms and since then, I'm a new man - but I also need to be super strict with my diet, Histamine Intolerance, MCAS and Gluten ain't no joke either. Can't tell which is the worst honestly, they are all hell on Earth.

2 weeks ago I got the alpha-gal and beef IgE tests and both came back negative. It seems 2% of alpha-gal cases have negative IgE tests but still display symptoms. Diagnostic criteria is constantly being challenged and a new test appeared called Alpha-Gal Basophil Activation Test (BAT) but that is a specialized test and few labs perform it.

I started every morning in the last 2 years started with a cappucino at 8-9AM. At 13-14PM, I simply crashed for at least 6 hours, unable to work. That stress literally gave me grey hair.

Had 20+ symptoms all my life and most of them are handled by diet. Still need medication for MCAS but the last month was the first month when I was a functional human being for the first time in 36 years. MY HANDS ARE NO LONGER COLD! 🥲

Peace y'all!!! ✌️ ♥️ And a great thanks to Americans (I'm Romanian) for identifying this issue. The delayed reactions can make you look in all the wrong places (colon dysbiosis, SIBO, environmental allergies, late MCAS mediators release, etc).

P.S. I had a minor car accident the following morning after eating fresh deer meat at dinner... Got fogged as hell while driving...

Drooling as I type this, haven't had a steak in ages.

Just to be clear, I have a dark sense of humor and this is nothing more than a joke.

Even though I had symptoms all my life, tested positive to the genetic and serum DAO tests, I read a study that not everyone who has DAO mutations will also react to high histamine foods; in fact, almost half of the Europeans have DAO mutations.

3 years ago, an endoscopy showed that I have a minimal duodenitis. Duodenitis implies that your duodenum produces less digestve enzymes (including DAO). Even though it's minimal, I think that I have some unknown genetic trait which amplifies its negative impact.

When I was a kid, I used to eat lots of acidic plants and shit like Lays and Nesquick. Maybe those alone, or combined with my gluten intolerance caused a duodenitis at a very young age.

I've seen a video with a doctor who had a patient with lots of food sensitivities. At a later appointment, the doc noticed that he was always cheweing gum and told him to stop it for a while. After that, he realized that the patient developed salicylates intolerance because the chewing gum is really rich in it. His sensitivities resolved a while later.

This is a just a theory and hoping that an alkaline diet (lean fresh white meats, white potatoes, quinoua, egg yolks and few other fats) for at least 2 months (maybe 1 year), will revert this shit.

Just curious if anyone noticed this and is 100% certain of it.

I am not sure if the vaccine had any impact on my reactions.

https://www.sciencedirect.com/science/article/abs/pii/S1081120625007987?utm_source=chatgpt.com *Nevertheless, up to 2% of symptomatic patients can have negative IgE results"

This test: https://a.storyblok.com/f/164899/x/229fddc644/20251106_web_madx_alex3_allergen-list_210x250mm_en.pdf?utm_source=chatgpt.com

Considerations about the test:

1. It does not cover everything you can react to. A person can still have an IgE allergy to other food-specific proteins. For example, in case of beef, you can be allergic to β-lactoglobulin or α-lactalbumin but these are not covered by the test
2. It can find specific allergies which can create cross reactivity reactions to other foods. E.g. in some people, an F3 (canine) allergy can create a beef allergy because those proteins are similar. Cross reactivity reactions are very individual specific because not all IgEs are created equally - they differ from individual to individual. An avocado allergy can create cross reactivity with Latex, banana and so worth. Birch allergy can cause apple allergy - I actually have birch allergy and react badly to apples. And a dog allergy and react badly to beef and pork...

How is this connected to MCAS? Still investigating but if you constantly eat something you're allergic to, it can cause general GI inflammation: https://pubmed.ncbi.nlm.nih.gov/23183101/, https://pubmed.ncbi.nlm.nih.gov/14660743/. I have some food-induced symptoms (knee pain, tinnitus, etc) which cannot be explained by IgE allergies alone, maybe these two are connected, don't know.

