Alongside all the other symptoms, I’ve been suffering the most gruesome one so far has been the derealization personalization with these tongue issues. I feel like my tongue is too big for my mouth and I always have excessive saliva. I’ve been tested by doctors and they say I don’t have anything, but I’m having a hard time believing it, especially when my tongue is uncomfortable every day all day.
38 year-old male 220 pounds 5 nine
Suffering excessive saliva for the last three months thought it was medication at first now not so sure it’s constant all the time. Also my tongue doesn’t want to sit still or it doesn’t feel comfortable.
If you look at my previous posts, I’ve had many tests done, especially neurological ones and nothing’s coming back. I don’t know what to do anymore. I’m at my ends with.
I think this is what I may have since I have had test after test and everything has come back normal
Fasciculations
Tongue issues
Excessive saliva issues
Weakness around body
Reality feeling different
Extreme fatigue
I have seen a Ent
Neurologist
Psychiatrist
Normal doctor
Dentist
I have had scans of head chest back mris ct scans blood work and still feel like I’m declining
My psychiatrist mentioned fnd a while back and I’m starting to think this is it cause I have all the symptoms of a neurological condition but nothing comes up in any tests so far I have been suffering for about 8 to 9 months now starting out with fasciculations then everything else getting worse and worse
Myself I believe I still have something physical wrong with me but they are saying things are clear
So there is a psychiatric aspect as they’re trying to tell me, but I’ve tried so many different kinds of medications sleeping pills you name it I’ve done it. I’ve even tried. RTMS treatment, which actually messed me up in the brain even more.
I’ve tried to go back to work and push through it but things seem to be getting worse. What do I do in this situation when everybody has given up?
I’m scared I’ve been having a lot of issues As You Can read for my profile but ever since I started taking this medication a few days ago I’ve been very on edge almost like I don’t know how to think feel or act and I think I’m feeling very suicidal
Has anybody ever had this before on this medication anybody’s opinions?
I’ve made so many posts. I’m actually even starting to get sick of myself, but I need some reassurance or at least some guidance.
30-year-old male suffering a boatload of symptoms
Disassociation where I feel like reality isn’t real anymore yeah somebody’s gonna tell me to get on antidepressants. I know I already am on them also anti-anxiety medication.
Swallowing issues with saliva, pooling, and excess saliva
Muscle endurance, weakness, where I get weak really fast and shaky
Tongue issues like I can’t be comfortable with my mouth at all
Started out with fasciculations in my body, which are really bad at the time, but I will admit has gotten a bit better compared to before they’re not as aggressive unless I just don’t notice them anymore
I met with the neurologist June 2 had an EMG and a nerve conduction test. Everybody here told me that them doing it on my right leg and my right arm was good enough because it would’ve been able to see any neurological disease in my body.
Had another one done August 25 almost 3 months after but this time the nerve conduction test was only done on my right arm, but the EMG was done on my right leg and my right arm and he pretty much said the results were the same as June 2 and advised me that I do not have ALS and that he’s worked with 500+ patients and he used to work on an ALS clinic. Yes I should be 100% happy I get it. I know I’m gonna get roasted like no tomorrow here as well.
But my thing is, how am I getting progressively worse but everything is coming back clean and now the doctors have given up on me
And yes, I’ve been to the psychiatric ward. I spent my entire summer pretty much there just yesterday. I went back to work finally to do Towing but it’s so hard. It’s not like easy job anymore for me. The paperwork hard my hands cramp when doing paperwork hooking up cars driving things like that seem 10 times more harder than they ever have in my entire life.
My question is for the people that have suffered anything like my symptoms has things gotten any better for you? Did you take any kind of medication or precautions? What did do you do to switch things up? I just I don’t know if I can do this anymore. I’m gonna be posting on this Reddit group on Reddit all the time actually until things lighten up. I’m scared that my life is over with
So I was about 17 to 18 sessions in and stopped at completely because when I started it I started having reality changing thoughts perceptions and now I feel like I’m living a dream like I’m not me anymore. I have no motivation no happiness no nothing.
