“That’s really young for an autism diagnosis” .. Me: “Yeah he is REALLY autistic 🤪”

I legit don’t know what to say to people when they imply my son is not autistic because of his age.

My pediatrician flagged at 15 months that he may be autistic and encouraged us to get him assessed. We followed the recommendation and had him assessed at 18 months through a local children’s hospital and he received a diagnosis of “autism spectrum with speech impairment”

Fast forward to today 24 months old, I still get this comment. From friends, on forums.

Is there something I’m missing? I truly don’t understand why people keep saying this.

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u/PainfulPoo411 — 3 hours ago
▲ 2 r/Endo

Good response to sound, so far

I am one of the lucky ones who responds pretty well to birth control for endometriosis symptom management.

I recently had a bad reaction to my tried-and -true HBC Norethindrone after being on it for years.

Not interested in an IUD (sensitive cervix), tried Orilissa (baaaad mental and physical side effects for me) and I can’t take several birth control options due to migraines with aura.

That left me with a few options and I chose Slynd. Happy to report it’s working well so far. No issues, no side effects, reduction (not elimination) of endo symptoms.

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u/PainfulPoo411 — 3 days ago

Frequent speech regressions with no progress

For me, this is the hardest part. It’s not the tantrums or frustration or comparing to other kids or recognizing my 2 year old is more like a 9 month old - it’s the speech regressions.

My son has been in speech therapy about 1 year, and also receives PT and OT. He continues to make progress with PT and OT but speech is an area he seems to make progress and then regress. There are about a dozen words he has said, but the only one that has stuck is “dada”.

Any experience or advice for speech regressions?

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u/PainfulPoo411 — 7 days ago
▲ 5 r/Endo

What has helped your chronic fatigue? I’m struggling 🫩

38/F, married with a 2 year old (through IVF). I’ve had two surgeries for endometriosis and the most recent one was 3 years ago.

Endo symptoms are largely under control. I had to change my BC from Norethindrone to Slynd after having bad side effects. So far Slynd is doing well for me but bad days still happen.

However the one symptom I can’t seem to overcome is the fatigue. Being awake just 3-4 hours is painful. Thankfully my toddler naps consistently because I need that time to nap too. Naps aren’t possible during the week as I work a 9-5

I recently had a sleep study - no sleep apnea. I’m on a GLP1, I’m losing weight (about 1lb per week) and I’m doing great at keeping hydration, protein and fiber in check.

I have not been working lot. I have no doubt that could help but the thought of waking up by up early or working out after work in PAINFUL.

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u/PainfulPoo411 — 8 days ago

Need an ECE’s thoughts - would you be annoyed if a student’s Early Intervention schedule changed week to week?

I’m a parent looking for ECE opinion.

My child (2) is diagnosed autistic and receives OT ST and PT at daycare. ST and PT change schedules sometimes and I overheard my son’s daycare teacher complaining to another teacher about the change. I’m wondering if I should stop making changes? Here’s the context -

My son has made great strides in PT, she’s truly been a godsend to him. Some skills are practiced inside, others (climbing up a slide, running on uneven ground) are practiced outside. Each week his PT will check the weather and see if she can accommodate his PT during his classroom’s scheduled outside time, otherwise she stays on her usual schedule.

My son is nonverbal so Speech Therapy is his biggest gap. SLPs are hard to come by, and the time she had available requires daycare to wake him up. Here’s the details: Nap time is officially 12-2pm, speech is at 230. The problem is that my son is a good sleeper and regularly sleeps til 3. He’s also VERY angry when he’s woken up which often makes that session unproductive. If she has a cancellation during the week she will switch his time so it does not require him to be woken up.

When these changes happen we notify his teachers the day prior. I hate that this annoys his teacher but it is genuinely better for his development so I’m torn.

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u/PainfulPoo411 — 11 days ago

How do you cultivate a relationship between your child and their grandparents?

I would love some practical tips.

Here’s the situation: My husband (42) and I (38) have one child (2-M). We live within a 10 minute drive of my husband’s parents however they make zero attempt to see him or have a relationship with him.

Recently there was a day where I was working remotely, husband was home with food poisoning and daycare was closed so we asked MIL (68) to watch my son for a few hours. Within a few minutes of her arrival we realized this was a mistake. My son was so upset because my MIL is practically a stranger to him so when she tried to pick him up or feed him breakfast he lost his shit. I should also mention my son is autistic - he is nonverbal and has other limitations but is generally a very happy kid.

Without realizing it, my MIL hadn’t seen my son in over 2 months so he basically forgot who she was. We gave it an hour or so but my son never calmed in the presence of MIL so I took the rest of the day off work to care for my son.

The situation really frustrated me - not because of childcare purposes but because my MIL and FIL have made NO attempt to spend time with my son and as a result he has no relationship with them. I would love a world where my son can spend time with his grandparents but currently that would not be possible without severely stressing him out.

So - I suppose question 1 is (1) SHOULD I be cultivating a relationship between my son and his grandparents despite them making no effort to do so? And (2) what are your practical tips I could implement … dinner once night a week?

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u/PainfulPoo411 — 13 days ago

NSFW | Period blood smells really bad this time

I’m 37 with endometriosis, had a baby 2 years ago. My period has been irregular for the past 3 months and my last period arrived on a 17-day cycle (yes, just FML big time).

Period is back but this time I’m incredibly disturbed by the smell. It smells bad, almost rotten, and it’s definitely not my normal period smell. The odor is the only unusual symptom, besides that nothing unusual is going on. I washed thoroughly in the shower but some time after I could smell it again.