I posted this only so that people are aware of any potential trigger. My allergist ordered a basic 20 food items IgE allergy test and all came negative. But I definitely have specific reactions to specific foods. The same allergist told me to see a psych after I told her that I react to all foods 🙃

TL;DR I had very bad reactions (6 hour lethargy) which disappeared after quitting mammal meat and dairy. I got the generic beef and milk IgE tests and came back negative. A generic beef IgE test can come back negative but you can still be allergic to beef. E.g., the beef F27 test uses a beef extract mixture which can contain too little of the protein that causes the reaction. But if you make targeted tests like e204, it might come back positive, indicating a beef allergy. My alpha-gal test came back negative as well; this is a weird one because there have been documented cases where people react to mammal meat and dairy but don't have known IgE-specific allergies. Researchers are taking into consideration that they might react to unknown elements (which might apply to us as well).

I asked GPT if ALEX3 is a standard test for patients enrolled in MCAS clinical studies and it said "no" (no clue if he's right or wrong, was just curious of its answer).

For me it causes severe depresive thought pattern, I only think of negative things, can't find joy in anything (not even music), sarcastic, zero emotions, no libido. I can't even work in that state: I look at the screen in say: fu&$ this sh&$.

Physical symptoms are: headaches (usually the next day), acid reflux and congestion.

I also have MCAS and possibly other GI issues and it's been really hard to identify which causes which.

I get immediate congestion from all foods but there's a worse version that appears hours after eating. During those periods I actually feel sinus pressure, am severely lethargic and dizzy with slowed thought process. Waiting for SIBO test result.

I read that leucotrines can cause a worse congestion than histamine hence my question about Monteleukast.

I would describe this feeling as the severe lethargy a lot of people describe here. I get both lethargic and agitated but these delayed post-meal symptoms are really hard to deal with and can last quite a few days. Antihistamines are useless here.

Had this all my life but it wasn't as bad as in recent years when I started getting actual intestine pain (burning sensation). Some doc mentioned that in a lot of IBS cases, there is a portion of the GI that reacts to wheat, soy and dairy - I consume neither of those.

It feels like a constant allergic reaction but without the adrenaline part. I'm suspected of alpha-gal (waiting for results) and mammal meat and dairy cause a similar reaction but it gets better after 6 hours. This other thing... Just stays there.... And also don't get weird symptoms like I do from suspected MCAS (testing) like hot/cold flushes, joint pain, muscle twitches, etc.

I used alcohol to lift me up from Histamine Intolerance (lethargy, mutation in DAO gene) and Alpha-Gal (lethargy/hell, waiting for test results) and to pull me down from suspected MCAS (both lethargy and agitation but predominantly agitation). It has a dual effect but I always binged and caused more harm than good. Wanted to quit for good but failed. Tried SSRIs at some point but even those didn't work as well as alcohol did.

3 years ago I managed to quit drinking for 3 months and felt absolutely terrible, either insomnia or lifeless. This was followed by a period of 2 weeks when I ate a small number of food items and no gluten which resulted HUGE improvements. Then I ate some supermarket pre-made eggplant salad on a piece of bread. Within 15 minutes, all my optimism turned into depression, pessimism, trouble breathing and a feeling like my head was in a vice; joint pain followed 1 hour later. Couldn't take it so I drank alcohol until I fell asleep, breaking my abstinence streak. Of course, I thought gluten triggered that because I haven't yet heard of MCAS or Histamine Intolerance.

On Monday, before the challenge test, I'll make myself a cocktail with gin, lime, orange, kiwi, pineapple, Fanta Orange juice (for the Liberator additives) and nori seaweed (for the iodine liberator). I chose a liquid "food" form to trigger symptoms as fast as possible, because I suspect my reactions come from both my stomach and the small intestine, and I'd like to catch both. It will also be easier to time the moment when I draw my blood because I don't have to wait for anything to digest, it's mostly liquid.

Wish me luck.

I used alcohol to lift me up from Histamine Intolerance (lethargy, mutation in DAO gene) and Alpha-Gal (lethargy/hell, waiting for test results) and to pull me down from suspected MCAS (both lethargy and agitation but predominantly agitation). It has a dual effect but I always binged and caused more harm than good. Wanted to quit for good but failed. Tried SSRIs at some point but even those didn't work as well as alcohol did.

