Endo doesn't believe me
I need help. I got diagnosed with subclinical hypothyroidism 3 years ago and have been suffering with HORRIBLE symptoms for 7 years now. My primary doctor tried to treat it for 2 years and we got nowhere - she adjusts the dose, and after 3-4 weeks my symptoms all go away. Every single one. This is what I assume my thyroid levels should be at. Then as more time passes all the symptoms come back. By the 2nd month I am severely symptomatic again. So she adjusts the dose - 3-4 weeks later I feel great - 4 more weeks and symptoms start crawling back.
I've been telling her this for YEARS every 8 weeks and she always says "Your TSH is fine" - so I begged to see an endocrinologist. Finally got in 6 months ago. He was immediately snide and condescending with me saying my labs were normal. I had a severe vitamin D deficiency which he said was the issue, he made me go on a 4 month course of vitamin D saying it would cure everything. 6 months later my vitamin D (iron, ferritin, everything) is normal and I feel the exact same. I knew the issue wasn't my poor vit D because I've had low vit D in the past a few times and it wasn't anything like what I'm experiencing now.
There's obviously a specific level where my thyroid functions normally and all my symptoms go away. But the doctors keep saying my TSH is normal and do nothing. They don't realize my symptoms have genuinely made me suicidal, it's nearing a decade of this. What can I do??
For reference I'm 28F, on Synthroid. my symptoms:
-Weight gain even with a diet & exercise plan from a hospital dietician
-Extreme fatigue (sleeping 16h a day)
-Brain fog
-Muscle weakness
-Freezing cold - I sometimes need to wear my winter hat, mittens, and scarf to bed
-Losing clumps of hair
-Very dry, coarse hair with no shine
-Extremely dull, dry, peeling and cracking skin. No products help
-Developed 4 deep neck lines
-High cholesterol
-Extremely painful period
-Very irregular period, often skips many months. When Synthroid dose is adjusted my period comes on the same day every month and is very light and painless. Now the variation in cycles is 28+ days
-Puffy face
-Almost zero hair growth. Eyebrows don't grow for months, hair on my head also almost completely ceases growth
-Shortness of breath
After my doctor adjusts my dosage and 4-ish weeks pass, ALL these symptoms gradually disappear. Every single one.
Please can someone help on how to get them to believe me. I just want them to test my thyroid during the time my symotoms disappear to figure out those values so we can work on medicating to stay like that. But they don't take me seriously because I'm young. Even when I told them hypothyroidism runs in my family (my mom, aunt, and grandma all have it) they don't seem to care.