u/igavr

I wish someone mentioned to me that my immunity was mainly in my hands and not in the hands of any doctors.

This way I'd find my way out sooner and wouldn't have depreciated my health that much in progressing MCAS++ because of my own ignorance.

I'm so grateful to everyone sharing personal experience here in r/MCASHolistic as well as in r/MCAS - if I had access to this information back in 2015 when it started, I'd be a much healthier person now 😇🐦‍🔥

What's on your "I wish...." MCAS related list?

May peaceful mast cells be with you! 🤓🙏

I guess there are many different cases and situations every person with MCAS can share in support of either direction. I am interested in gathering a story collection referring to psychosomatics as it is being argued everywhere and nearly by everyone.

My story is quite simple: I went through tremendous stress of barbaric separation with my sweetheart and all of a sudden shortly after I started "trying to get out of my skin" as I felt so uncomfortable and so disoriented that I felt no integrity within myself and refused to live this way. My first MCAS symptoms appeared then, but I couldn't match them because I had no knowledge on this subject. So I named them "Allergy" and dealt with them accordingly. So in my case psychosomatics acted as a trigger, so to say.

Share your thoughts and stories, please

May peaceful and wise mast cells be with you 🐦‍🔥🟢

I wish someone mentioned to me that my immunity was mainly in my hands and not in the hands of any doctors.

This way I'd find my way out sooner and wouldn't have depreciated my health that much in progressing MCAS++ because of my own ignorance.

I'm so grateful to everyone sharing personal experience here in r/MCASHolistic as well as in r/MCAS - if I had access to this information back in 2015 when it started, I'd be a much healthier person now 😇🐦‍🔥

What's on your "I wish...." MCAS related list?

May peaceful mast cells be with you! 🤓🙏

This community is abandoned and I would like to rejuvenate it as herbal medicine topic is very dear to me.

I wish someone mentioned to me that my immunity was mainly in my hands and not in the hands of any doctors.

This way I'd find my way out sooner and wouldn't have depreciated my health that much in progressing MCAS++ because of my own ignorance.

I'm so grateful to everyone sharing personal experience here in r/MCASHolistic as well as in r/MCAS - if I had access to this information back in 2015 when it started, I'd be a much healthier person now 😇🐦‍🔥

What's on your "I wish...." MCAS related list?

May peaceful mast cells be with you! 🤓🙏

I had been dealing with insomnia for around 5 years now, but I never saw a doctor until 2 months ago.

Throughout these 5 years, I tried everything. Having better sleep hygiene, taking sleep supplements, doing meditation and the list goes on. Sometimes they worked, but I was never able to get consistent good sleep even when my habits were optimised. I was able to get by with naps and extra time in bed on weekends, but 2 months ago I decided I had enough and went to see a psychiatrist.

I was put on 15mg of mirtazapine nightly and it has literally changed my life. I don’t find myself waking up in the middle of the night anymore. I used to get a deep refreshing sleep only once in a blue moon, but now it’s almost everyday that I find that I feel energetic the whole day.

Deciding that I needed help actually gave me a new lease on life. To everyone that is struggling on their own, I just hope to tell you that it is okay to seek help and doing so might change your life forever

I wish someone mentioned to me that my immunity was mainly in my hands and not in the hands of any doctors.

This way I'd find my way out sooner and wouldn't have depreciated my health that much in progressing MCAS++ because of my own ignorance.

I'm so grateful to everyone sharing personal experience here in r/MCASHolistic as well as in r/MCAS - if I had access to this information back in 2015 when it started, I'd be a much healthier person now 😇🐦‍🔥

What's on your "I wish...." MCAS related list?

May peaceful mast cells be with you! 🤓🙏

I wish someone mentioned to me that my immunity was mainly in my hands and not in the hands of any doctors.

This way I'd find my way out sooner and wouldn't have depreciated my health that much in progressing MCAS++ because of my own ignorance.

I'm so grateful to everyone sharing personal experience here in r/MCASHolistic as well as in r/MCAS - if I had access to this information back in 2015 when it started, I'd be a much healthier person now 😇🐦‍🔥

What's on your "I wish...." MCAS related list?

May peaceful mast cells be with you! 🤓🙏

Gut lining won’t heal if it’s constantly poked. Period.

I've studied this subject in and out, I've done a lot of research and experiments with dozens of volunteers. I came to a conclusion that my mast cells will keep "partying" until I manage to:

Remove ongoing irritants

Improve sleep (huge for epithelial repair!)

Learn to keep blood sugar stable (night dips = mast cell triggers)

Avoid constant food novelty while unstable (hard for me as a researcher :) my curiosity is the base of my life)

Treat my nervous system well...

Well, this is exactly where I often fail as a person with a classical Gemini ♊️ character 😁. I do many things at a time, I am monstrously curious, I am ambitious and I have issues with not finishing something I started = I work a lot and have little high quality rest and relax time. My nervous system is often overloaded and it reflects on my MCAS curriculum vitae in form of adding new chapters.

Nervous system is probably the #1 gut barrier regulator. It is underrated but critical. Because mast cells sit next to nerves. It's literally their job :) I noticed that chronic stress, hypervigilance and poor vagal tone normally result in gut permeability. Even in people who do not have MCAS, imagine how it affects us, MCASers...

What I find helpful based on my trial and error 10+ year path:

- Slow eating (mechanically important!)

- Warm meals (critical for me, important for many MCASers)

- Breath work before meals (I usually forget!... because of my crazy schedule, but it works well when I don't)

- Not eating in a stressed state - that's a hard one unless I'm stress-impressed so deeply that I turn of all life basics for digesting the subject of stress.

My perception of gut lining is similar to that of skin. We feel hysterical when our skin doesn't serve as a reliable barrier from the outer world. But we can see it and sense each spot itching or hurting vividly, try to scratch it or fix it somehow else. If we had the same sensitivity and consciousness about the gut lining integrity and damages, we'd invest more and with much more respect into making our gut lining a strong and healthy and happy "Chinese Gut Wall" 🧱🧱🧱🧱🧱🧱

May peacefull mast cells be with you 👋🐦‍🔥🟢