Doing rtms and now I’m my 16 session
Just wondering did anyone else get more messed up cause of it
I’m having feelings of dream like reality
Hard time concentrating
More paranoia
Swallowing the tongue issues
All started when I started a mouth ago and don’t know if it’s part of my rtms and if anyone had issues like these ? I’m thinking of stopping
Currently been in the psychiatric ward for a couple weeks now because of this
Symptoms are
Muscle weakness around body
Swallowing issues and saliva issues
Fasciculations around the body for a few seconds here and there
Tongue twitches when I stick it out
Altered reality like as if I’m not even here like things aren’t real
I’m almost positive. I have it. I know I’ve had an EMG and a nerve conduction test done last month or should I say two months ago now actually in June on the second and symptoms seem to be getting worse.
I’m currently in the psychiatric ward yes everybody’s going to say you need it but me while the doctor say they refuse to run any more test because everything has come back clean a couple months ago
I just don’t know how to do this anymore. I I don’t know how to handle myself the twitching I can deal with saliva issues. I can deal with swallowing whatever but it’s my mental capability almost like my reality isn’t real anymore and it’s harder to do just normal tasks phone calls talk to people things like that.
Has anybody had all of this kind of stuff and pulled themselves out or am I doomed for life?
Been suffering a lot of health symptoms, which is fuelling my anxiety and my depression been to several psychiatric awards in the last year probably like five or six times now and all they do is just give me medication and send me home yet. I complain about all my symptoms physically as well. Most hospitals here are only for cute days for psychiatric help, I’m looking for a hospital that is more psychiatric has a long-term stay to it and deals with patients with physical and mental issues and takes them both very seriously instead of just the acute situations where they only take psychiatric issues serious instead of health issues
I’m looking for something that is preferably long-term and I’m not talking about just a couple weeks. I’m talking a few months to a year. Let me know.
So I’ve been all over Reddit. I’ve been all over Google. I’ve been down with the rabbit hole and spiralling again.
I seen a neurologist, June 2 who did a nerve conduction test in an EMG they only did it on my right leg and right arm for the EMG and right leg and right foot for the nerve conduction test
Findings and that said no MND found upper extremities, no nerve damage lower extremities nerve damage found I don’t know what to extent, but he said could be coming from your back and also diagnosed me with BCFS benign cramping fasciculation syndrome. I’m only 6 to 7 months into my symptoms as they started and I’ve asked my doctor to refer me back to him, but because I have health anxiety written on my record, they don’t want to do anything else at least the neurologist
Ordered an MRI which I have to do in September which I think I’m gonna keep calling and asking for cancellations or try to have somewhere else books since the MRIs here are only between 7 PM and 7 AM or some shit like that
Symptoms are saliva issues, swallowing issues
General weakness around entire body almost like it’s heavy and it’s so hard to do anything and lift things properly but yet I can still do it if I put my mind to it
Mental decline I feel like I’ve derailed my life almost like I’m in derealization and I’ve disassociated myself because nothing feels real, even though that I’m suffering if that makes any sense
I have fasciculations in my feet constantly, but around my entire body now
I’m just looking for anybody’s stories that suffered this or maybe even suffered more than this with everything I have been going through and I’ve come out through the tunnel of doom
My psychiatrist doctor, an inpatient psychiatrist when I was in the psych ward agree that I have health, anxiety and psycho symptomatic disorder, which supposedly means that I look for symptoms or some shit and I over exaggerating them so they’re pretty much telling me it’s anxiety and stress and as long as I get that managed, I will be OK but it’s almost been seven months now I can’t see this just being anxiety when things seem to be getting worse
I don’t think it can be from the mirtazapine, but I want to hear from people that I’ve taken this drug for many years and to see if they have any of the same effects that I have
I have muscle fasciculations in a lot of of my body, mainly in my feet
Weakness around the body feeling like I’m struggling just to be alive
Saliva issues and swallowing issues now
A lot of of the twitching and such started when I started back on mirtazapine five months ago, but I’ve been on it for years upon years. I don’t think it is it, but I want to hear from people that might be on it for many years that might be going through any of the same symptoms I am thank you
I would have to start off saying the only positive thing about this drug is for the nerve pain
Other than that, am I the only one from suffering hard time breathing hard time, keeping sentences up, like kind of like I’ve gone dumb, and then also swallowing and drooling issues
And suffering symptoms for about five months been doing neurologist nerve damage in my lower half but no MND found so it was put on pregabalin and that’s what I noticed excess saliva pulling in my mouth very badly then I ended up going to the hospital. They switched me from pregabalin to gabapentin. Now I’m having these issues breathing a little bit of a saliva, swallowing issues almost like I forget to swallow or how to.