Just wondering if anybody else has gone through this kind of stuff and how long did it take to lift? I googled it and it says that it should be within a month that the symptom should go down I just hate feeling like this. I’m not me.
So I’m posting in this group because a lot of people read these posts
I’ve had two nerve conduction test tests done on my right arm and two EMG is done on my right leg and right arm neurologist said from both of them that there was no MND found at all and assures me that I do not have aLS in any kind of way
I am having a hard time with this right now
Last time he checked me which was last week I mentioned to him about swallowing issues saliva issues like having way too much saliva and tongue issues he examined me physically looked in my mouth and said he had no worries and he wasn’t going to do an EMG on my tongue. OK cool.
I should be relieved yes but I am back here posting like always, and probably going to get a lot of backlash because of it
Symptoms are excessive saliva all day
Fasciculations in my feet and all around my body, but yes, they have gone down since they first started or at least I don’t notice them anymore today today’s been very bad for my feet
But the thing that scares me, the most is I feel mentally off like my reality is different. I’m perceiving things the wrong way I have no motivation or hype to do anything anymore or happiness and that’s what scaring me. The most is. I feel like I’m in a whole Nother world.
I have taken anxiety meds so much and nothing’s worked. I have to talk to my psychiatrist again next week when I have an appointment I’m literally only taking sleeping pills right now hoping that may be getting some sleep. Will help.
I need just some reassurance that some people have gone through this and pulled themselves out. I just want to be normal again. I’m trying to fake it until I make it. I’m going back to work in my tow truck, but it’s the afternoons that kill me the most the brain fog, the cognitive decline, and everything like that, and it happens more in the afternoon than it does in the mornings and evenings.
Also, another thing I was wondering, has anybody found any kind of Councilling that could be done online for free or psychologist that’s pro bono I know it’s asking a lot but I feel like if I can get down to why I feel like this mentally maybe the physical symptoms will go away
Again, I know I should be happy. I’ve had Doctors check me out and say that I’m fine but meanwhile, I’m living with these symptoms feelings and everything which is making me feel even more garbage.
Symptoms are
Reality feels off or different
No care in the world to do anything and have no motivation left. Feel sick all the time.
Muscle twitching all over her body sometimes I get hotspots sometimes nothing
My tongue feels like it’s rubbing on my teeth and hurts so bad like excruciating pain, but nobody wants to do anything about it
Swallowing issues and saliva issues
But the main thing that scares me is my brain I don’t feel like me anymore. I don’t have the same feelings empathy. I don’t have the same happiness or the motivation like I can get through the day, but it feels like I’m just running on fumes.
I’ve had two neurological evaluations from the same neurologist within the last six months
Both coming back with nerve damage in my lower half, but no MND found
MRIs are clear CT scans are clear. Only thing on my MRIs are just degenerate disc disease and pretty much my entire back.
I’m ready to give up. I can’t do this anymore. I can’t keep getting told that it’s a mental illness problem and being put out a whole bunch of medication. I’m done taking them. I’m done with everything. No Doctor wants to listen to me anymore. They’ve given up so I’m giving up. I guess I’m really here for rant
But has anybody ever had these problems for months or years and have gone back to normal because I don’t know if I can do this anymore
So lately I’ve been dealing with a lot of symptoms one of the most serious ones I have right now is the fact that my reality feels different and perceiving everything differently I can’t like or do anything I used to do without either thinking it’s too hard or just physically and emotionally can’t do it
I have muscle twitching around body muscle weakness around body. It’s like my limbs are giving out easier than they ever have before
I’ve had two EMGs and nerve conduction test done in the last six months and they’ve come back clean and the neurologist has informed me. I don’t have anything MND wise, but I don’t know what the fuck is going on. I literally feel like I’m dying.
My main symptom is feeling like my reality is completely different like I’m disassociated for my life. I’ve tried several medication’s or TMS treatment and also been to the hospital several times this year and probably will end up back there again.
