u/Ok_Try1862

so i finally went sucked it up and went to my pcp to ask for help. she was very alarmed by my weight loss and wanted to go straight to the er. she called a palliative care doctor and gi physician at the hospital to let them know i was coming, so i went.

for some reason everyone there seemed to think i was there for migraines? even though on mychart they wrote it as “headache”. when i got triaged i let the nurse know that wasnt why i was there, and that my doctor was more concerned about my inability to keep food down rather than my migraines. he was very dismissive of this, and said “well do some labs” and kept talking about treatment for migraines.

i ended up waiting for almost 4 hours, no bloodwork, no iv, no nothing, and just went home instead. i’m not sure that i would have been treated faster or better if they listened but i’ve learned my lesson i guess.

update:

as i was leaving, my pcp called me to go back. she said she called again and everything would be sorted out but it wasn’t. the doctors she talked to never showed up, and i didn’t hear that they reached out to anyone in the ED.

i got my blood drawn by a nurse who seemed really irritated that i was dehydrated so the blood draw was slow. she kept making snide comments about “kids my age not drinking water”. the pa who saw me was also really rude and made fun of my doctor’s concerns, she was like “what does she want us to do exactly, admit you? what for, dehydration?” she also sounded shocked that i had gastroparesis. she said “that’s a heavy diagnosis, do you have diabetes or something?” and when i said no, she said “wow that’s insane”, ordered fluids, reglan, asked the nurses to give me some gatorade, and sent me home.

i am really tired of doctors at this point. i told my pcp nothing would come of this visit but i went anyway and had to deal with being humiliated because i wanted help

https://www.reddit.com/r/Gastroparesis/s/bCELxPMboH

i am so miserable. i am getting no nutrition and no one is listening. my GES last year said mild gastroparesis, and i have a history of an eating disorder, so my doctors keep dismissing me. they say i shouldn’t hesitate reach out with concerns, but when i do, they’re telling me to keep taking zofran and to follow up in a few months. i haven’t kept any food, water, or even meds down in the past 2 weeks. nothing stays in my stomach. i don’t know what to do, but i don’t even know what i want them to do for me. i just want so some to listen to me and take me seriously that i am suffering. i am weak, dizzy, and nauseous 24/7. i just want to be strong enough to go to school this fall but it’s not looking like it will be possible.

I’m 21, I’ve been babysitting for about 5 years, I have a pretty good track record I think. I have a profile on two well known websites with great reviews, references and letters of recommendation. I always feel good that parents like me. But more often than not, I feel like parents are not very good at ending things.

I babysat for a family with a 5 year old for almost a year, and we had a pretty good relationship. I babysat for them for a date night once, and after they paid me, they just never reached out again. Normally I’d get a follow up thank you message and a ballpark of when they’d need me again, but….crickets. I haven’t been worked for them again, and I spent a while racking my brain trying to figure out if I did anything wrong to warrant that. I recently worked for another family, and right before I left the kids were so adamant I come back, and the parents were too. They texted me saying they’d leave me a review, asked if they could give their neighbors my number, the whole shebang, also ended up ghosting me too. I am so anxious that I might have done something.

I think I just get hurt because the nature of the job can feel pretty personal, but I don’t understand why some families go out of their way to make a connection, talk me up, and say they’ll reach out again, and then never do. I have no issue finding jobs, but it’s still upsetting to think I’ve found something meaningful and consistent, but then get radio silence and with no explanation. I genuinely don’t know if I’m doing anything wrong, or why they wouldn’t just let me know if I was.

it’s 11pm currently and i am violently throwing up barely digested contents from 12pm and 5pm respectively…this happens a lot, and i’m not sure if this is a gp thing. normally id expect it to be throwing up right after eating, which happens too but yeah

the disregard for the historical dolls is a bastardization of the brand in itself, but this whole megan moroney nonsense might actually be my last straw.

please be nice, i’ve seen this subreddit rag on people before and it lowkenuinely might be my last straw.

i’m a junior in undergrad, med school has always been a dream of mine and i planned to take several gap years to figure myself out. i’ve had mobility issues all my life but they’d been getting better. i retired my service dog, my gpa is on the rise, i hadn’t been dropping things as often.

then shit hit the fan and i just got diagnosed with ataxia. i never had the burning passion to be a surgeon anyway (psych has always been my calling i fear) but now i dont even get the choice. i feel like i should just call it quits.

