▲ 2 r/NDIS

Anything you think Ishould be wary of with O.T doing FCA?

It will be the second time I'm having one but do you think there's anything worth mentioning? I'm afraid of the judgement or afraid they think I'm faking idk why. What is helpful to show or not show?

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u/WishfulThinker28 — 2 days ago

Get the feeling my support worker doesn't believe me idk

May just be my anxiety but Im not working atm and i worry she looks at my capacity and thinks im just a mooch

I have migraine with aura and fnd and we were out and she asked when we were looking at clothes if I could see a tag up close and read it. Whether she was trying to distract me idk. Also made a comment to me saying thats a very grown up thing to do. I just feel like a child sometimes. And worry if she knows ppl I know worry shes spoken to my support coordinator and shes gotten in trouble from things I've complained about. How can you possibly speak up and complain if its their work and they potentially could retaliate against you. Sometimes I feel like im not disabled idk. Maybe I need to just chill out

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u/WishfulThinker28 — 5 days ago

My kitty is on ourina one atm is there any affordable alternatives that last longer?

Just gone through nearly 5 sachets of Purina One only bought them a few days ago and he has dry food, sachets dont last as long just wondering what his alternatives could be he is a pretty picky ragdoll. Balance them out with the dry food and often walks off from it sometimes my dog has scoffed it down. What are some reasonably priced alternatives? Doesn't like fancy feast, tried wellness didnt like that

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u/WishfulThinker28 — 10 days ago
▲ 1 r/Anemic

Is 11.2 iron low?

Ferretin is 44 doc said its fine was on iron but stopped feel weak and dizzy every day whilst dealing with chronic migraine and whatever else feel like im not listened too im so over it

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u/WishfulThinker28 — 14 days ago

Fuck family members

Some of them that purposely shine light towards you knowing what it could trigger? Fuck you seriously. Make out they dont do it on purpose. I'm so mad of ppl who are inconsiderate, my mother broke my brown glasses that helps then denies it. Im an adult and this is what happens. I hate migraines and I hate ppl who make it worse for you on purpose.

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u/WishfulThinker28 — 14 days ago

Walked into to a urology appointment for a doctor to say this..

He im certain was made aware that I was dealing with intractible migraine. And when I walked in it smelt disgustingly like heaps of perfume. He goes sorry I had to spray heaps from the past patient...it almost felt like a dig. Not only did he dismiss me having an I.U.D and my migraines. The dizziness I experience..told me to stay on it..I dont know how to feel anymore no doctor listens.

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u/WishfulThinker28 — 23 days ago
▲ 1 r/utis

Vent- I also have green pee?

Ive been getting utis for years and am on cymbalta riperidone, paxam,kyleena for 5 or so months now and I keep getting them. I cant handle this anymore. I have my urogynae next week and the endo doc said to keep at having iud. Seriously?? I feel helpless over all with my health and pee is now green whilst on nitrofruontin. I feel confused all the time with migraine too its always migraines and utid and fnd and whatever else and incontinence. I hate this, hiprex makes me pee too much. Been offered amitriptyline to help endo pain again and migraine but thrn I read that can cause urinary issues too im so over the medical system where I live. I tried long term antibiotics a long time ago even contacted yhat doc in UK. Im so sick of endo utis all of it. My mood is mildly better with iud but I feel light-headed yet they still say stay on it. I cant live like this no one listens. Ive exhausted majority of my birth control. Ive been forgetting to take my estrogen will start again tonight. Im so sick of this.

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u/WishfulThinker28 — 29 days ago
▲ 3 r/CUTI

Vent- I also have green pee?

Ive been getting utis for years and am on cymbalta riperidone, paxam,kyleena for 5 or so months now and I keep getting them. I cant handle this anymore. I have my urogynae next week and the endo doc said to keep at having iud. Seriously?? I feel helpless over all with my health and pee is now green whilst on nitrofruontin. I feel confused all the time with migraine too its always migraines and utid and fnd and whatever else and incontinence. I hate this, hiprex makes me pee too much. Been offered amitriptyline to help endo pain again and migraine but thrn I read that can cause urinary issues too im so over the medical system where I live. I tried long term antibiotics a long time ago even contacted yhat doc in UK. Im so sick of endo utis all of it. My mood is mildly better with iud but I feel light-headed yet they still say stay on it. I cant live like this no one listens. Ive exhausted majority of my birth control. Ive been forgetting to take my estrogen will start again tonight. Im so sick of this.

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u/WishfulThinker28 — 29 days ago

Just took my Emgality and it didnt click twice does this matter?

It says if i see the Gray area it still means it worked. This is my 5th injection I think and my intractable migraine still hasn't gone away my visual snow is still there numbness everywhere andbmy vision hasnt gone back to its baseline. I hate this.. no one understands the hell youre in and they treat you normally. Had largactil last week and it still hasn't hit. I dont know wat to do anymore. They want me to try another med ive tried before but I dont want too. I dnt have it in me to try anymore. I feel.dizzy and neurologist doesnt care and tells me to stay on it

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u/WishfulThinker28 — 1 month ago

Is anyone on emgality and baclofen?

I feel so dizzy have no feeling in my arms and legs which I kinda had before anyway but this time its worse have FND not sure if its from that or not. Neurologist still says to stay on it..endo specialist suggests amitriptyline which made me feel numb and didnt work for migraines. Im so over it my next emgality is due next week.

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u/WishfulThinker28 — 1 month ago

Is anyone on emgality and baclofen?