I guess I don’t know what I’m doing here other than asking for reassurance that somebody else might’ve gone through this for many months and got out of it same symptoms
Brain fog concentration hard feel like I’m an idiot
Twitching around body limbs are giving out easy
Tongue issues hurts, rubbing against my teeth too much a lot of saliva issues
I just feel like I should just give up like honestly I should just go through with my plan
Doing rtms and now I’m my 16 session
Just wondering did anyone else get more messed up cause of it
I’m having feelings of dream like reality
Hard time concentrating
More paranoia
Swallowing the tongue issues
All started when I started a mouth ago and don’t know if it’s part of my rtms and if anyone had issues like these ? I’m thinking of stopping
Currently been in the psychiatric ward for a couple weeks now because of this
Symptoms are
Muscle weakness around body
Swallowing issues and saliva issues
Fasciculations around the body for a few seconds here and there
Tongue twitches when I stick it out
Altered reality like as if I’m not even here like things aren’t real
I’m almost positive. I have it. I know I’ve had an EMG and a nerve conduction test done last month or should I say two months ago now actually in June on the second and symptoms seem to be getting worse.
I’m currently in the psychiatric ward yes everybody’s going to say you need it but me while the doctor say they refuse to run any more test because everything has come back clean a couple months ago
I just don’t know how to do this anymore. I I don’t know how to handle myself the twitching I can deal with saliva issues. I can deal with swallowing whatever but it’s my mental capability almost like my reality isn’t real anymore and it’s harder to do just normal tasks phone calls talk to people things like that.
Has anybody had all of this kind of stuff and pulled themselves out or am I doomed for life?
Been suffering a lot of health symptoms, which is fuelling my anxiety and my depression been to several psychiatric awards in the last year probably like five or six times now and all they do is just give me medication and send me home yet. I complain about all my symptoms physically as well. Most hospitals here are only for cute days for psychiatric help, I’m looking for a hospital that is more psychiatric has a long-term stay to it and deals with patients with physical and mental issues and takes them both very seriously instead of just the acute situations where they only take psychiatric issues serious instead of health issues
I’m looking for something that is preferably long-term and I’m not talking about just a couple weeks. I’m talking a few months to a year. Let me know.
So I’ve been all over Reddit. I’ve been all over Google. I’ve been down with the rabbit hole and spiralling again.
I seen a neurologist, June 2 who did a nerve conduction test in an EMG they only did it on my right leg and right arm for the EMG and right leg and right foot for the nerve conduction test
Findings and that said no MND found upper extremities, no nerve damage lower extremities nerve damage found I don’t know what to extent, but he said could be coming from your back and also diagnosed me with BCFS benign cramping fasciculation syndrome. I’m only 6 to 7 months into my symptoms as they started and I’ve asked my doctor to refer me back to him, but because I have health anxiety written on my record, they don’t want to do anything else at least the neurologist
Ordered an MRI which I have to do in September which I think I’m gonna keep calling and asking for cancellations or try to have somewhere else books since the MRIs here are only between 7 PM and 7 AM or some shit like that
Symptoms are saliva issues, swallowing issues
General weakness around entire body almost like it’s heavy and it’s so hard to do anything and lift things properly but yet I can still do it if I put my mind to it
Mental decline I feel like I’ve derailed my life almost like I’m in derealization and I’ve disassociated myself because nothing feels real, even though that I’m suffering if that makes any sense
I have fasciculations in my feet constantly, but around my entire body now
I’m just looking for anybody’s stories that suffered this or maybe even suffered more than this with everything I have been going through and I’ve come out through the tunnel of doom
My psychiatrist doctor, an inpatient psychiatrist when I was in the psych ward agree that I have health, anxiety and psycho symptomatic disorder, which supposedly means that I look for symptoms or some shit and I over exaggerating them so they’re pretty much telling me it’s anxiety and stress and as long as I get that managed, I will be OK but it’s almost been seven months now I can’t see this just being anxiety when things seem to be getting worse
I don’t think it can be from the mirtazapine, but I want to hear from people that I’ve taken this drug for many years and to see if they have any of the same effects that I have
I have muscle fasciculations in a lot of of my body, mainly in my feet
Weakness around the body feeling like I’m struggling just to be alive
Saliva issues and swallowing issues now
A lot of of the twitching and such started when I started back on mirtazapine five months ago, but I’ve been on it for years upon years. I don’t think it is it, but I want to hear from people that might be on it for many years that might be going through any of the same symptoms I am thank you
I would have to start off saying the only positive thing about this drug is for the nerve pain
Other than that, am I the only one from suffering hard time breathing hard time, keeping sentences up, like kind of like I’ve gone dumb, and then also swallowing and drooling issues
And suffering symptoms for about five months been doing neurologist nerve damage in my lower half but no MND found so it was put on pregabalin and that’s what I noticed excess saliva pulling in my mouth very badly then I ended up going to the hospital. They switched me from pregabalin to gabapentin. Now I’m having these issues breathing a little bit of a saliva, swallowing issues almost like I forget to swallow or how to.