my dad works for the government and gets insurance through them and i am on his plan but i don’t want to be. i am chronically ill which makes my parents really mad for some reason, and they are constantly holding the costs of all my appointments, procedures, and medicine over my head, even though i’m the one covering the copay costs. i’ve mentioned this to my doctors, who’ve simply said “oh you’re an adult they shouldn’t be able to see that”, but have gotten no further information in that regard.

i’ve asked my parents to remove me from the plan many times but they refuse to, i’ve tried applying for state insurance but i was told by dhs that i won’t get approved because i already have coverage through my dad.

i’ve avoided getting care for over two months now out of fear of confrontation over it and i don’t know what to do. there’s no way i’m trapped here until i’m like 26, right?

I'm 21, and I've struggled with chronic pain for as long as I can remember. Over the past 2 years, I've been diagnosed with dysautonomia, POTS, gastroparesis, migraines, fibromyalgia, and general chronic pain. My conditions and symptoms have only gotten worse, and I've amassed a pretty large care team that is still trying to figure out the cause.

Last week, my neurologist suggested genetic testing because he found my labs and MRI concerning, and feels like there's a genetic explanation for all of my symptoms. He also mentioned testing for MS, which other providers suspected might be the problem. I was really hopeful hearing this because I've wanted answers on how I've been feeling for so long.

When I told my parents this, however, they were not pleased.

What was meant to be me sharing a treatment win turned into almost 2 hours of them and my older sister berating me and accusing me of faking my illnesses. They said they didn't understand what kind of sickness had no end, said I see too many specialists for my age, and insisted I must be either making things up or at least over-exaggerating. At one point, they expressed frustration at "having to hear [you] constantly bitch and whine about symptoms that never go away." I tried to defend myself by saying that I couldn't be fooling countless of doctors at one of the best hospitals in our state (and possible the country), and my mom told me "do you think they actually care about how you feel? They're using you as a guinea pig for all their little tests." My dad even made a snide comment about me using his insurance for useless testing and medications.

I have been chronically ill for so long, that I don't remember what life was like when I wasn't consistently in pain. I don't know what to do anymore. I feel so defeated, I don't even want to try to get better anymore if it's going to be met with so much vitriol. I know people lose patience for chronically ill and disabled people all the time, and have experienced it often.

I just naively thought my family would be the exception.

I’m really torn and looking for opinions on this. I know this is controversial in the dog community, but please be respectful to everyone.

I am considering getting a started dog from a trainer who uses balanced methods to train, and I felt really confident about it based on what she’s told me and the videos I’ve seen.

The trainer who I’m considering continuing on with only uses positive reinforcement. Since I’ve been talking to her, she’s been really upset about my other trainer’s methods and called them unethical, and has basically refused to work with me if I get him. She said it’d be difficult to transition a dog who was trained using balanced training to the ATLAS positive reinforcement method, and that I should find another trainer if I “want to get him so bad”.

added due to comment suggestion: She doesn’t like the use of slip collars, e collars, or other tools being used to “proof” behaviors that were initially taught with positive reinforcement. She called tools abusive and unfair. She believes that training should start with a dog exhibiting behaviors of their own volition, rather than under the threat of a correction.

I feel really shitty about the situation and I’m not sure what to do now. I was feeling really positive about my prospects but now I’m having doubts.

What do I do now?

I’m 21 with a history of Anorexia B/P. I also have POTs, and Ehlers Danlos, because these illnesses love to bring their friends.

I was diagnosed with gastroparesis and chronic gastritis last summer after a 3 month stay in a residential eating disorder program. I get nauseous and had stomach pain after eating, and it was atttributed that I developed it due to my eating disorder.

Over the past few months I feel worse. I can’t eat anything, I’ve lost over 30lbs since December. I’m miserable and sick with nausea and extreme pain every time I eat something. My gastroenterologist just keeps suggesting miralax and diet changes, she didn’t even comment on my weight loss which makes me think its not as serious as I’m making it out to be My pediatrician is suspicious I’m relapsing despite me constantly asking for help on how to eat more. My dietitian told me that I subconsciously still have an eating disorder and just don’t want to eat, so my body isn’t letting me.

I don’t know what to do. I used to want to eat, but now I have no desire to. I’m always in pain and I feel so weak and I don’t know how to ask for help anymore.