3 years ago I managed to quit drinking for 3 months and felt absolutely terrible, either insomnia or lifeless. This was followed by a period of 2 weeks when I ate a small number of food items and no gluten which resulted HUGE improvements. Then I ate some supermarket pre-made eggplant salad on a piece of bread. Within 15 minutes, all my optimism turned into depression, pessimism, trouble breathing and a feeling like my head was in a vice; joint pain followed 1 hour later. Couldn't take it so I drank alcohol until I fell asleep, breaking my abstinence streak. Of course, I thought gluten triggered that because I haven't yet heard of MCAS or Histamine Intolerance.

On Monday, before the challenge test, I'll make myself a cocktail with gin, lime, orange, kiwi, pineapple, Fanta Orange juice (for the Liberator additives) and nori seaweed (for the iodine liberator). I chose a liquid "food" form to trigger symptoms as fast as possible, because I suspect my reactions come from both my stomach and the small intestine, and I'd like to catch both. It will also be easier to time the moment when I draw my blood because I don't have to wait for anything to digest, it's mostly liquid.

Wish me luck.

Salutare, m-a luat dorul bass-uri grele. Sau nu neaparat grele... dar sa fie ceva electro mai energic, non-house, si mai heavy decat la Untold.

Nu am mai fost in CJ de 10+ ani si nu cunosc cluburile/barurile actuale, nici nu-mi amintesc cum se numeau cele unde am fost.

Puteti recomanda un local curent in care vibe-ul e similar Skrillex(extrem) / Bassnectar(elegant)?

Am dat un search pe Google dar fara rezultate relevante.

Currently waiting for test results. As far as I noticed, besides the congestion, lethargy, trouble breathing, bad gut pain from beef... I also get sever cognition impairment e.g. "Can you pass me the (10 seconds later) salt?". I can barely think.

Thing is I have other GI/immune issues and it's hard for me identify which issue causes which symptom. But I would describe (possible) alpha-gal like chugging an entire bottle of whiskey at 1PM in a Summer heat wave: you're gone (haven't done this, but this is how I would describe this).

I have similar symptoms from suspected SIBO (waiting results) but they last 1-3 hours and are lower in intensity; the suspected alpha-gal symptoms last at least 5 hours. I also have similar symptoms from MCAS (waiting results) and Histamine Intolerance (confirmed with genetic test and symptoms match).

The only thing which caused similar symptoms was canned cod liver, but in that case, the trigger was a combination between MCAS and Histamine Intolerance.

Just curious... I got tested when I was feeling like crap/lethargic (still congested with blurry vision and tinnitus) and it came back normal (at least I don't have Hereditary alpha-tryptasemia). I'm thinking of inducing a food reaction which causes the agitated/restless/hyperactive/angry/paranoid/etc state and draw my blood when the symptoms are peaking. I don't have any risks of anaphylactic shock or ER visits so I'm not worried about that, might take a day off though.

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I was always skinny with low belly fat and had moments since childhood when I was feeling my heart beating harder from time to time but I ignored it.

I lost a high amount of weight in a short period a few years ago and sine then, I started having this sensation after every meal but to high uncomfortable levels.

Looks like the sensation is normal if your're skinny/super skinny and it's caused by the abdominal aorta. So no issue if your blood pressure and pulse are fine.

The happens after any neal, not just trigger foods.

Was worried for a while...

Per title.

My last meal was 16 hours ago and it came with it's own set of symptoms (tired then insomnia). 1 hour ago I was wired and talking fast (ADHD type). 55 minutes ago I started getting dizzy, my thoughts started getting erased (hard to formulate sentences and no short term memory), my congestion got worse, my usual blurry vision increased in intensity and my mood got depressed. It started with bloating in the lower area of my abdomen. My last meal should normally be in the colon by now; waiting for SIBO test results to investigate this and if I have slow motility in my small intestine.

All of these are 100% triggered by my GI tract and not by the environment.