All these symptoms has started since pregabalin/gabapentin
Saliva issues
Swallowing issues
Muscle weakness
Mental decline
Been about 5 months symptoms and now wondering since ready peoples posts saying that could be low I need 500 or above
Been suffering these symptoms for the past few days the excess saliva has been for the past three weeks now noticed it after starting a medication. Don’t know if it has anything to do with the medication wise or the symptoms I’ve been going through for the last few months of general weakness around the body now to the point where I can’t work to twitching around the body fasciculations here and there mainly was in my feet, but they have gone down drastically since
EMG and a nerve conduction test done three weeks ago of my right leg and right arm and said no motor neuron disease found but evidence of nerve damage in the lower half. I should be relieved by that but why are my symptoms seeming to be get worse right now I have excess saliva. I feel like I’m swallowing constantly like I’m literally hydrating myself with saliva. Then I have like the muscle weakness like I explained at least what it feels to be weakness I can still lift walk and stand, but it’s like I’m over exerting myself weakness but I know even holding my cell phone for a long period of time feels like 100 pounds.
Anybody else get excess saliva after eating or drinking anything and worse at night time for the last couple weeks almost every day happens when I’m really hydrated if I dehydrate myself, I’m able to hold back some saliva, but only happens after I eat and drink anything and then for hours sometimes been looking up a lot of things and a lot of points to even though I’m going through other symptoms
Let me start off with saying I did have muscle weakness before but now it’s even worse. I started Lyrica or pregabalin whatever you wanna call it. I’m about a month and a half ago that ever since then I’ve noticed excess saliva production in my mouth and the fact that I feel like I have to swallow constantly.
I also feel like my weakness has been getting worse
Let me start off for saying two that I do believe I have a neuron disease even though that I’ve had tests done and they have come back negative for it, but I know something like this doesn’t progress with a month like this bad and only new thing that I’ve introduced him to my life is pregabalin. I’ve noticed more saliva production in my mouth, swallowing it more often so now I’m not drinking a lot of water purposely because of this.
And I’ve noticed that I’m weaker the next day now and it’s only been a month and a half since I’ve been feeling like this worse I used to be able to go to work for at least a few hours a day now I’ve been laying at home in bed for the last couple days and around two 3 o’clock, I get such impeding doom feeling that I’m dying that I can’t keep staying home any longer. I’m going to be weaning myself off of this very slowly I went from 100 mg to 75 for a few days now I’m going down to 50 tonight and I will go down to 25 for another week before stopping at completely as I don’t want major side effects but my question is has anybody suffered any excess saliva extra weakness and just feeling more shittier and not sleeping on it
For the last 2 1/2 weeks, I’ve been dealing with symptoms of excess saliva. I am swallowing 10 times more than I usually would very gassy because of I read somewhere that this could be a symptom of the big bad and then with everything else going on weakness twitching mental decline can’t do much I’m worried even though my EMG and their conduction test said no MND found