My little sister who is 16 has severe mental health issues that I won’t get into too much detail here. She has been through many therapists and medications and she is still severely depressed and impulsive. We (my parents, older sister, and I) are no longer sure that outpatient efforts are enough and she agrees too. She often expresses that she wants to “go somewhere” to get better. We have a mental health children’s hospital nearby, but I’m worried about sending her to a psych ward, especially one with really low reviews. The stays there aren’t that long, and she might come out more traumatized.

My family is used to the levels of care for eating disorders because I had one in the past, and went from inpatient > residential > php > iop > outpatient so we thought that would be possible with mental health treatment as well. We started to look into mental health treatment for adolescents at a residential level. However, there are barely any for teenagers that don’t set off several alarm bells and red flags that they could be TTIs.

I really love my sister and I want her to get better. I feel like she’d thrive after a higher a level of care but I definitely don’t want her in a horrible situation and I’d never forgive myself if I she ended up in one. Are there any actual mental health residentials or are they all TTIs, and what should I look for when researching? What resources does anyone have for someone who’s struggling so much, even with outpatient and family support?

i was on topamax a couple months ago and felt amazing, no migraines, the literal opposite brainfog—i would stay awake for hours getting work done, etc.

i got off it because my doctor wanted see if it would help with my anxiety, but my migraines came back on full force so i got back on it again about 4 days ago and i am fucking miserable.

i can’t think, i can’t eat, i’m so dizzy, and i feel like the stupidest person on the planet. i’m so sorry i doubted you all 😭😭

I don’t practice anymore so it is really ironic that this is the first place I thought to come to, and the request is a little bit trivial but here I am anyway.

I lost my flashdrive.

Not just any flashdrive, one I’ve had since I was 8, when I started writing. Everything I’ve ever written in my life was on it, from short stories in the 3rd grade to a full novel I wrote for my thesis in high school.

I’m 21 now, and I can’t find it and I’m so heartbroken and desperate. I started praying to Saint Anthony without realizing it, and found myself here. I guess I came here to ask for more prayers, and consolation from an old friend.

tw for numbers and some negative body talk

i have AN-B/P. it’s been 2 years since i left residential treatment. i thought i’d been doing well, even though my team doesn’t consider me fully recovered yet. i was previously slightly underweight and left treatment at a healthy bmi, but in these last two years, i have gained what i believe to be an insane amount of weight, almost >!50lbs!<.

i really didn’t mind, but with the recent ozempic and heroin chic trends i’ve been extra aware of how different my body is. i want so badly to be skinny again. i lost about >!10lbs!< in the past month, but it wasn’t on purpose, i was stressed and have a chronic illness. losing that weight didn’t help, i’m so self conscious about my body now. i wear super baggy clothes and avoid social situations because of it. i want to relapse and lose weight so badly, but the thing is, my body won’t let me.

i have insane extreme hunger, which makes no sense because i’m at a healthy weight, it’s been 2 years since recovery, and i don’t restrict. i can’t restrict because every time i try i feel like i’ve been starving for days. some mornings i wake up genuinely feeling like i have the flu until i eat everything in sight. this is so out of the ordinary for me, i can normally skip breakfast but lately i feel like i’m going to die if i don’t eat immediately. it’s like a very urgent hunger.

it feels like my body knows im trying to relapse and is doing everything it can to stop me.

My cardiologist told me I likely have POTs 2 years ago, but still wanted to check with a tilt table. I got it done last Thursday and I still feel, for lack of better wording, like shit.

I lasted 40 minutes feeling dizzy, lightheaded, high heart rate, and then barely 3 minutes with Isuprel, and fainted. I got my official POTs diagnosis and an IV bag of fluids after, but it’s Monday now and I still feel awful.

My heart feels like it is going to beat right out of my chest, I’m so out of breath and shaky, and I’ve been sleeping for hours on end out of sheer exhaustion. It doesn’t normally take this long to feel better after the test, does it? Did this just tip me into a flare or something? Any insight is appreciated.

I am so frustrated. I tried to log in to my account to fix a small typo on my website, but it said my password was wrong, even though I haven’t changed it. I tried to recover my password and the reset link is not coming to my email. I tried to chat with support, but surprise, you need to log in to even get in touch with a human! I tried their different support form, and now they’re asking me for bank statements and my ID to prove it’s my account?? Just send me the god damn reset link! Is there anything I can do, or is my account gone forever ?