All these symptoms has started since pregabalin/gabapentin
Saliva issues
Swallowing issues
Muscle weakness
Mental decline
Been about 5 months symptoms and now wondering since ready peoples posts saying that could be low I need 500 or above
Been suffering these symptoms for the past few days the excess saliva has been for the past three weeks now noticed it after starting a medication. Don’t know if it has anything to do with the medication wise or the symptoms I’ve been going through for the last few months of general weakness around the body now to the point where I can’t work to twitching around the body fasciculations here and there mainly was in my feet, but they have gone down drastically since
EMG and a nerve conduction test done three weeks ago of my right leg and right arm and said no motor neuron disease found but evidence of nerve damage in the lower half. I should be relieved by that but why are my symptoms seeming to be get worse right now I have excess saliva. I feel like I’m swallowing constantly like I’m literally hydrating myself with saliva. Then I have like the muscle weakness like I explained at least what it feels to be weakness I can still lift walk and stand, but it’s like I’m over exerting myself weakness but I know even holding my cell phone for a long period of time feels like 100 pounds.
Anybody else get excess saliva after eating or drinking anything and worse at night time for the last couple weeks almost every day happens when I’m really hydrated if I dehydrate myself, I’m able to hold back some saliva, but only happens after I eat and drink anything and then for hours sometimes been looking up a lot of things and a lot of points to even though I’m going through other symptoms
Let me start off with saying I did have muscle weakness before but now it’s even worse. I started Lyrica or pregabalin whatever you wanna call it. I’m about a month and a half ago that ever since then I’ve noticed excess saliva production in my mouth and the fact that I feel like I have to swallow constantly.
I also feel like my weakness has been getting worse
Let me start off for saying two that I do believe I have a neuron disease even though that I’ve had tests done and they have come back negative for it, but I know something like this doesn’t progress with a month like this bad and only new thing that I’ve introduced him to my life is pregabalin. I’ve noticed more saliva production in my mouth, swallowing it more often so now I’m not drinking a lot of water purposely because of this.
And I’ve noticed that I’m weaker the next day now and it’s only been a month and a half since I’ve been feeling like this worse I used to be able to go to work for at least a few hours a day now I’ve been laying at home in bed for the last couple days and around two 3 o’clock, I get such impeding doom feeling that I’m dying that I can’t keep staying home any longer. I’m going to be weaning myself off of this very slowly I went from 100 mg to 75 for a few days now I’m going down to 50 tonight and I will go down to 25 for another week before stopping at completely as I don’t want major side effects but my question is has anybody suffered any excess saliva extra weakness and just feeling more shittier and not sleeping on it
For the last 2 1/2 weeks, I’ve been dealing with symptoms of excess saliva. I am swallowing 10 times more than I usually would very gassy because of I read somewhere that this could be a symptom of the big bad and then with everything else going on weakness twitching mental decline can’t do much I’m worried even though my EMG and their conduction test said no MND found
Can somebody please tell me if they have ever been through this?
Excessive saliva
Muscle weakness around body
Fasciculations around body and especially in feet
Extreme fatigue, the next day
Mentally declining
I had a recent EMG and a nerve conduction test done, and the doctor only did it on my right side, but people are saying that that’s all that they need to be able to tell any more neon disease anywhere in the body. The doctor assured me that there was no motor neuron disease at all.
I have tried looking for answers and want anybody that has ever experience this and how long did it take to go back to normal? I have a CPAP machine that I’ve been trying for the last four nights which is impossible to wear at night due to. I have mild sleep apnoea and insomnia. Now I was wondering if anybody has been through any of this before and had success on getting better.
I’m convinced I have ALS 100% so I’m reaching for answers and hoping that maybe just maybe I’m overreacting but I honestly don’t think so. I don’t care what my EMG and nerve conduction said it came back saying that there was nerve damage in my lower half he thinks it’s from Back issues, but I don’t think so.
Symptoms
Excess saliva production
Talking through my nose
Twitching that happens in my feet 24 seven also around my entire body but the body twitches only happen for a few seconds here and they’re usually sometimes a few hours and then go away
Extreme weakness that seems to be getting worse and not better. I don’t know if it’s fluctuated in the evening time and I happen to just hit the afternoon crash, but I honestly feel like I have it.
I don’t think my symptoms are fluctuating, but I could be wrong. I have muscle weakness in my arms and sometimes in my legs.
Yes, I’ve had an EMG and a nerve conduction test of my right leg and right arm. The nerve conduction test did my right foot too as well where the fasciculations were happening, but the EMG he never did in the right foot.
The prognosis of that test was he said no motor neuron disease found which I should be happy about, but I can’t keep thinking that maybe five months was just a little too soon to be in there to get diagnosed. He did physical exam which he did say that I am a strong 38-year-old male. I’ve had blood work done which my psychiatrist says that I’m immaculate 38-year-old male I’ve had an MRI of my head in my upper spine, which only show degenerate this disease in my upper spine which they said is normal for my age and nothing on my MRI of my head that it’s immaculate and unremarkable as they say.
This is why I believe I have it. I am mentally declining for one. I’m even trying a CPAP machine now because I have mild sleep apnoea not bad mild and the doctor says I have insomnia, but I can’t see it insomnia and sleep causing this much symptoms.
Anyone else dealing with this that have found out reasons on why it might be happening other than the big bad
Tried the CPAP machine last night was my worst sleep that I possibly had in a long time. I’ve been having a lot of Sleep issues lately due to some stress or some other health issues.
