u/societiesoddball

I was wondering if anyone had any book recommendations for topical use, dilution and info on specific oils and the maximum dilution. Ive seen a lot about aromatherapy and a little about topical use. Im pretty new to all of this and just dont want to mess it up

What exersize have worked for you guys?

My dr and I are pretty sure I have cervical spine instability and its like everyday my symptoms get worse and im realizing this is why most of my chronic issues are always so easily agitated.

Of course I had to schedule a month out for a standing mri and its next week. Im so tired and burnt out and not at all positive because im going to have to wait weeks to go to pt because my usual pt is booked into January by now.

What exersize have worked for you guys? Ive looked into some and the stretches I cant do because im pretty sure thats half of why im in this position and certain things like chin tucks flare up my symptoms and stretch my muscles too.

Im missing so much work and I can deal with pain but this neurological stuff and sleep stuff is absolutely misrable and I just dont know what to do anymore.

Does anyone know of any good ways to recover from surgery faster? I know its not exactly an eds specific thing but I know a lot of us especially with certain comorbidities can relate.

I got laporscopic pelvic diagnostic surgery.

They didnt find anything didnt take anything and im at 5 days and im in more pain and more fatigued and dizzy then day one and two?

The only pain ive had is just being sensitive in certain areas so I slept with a heating pad and took Tylenol.

Now my back hurts im exhausted and dizzy and my incisions are itchy and I dont feel bloated anymore I just feel like shit.

Has anyone been able to get ever accountable to work on linux asside from dual booting onto windows? It wouldnt see anything on linux if he did it that way.

My boyfriends po said if he can get it to work on linux than its fine but he cant figure it out and his po is just saying figure it out or get a new OS which is freaking expensive af. He brought up another better monitoring software but she only wants the one.

Does anyone know if theres something like gene sight but for regular medications?

I keep having crazy medication reactions and I didnt know if theres something like general sight so I dont have to do as much trial and error and miss a bunch of work.

Luckily my work is super understanding but ive become unreliable and I know how frustrating at times to work with someone so unreliable. Luckily ive had 2 weeks without calling in!

Im having laproscopic diagnostic surgery for reproductive issues on Wednesday. Because I have a stomach roll that may overlap the incision slightly and also just the placement in general im worried about the wound care. I keep seeing these products for "wound care nutrition" and "wound care hydration" does anyone have experience with those and if they helped? I know you feel better when hydrated but does it actually help?

Last time I had a breast reduction and under my boob had more tension on the stitches and they broke in one place. It ended up being okay but im worried about the healing. Superficial stuff I heal relatively fast but anything surgery related I get pretty bad scars it feels like recovery time is slower than expected and I worry at times it may rip open.

TLDR nobody thinks pressing diagnosis makes any difference and im constantly having things wrong with my body that im too young for at 28 exp. Type 2 kidney disease at 28 health diet growing up, current broke healthy diet (no greasy messy crazy food) never smoker never heavy or consistent drinker.

Im trying to look into characteristics of each eds subtype and some are very vague or list 3 characteristics when some are only at birth but I wouldn't know because my family doesnt believe in doctors or doesnt believe anything is a big deal and ignore any issue. My mom is just now understanding after almost fainting on her floor from sitting up and hearing about how many injuries im having and the kidney disease which shocked her.

Multiple drs but my first dr think I have h eds but my current one doesnt think its worth re screening me until new criteria. Technically im diagnosed hsd but treatment is like i have heds.

So im doing my own research to narrow down things a bit. I would be satisfied with an heds diagnosis if we would be able to accurately rule out any other types. Especially considering my dad's whole side seriously sounds like some of the rarer types.

I used to joke around and be like haha just another Pokémon card just apart of eds but now im a little agitated and absolutely want something to work on. Im seeing my eds specialist Friday but its going to be about supplements and exploratory reproductive surgery and the possibility of a hysterectomy.

RANT for more context ignore if you dont need it.

My last 2 eds specialists have been trained by eds society and the first has eds and does seminars for eds society. The first i dont think our personalities mixed well and she had to stop seeing eds& pots patients since shes primarily primary care a lot with kids. I also wouldnt doubt she got burnt out which effected her health because she was out for two months before letting me go.

So ive been on my journey for diagnosis for years. I got inconclusive results from invitae and I was extremely burnt out from advocating for myself on my own so I didnt follow up for a year when my health & pain went downhill. At the time the first dr i found was pivotal in my pots diagnosis and treatment but was dismissive about my clarifying questions during screening for eds but hooked me up with invetae. I understand my body better now but also I rarely went to the doctor as a kid and a lot of the times was gaslit by my parents and doctors about any differences. I dont know how my development was I had such a hard time with chronic pain learning and making friends as a kid id say the pain at 8 years old is the earliest I can remember. I got ahold of some of my records but the notes weren't great and furthest back was maybe 8. The only thing I could pick up was I was getting utis and yeast infections way too young like 8 yrs old and sick more often as I got older.