To answer a likely question: Yes I am certain there is no tampon (or anything else) in there. I haven’t used tampons since having a child 2 years ago.

I have an OBGYN appointment in 2 weeks but wondering in the meantime if anyone has ideas.

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u/PainfulPoo411 — 24 days ago
▲ 13 r/Bestbuy

Is it possible to filter OUT marketplace items when shopping online? I want a product with a protection plan

I’m purchasing a robot vacuum - and I’m *not* buying something like this without a protection plan. small electronics just aren’t built to last anymore.

The website is pissing me off because I don’t see a way to see just items sold by Best Buy. I can filter by local stores but then I can’t see items sold out of the warehouse.

For the love of god I’m TRYING to purchase one of your damn warranty plans, and the website design makes that impossible.

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u/PainfulPoo411 — 1 month ago

I’ve enjoyed my Roborock Qrevo for the past few years, but it just stopped working. Should I replace it with Roborock?

Details:

Roborock Qrevo Pro (vacuum and mop) purchased 2 years ago. I’ve loved it, no real complaints. WiFi setup was annoying but once I got over that hurdle I had no issues … until this week when it got an “internal error” that I could not resolve (RIP, robot)

I got an extended warranty from Best Buy so I’m not out $1,000 … but now I need to pick a new device. They didn’t even try to fix it, they just processed my plan and issued me a gift card so I could go with any (Best Buy) make/model. I don’t mind spending more than $1k.

I want: Same Qrevo features. Full mapping, with options to clean different rooms with specific instructions, no-go zone. Vac and mop.

I don’t care about: That stupid arm Roborock is peddling

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u/PainfulPoo411 — 1 month ago

Parents of elopers - Anything you wish you had done/implemented when they were younger?

My son is two, nonverbal diagnosed autism with speech delay. Recently started running every opportunity but it’s largely manageable given his size.

Hoping for tips from more experienced parents

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u/PainfulPoo411 — 1 month ago
▲ 6 r/Endo

I thought my birth control was doing nothing but now that I’m off of it, I’m in endo hell

I had a baby 2 years ago and once my period came back it was hell. Super painful, bleeding through everything. On top of that, my PMS was horrible … constantly trying not to end friendships or quit my job before reality set back in. Birth control has largely helped these symptoms.

The past month my brain fog has been out of control. I struggle to think of easy words like “from” or “record”. I missed my OBGYN appointment (ironically the appointment I scheduled to discuss other BC options) because I spaced out and lost track of time.

I now have to wait another month to see OBGYN. On top of all of that, I STILL get a period (irregular, at that!) despite being on constant birth control for 6 months.

With the issues compounding and another month until I can see OBGYN I decided to stop my birth control a few days ago. My head already feels clearer and the clarity makes me feel more like my natural self. The part that is ALSO natural however is that the constant cramping has returned. I’m uncomfortable sitting, laying, walking. The only relief is a vibrating heating pad.

Now I’m sitting here genuinely weighing my options.

* With birth control: Horrible brain fog, irregular period.

* Without birth control: Horrible PMS and cramping.

*What a choice*

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u/PainfulPoo411 — 1 month ago

Discounts for children with autism (USA)

I was wondering if we could start a thread of discounts we are eligible for due to having a child with autism.

I’ll start:

* National Park - Lifetime access pass. Free entry to national parks for citizens of any age that have been medically determined to have a permanent disability. The pass itself is free but requires $15 for them to process the application.

* Art Reach Access Pass. For eligible disabled individuals in NJ, PA or DE. Provides $2 entry for up to four people. Many museums participate and the Philly Zoo. $80/year.

u/PainfulPoo411 — 2 months ago

Am I a special needs mom?

I know by the definition, and google description an autistic child is a special needs child, but I’m not educated on how / when / why this term should be used.

My son is under the age of 2, diagnosed autistic and my children’s hospital does not diagnose levels. He has developmental delays, the most severe of which is speech which is nearly at the floor.

I was thinking about this while on a play date recently. A boy born a few weeks after my son was climbing up a slide, positioning his legs correctly and could slide down without help. My son cannot climb so I was picking him up, positioning, helping him to slide and then helping him to stand up after sliding. Sometimes i forget that these things we do to help him aren’t typical for a kid his age, and it brought up a deeper thought around what is considered to be “special needs” and how a “special needs parent” is defined.

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u/PainfulPoo411 — 2 months ago

Original post: https://www.reddit.com/r/Fencesitter/s/6ZASWNJFZb

I saw this post in my history and thought this might be a good time to update. A few years after this post we successfully completed an IVF cycle and my son is now 1.5.

To sum up how I feel present day … the joys are indescribable. I can’t explain how happy it makes me feel that we’re parents, how amazing it feels every time he learns something new. I look back at photos of him as an infant and think “gosh we are so lucky to experience this”. For us, the joys undoubtedly outweigh the stressful parts.

5 years later … No longer a fence sitter

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u/PainfulPoo411 — 2 months ago

I am an “early diagnosis” parent at the beginning of this journey.

Current stats: referred for autism assessment at 15 months after missing many milestones. Diagnosed ASD with accompanying language impairment at 18 months. Currently 21 months, nonverbal, lots of physical and vocal stims. Early intervention for speech, OT and PT.

Our local children’s hospital conducted the ADOS assessment for his autism diagnosis but they do not assign a “level” so I am flying blind on that front.

Everyone keeps telling me how “unusual” it is to be diagnosed before age 2. Despite being in a handful of parent support communities I haven’t yet encountered anyone who has had or has a young autistic toddler. I’m hoping to hear stories and understand what’s ahead.

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u/PainfulPoo411 — 2 months ago