I feel so dizzy have no feeling in my arms and legs which I kinda had before anyway but this time its worse have FND not sure if its from that or not. Neurologist still says to stay on it..endo specialist suggests amitriptyline which made me feel numb and didnt work for migraines. Im so over it my next emgality is due next week.

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u/WishfulThinker28 — 1 month ago

Im so mad

Im sick of this disease sick of migraines. I said to my doc i feel more light headed since been on the iud so im told to fucking stay on it til i see urogynae who are useless about my utis, told theyve run out of options for my birth control options. Doctors think they have so much authority over your own body. They mentioned trying amitriptyline again and I said it made my mood numb. So she Still said she will write the gp to let me try amitriptyline and said she cant see all the other meds id been on currently. Fuck the public system fuck doctors and nurses. Not all ate bad but some should not be caring for vulnerable ppl im so fucking mad this is my everyday hell. No one can sort out utis. No one can sort out my bv. No one can sort out anything. I cant have any more endo surgery. Im so done

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u/WishfulThinker28 — 1 month ago

Just heed to vent

I hate migraines

I hate my neurological disorder I hate being disabled I complain to stupid doctors they dont listen . I say feel dizzy on risperidone and some of my other neds they STILL dont listen. Why cant I be normal why cant my status migraines go away. Why cant ppl be more understanding I have been able to see properky for so long sometimes I wish I could just fucking disappear I never wanted this life I never wanted to suffer this long. Im so sick of brain zaps the weakness the trou le swallowing the fighting mental health being different having support workers im so sick of it. I cant even stand for 5 fucking minutes. Its unbearable. No one cares or listens anymore. My family are sick of me just pushed to the side and picked at. I feel like I have no control over my life. I just want some fucking relief i dnt want this life i feel like if it wasn't for some doctors maybe I wouldnt be this way. I do take some accountability but the pure loneliness of being disabled is so depressing. I have no quality of life

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u/WishfulThinker28 — 2 months ago

Would you feel a bit strange about this or is it just me?

My support worker emptied my bag and out things away as I felt the need to rest, it made me feel a little helpless I know they wouldnt take anything but my past support workers havent done that. Although I've had one pretty sure look through my bag in the past and take money. I feel like I dont have a voice sometimes. I have trouble speaking up. Maybe they were just emptying my things to help out but I feel like its also an invasion of privacy? In the past Id mentioned dont throw anything out as well and they brought it up again and picked up the thing Im pretty sure was accidentally thrown out, hang it up and I was like wth thats odd.

I just dont trust sws enough and struggle to trust. Id rather not have one but feel obligated too tbh and it does help.. it makes me feel more dependent. Other than that this sw is amazing. I just dont want them forever.

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u/WishfulThinker28 — 2 months ago
▲ 1 r/AskVet

Scaly bumpy skin, what is this?

Hi I have a 7 year old maltese shihtzu dog, desexed who has (provided pics) on her back. The last vet had said it was an old flea bite and to just wash her which we did ( have a few times since then). It has still stuck around and seems like its almost part of her skin and its scaly and lumpier.What could this be? In Australia. This has been going on for over a 4 or so month time frame( from what I gather)

Thanks

https://imgur.com/a/dZendpd

https://imgur.com/a/LP7pB5s

u/WishfulThinker28 — 2 months ago

Marks nearly 10 years dealing with daily migraines

Had them since I was child but nearly marks 10 years. I have no quality of life all I do is stay in bed and maybe see my support worker weekly. I have other illnesses too. I figure if it doesnt Improve by next month I really want to end it but I dont want to upset my parents even though they would eventually get over it. I just don't have it in me anymore. Ive been depressed for as long as I remember no doctors help physical or mental health got told its fnd there's no cure as well all whilst dealing with another rare disease. I just dnt have the fight left in me and with stage iv endo. I dont want to fight anymore. Calling a hotline doesnt help talking to ppl doesnt help it doesbt change anything it doesnt change my circumstances I cant get back any of the tim3 ive lost. I have no friends. I have immense pressure in my head neurologist doesnt do anything my mother said whats the point of seeing another one they dont do anything.

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u/WishfulThinker28 — 2 months ago

Am I wrong for feeling this way?

I struggle with daily migraines and feel like a massive burden went and had a gastroscopy yesterday got a lift back with support worker and they finished their shift. Then mother spent most of the time on her phone woth her sister who was upset and knew id just had a procedure but cared more about venting to my mother. Its been 24 hrs since I had my gastroscopy and I feel so shit and weird and everyone's gone out. I feel so uncared for. Maybe I am just being overdramatic and its the meds and everything but I feel everyone is so sick of my mental and physical health that I'm left out of everything and I'm just a disabled lump of shit. Feel like I'm invisible. So I'm home alone feeling spaced out even more than I did before I had gastroscopy. I seriously feel like if I died no one would notice or even care

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u/WishfulThinker28 — 2 months ago
▲ 4 r/NDIS

How does 3 text messages cost $105?

For support coordination? That sc is also offering me 5 hrs a week for me to see her instead of a sw as well..

I dont get how some days its around $60 and others its a bit more I know how its done in different blocks but it made me question it. I dont completely understand it all and so apparently it also takes a certain amount of time to get an O.T?

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u/WishfulThinker28 — 2 months ago

Does anyone else freak out when ppl offer you certain foods?

I swear I have ppl that know I get migraines offer me triggering foods, I swear its like they've googled how to trigger one, maybe my anxiety talking. Im so tired of fighting this having a procedure this week any ideas of what I could ask them to put in a drip?

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u/WishfulThinker28 — 2 months ago