I twitch fasciculations all over body, but mainly in feet constantly and calves
Excess saliva production in my mouth
Muscle weakness like physical weakness I wanna say it fluctuates I really do because today seems to be a little bit better than the last couple days that I’ve had but I don’t know if it’s just me and my brain
Feel mentally off laid down and out of it almost like derealization
I tried it last night and like I said, I took it off halfway through the night and tried to sleep without it. It was hard trying to breathe through the air that was being pulled into my nose and then I kept on wanting to open my mouth, but because I have the nose mask, it was making weird sensations and feelings I just gave up. Does it get any easier?
Physical weakness
Excess saliva
Cognitive changes in behaviour and mental illness issues
And suffering a few things for the last few months if you look at my profile, you’ll be able to read up on some of it
Some of my doctors think it’s stress and anxiety and sleep deprivation, but I’m wondering can insomnia do something like this after so many years of not sleeping properly it’s been about 15 years for me
I get it. I was told by a Doctor Who specializes in ALS well at least that he told me that he did now I feel like he just lied about it just to make me feel better.
How is it possible that it’s just BCFS
Excess saliva
Muscle weakness and arms getting worse and worse by the day
Having a hard time holding my phone and typing now
Twitching around my body sometimes even keeping me up at night now when it never used to
Weakness in my legs a little bit
Not sleeping properly ever
Brain function feelS like it’s declining on me rapidly
No interest in doing anything
Can’t do things I used to do before
My EMG of my right arm of my upper half came I guess clean lower half showing nerve damage thinks it’s due to back issues from the L5 S1 area, even though I read up on my CT scan from last year and says mild disc disease and bulging, which couldn’t be causing all these symptoms
Yes, I do get twitching around the body, but not as often as the feet couple nights, though I’ve gotten twitching where it’s kept me up and hasn’t stopped in one spot
I just can’t understand this anymore. I can’t be the only person going through this with Doctors telling them that it’s either anxiety or BCFS and I cannot believe that it’s just anxiety. I’ve had anxiety for many years.
Anybody have any of these symptoms before that kind of went away on their own after a few months I need some reassurance. I’m going through a dark time. I made a post earlier that I deleted. I do apologize. I was having a rough day still am but I’m just wondering did anybody go through any or all of this and have it go away?
My psychiatrist did suggest down the line that it could be even FND but I don’t see FND causing these kinds of symptoms I heard of it just shutting your body down
Body weakness things getting harder to do
MRI clean bloodwork clean
EMG and nerve conduction test came back with nerve damage in my lower half
Only did an EMT and nerve conduction test on my right leg and right arm
That seems symptoms are getting worse excess saliva now too brain fog just don’t feel like I’m here. I think I’m gonna delete myself from this world. I’ve seek medical care I’ve seek psychiatric care nothing works. I’m done.
New twitch inner thigh and it won’t even stop tonight been up all night can’t sleep have taken pills like pregabalin and mirtazapine. Usually when I go to bed, my twitch is stopped today. Inner thigh has constantly gone off.
I was half asleep almost out and it started all over again and it will not stop and I’ve been up for the last three hours and it’s now almost 1 o’clock in the morning and I am freaking out
Anyone else here have BFs and have a new hotspot that keeps them up I highly doubt anybody’s going to answer me this late at night but I figured I’d ask since I’m up. I’m now worried that it’s do you know what
So if you’ve read up on my posts in the past, you would know I’m complaining about physical weakness around my whole body pain in my ankles and legs pain in my foot like it’s a ripping tearing pain in my right foot pain on the top of my foot on and off twitching galore in both feet and all over body, but the twitches around my body only happened for a few seconds here and there the ones in my ankles when they happen they make me physically feel weird. I don’t know it’s hard to explain the ones on my feet constantly going when I have my feet at rest only way I get relief is if I rubbed them together stand or walk which I can’t do for long sleeping sometimes I get them but usually I get a little relief there too as well so the doctor diagnosed me or at least thinks I have BCFS which is benign cramping fasciculation syndrome as he calls it, which I don’t believe one bit even after an EMG cause he only did my right leg and my right arm, not the actual foot where the twitching is happening only the nerves on my leg and my right arm nothing on my left side. He did a nerve conduction test and came to the conclusion. I have nerve damage coming from somewhere he may think the culprit is my back and has ordered an MRI of my lower back but here that’s not the issue I can deal with that.
The thing is I’m mentally declining and I get it. Everybody’s going to say it’s probably just anxiety or brain fog is from overthinking or whatever the case maybe but that’s not the case either I’ve had anxiety and I mean extreme bits of anxiety and was able to work able to do things I physically and mentally can’t even go for a walk down the street anymore without getting worked up and thinking I can’t physically do it but mentally I have this brain fog or reality shifting going on and it’s scaring the living shit out of me
I feel like this is the end. I have a sleep study cause I don’t sleep properly though. I psychiatrist thinks it could help if I have a sleep machine, but I haven’t had a sleep machine ever and I was able to fully function. I don’t understand what’s going on anyone else suffering these kinds of symptoms as well