CURRENTLY

I have many things going on and half the specialists kick me out after 5 minutes (expression not literally), dismiss me, dont look at my chart and/ or yell at me because "im not taking my health seriously" even though I cant take care of it properly because of a hole specialists. The other quarter want to help but dont know how and dont think its an issue and I get procedures or surgeries that help a small bit of the issues the rest want to help me know where to send me but send me to the other specialists above.

Im on a ton of meds and they dont help flares. Pt helps but I always feel so unprepared for flares. I have suspented h-eds (hsd) pots and mcas. My daily stuff im just exhausted after doing much and in pain after standing for very long. I dont feel like i have the energy to do much of anything before getting knocked down again. Im not looking for some miracle cure and understand that many comorbidities is tricky but what supplements have helped?

Ive been looking into hyaluronic acid collegen and lions mane. I just dont want to spend so much money on something that could simply be a fad or barely do anything.

Im waiting to see my specialists for this but thats another 3 weeks from now and im desperate to feel like i can at least get up some dishes and not be done for the day

Ive been in the planning stages of looking for a friend for my bun Cloud. My biggest worry is that she is so incredibly cranky and sassy. Im worried we'll get another bun and shes super violent and territorial.

She only territorial with us with her litter box. She'll spin around and snaps her teeth at us and almost snarls which is hilarious because shes so tiny. When people come over shes chill as long as they dont immediately try to pet her without her warming up to them. She doesnt seem to mind other pet smells as long as its not on our hands or she gets angry jealous and stomps her feet.

But im worried itll be worse for another bun. Im also worried that im lucky with her and she has never had any issues other than an eye infection once ever a year ago and we get another bun and theyre really prone to health issues. Our financial situation has changed a lot since we got our first bun but we also know itd be better for her to have a friend.

Im also worried that they will never be bonded and have to be separated permanently which we do not have the space for permanently.

Just for context she was a rescue so she took a long time to get used to us. We've had her for almost 2 years and she got spayed 9 months ago. Shes very sassy and if she doesnt feel like her boundaries are respected she will be quick to bite and how hard depends on the person if she doesnt know them she'll box them and kick them unless its her vet.

Im thinking what we could do is foster a bunny until they dont want to attack all the time and if its an immediately a bad match we could work on finding them a forever home. Im realizing this really feels selfish but I would hate for another bun to be brought home and theres not enough space

Ive been taking zepbound for 6 weeks. My last injection was Monday on my right thigh. I havent been doing exersizes but I have been forgetting to eat enough food and protein that last few days. I woke up and at first I thought I was having upper stomach pain into my belly button. But then I noticed my abdomen muscles are sore everytime I use them kinda like when you're sore from working out.

Ive also been having the typical gi symptoms but daily until mid last week. Is this normal?

I try to look into specialists before I schedule with them but honestly its extremely hard with some specialties. I completely forgot that I have had an endocrology referal for over 6 months and that I have a neurology referal since I had a seizure like episode during a pots flare. Only thing is how do I find one that deals with complex conditions? I got an mri of my head done we tested for seizures tested for them in my sleep too and the one referred me to the other one who said I dont have pots treated me like a silly child and said vitamin b will make it go away even though my le els are fine. First endocrologist gaslit me and convinced me testing was useless. Im at a loss. The eds website is okay but I cant really find anyone anytime I look

Ive had this issue for years thats slowly escalated. I have always had fine dry hair and scalp that gets oily relatively fast. Everything that tones down the oil (moisturizing shampoo) is far too heavy on my hair and visibly looks more oily and dry shampoo doesnt do much for that. I have a history of eczema but it doesnt feel like that it doesnt feel irritated. My mom has psoriasis but im not sure if its actually that because she doesnt really get seen by any specialists. I dont have any deficiencies with vitamins other than low ferritin which im trying to get better numbers with supplements for a couple years. I have had a lot of hair thinning for 10 years mainly in the Mohawk area before it was still fine hairs but a lot if hair.

It used to be some flakiness for years it stayed like that but the last 3 or so years the flakes will only be in patches and sometimes thicker but not scaly. The flakes look like white powder but when pushed together its a little oily/and sticks together.

Ive tried dandruff shampoos usually trying them for about a month then a couple week breaks inbetween. Tried exfoliating my scalp when my hair gets particularily oily i use a clarifying shampoo than a leave in conditioner(4-5 days w/o washing gross ik but its gets very itchy if i wash more than every few days) Found out after a full pannel with a dermallergist I found out im allergic to benzoyl peroxide and propolis (bee resin/glue) cut out hair products with propolis in it including derivatives. Rarely use heavy dry shampoos and hair products.

When I worked at a salon when they washed my hair they'd say that sometimes it looked angry and irritated. That was before cutting out propolis products. Then a few years later my friend (hairstylist) said that my scalp looks very dry and flaky and we try a hydrating shampoo and its usually the same as always.

Is there any reliable way to get Playstation chat on linux? I want to chat with my little brother while playing games but hes 14 and cant get discord and only plays Playstation