Hi guys. I’ve been experiencing a really deep depression. I don’t need sympathy, just distraction.
Can anyone recommend me a really dark and twisty book ? I’ve read quite a few, so comment your darkest recommendations. I’ll let you know if I have read them :)
Yes I have read Pretty Girls lol
Just found out on Tuesday my “psychosis with mania” was actually delirium caused by a rare stroke in my brainstem called a Wallenberg Stroke. I was 25 at the time, about a month before my 26th birthday.
I am 28 now and so pissed at the doctors in the hospital. I screamed and screamed for an MRI and they told me the only way they would do that is if I baker acted myself (psych hold in FL). They just kept me in the ward for 6 days and gave me a walker because I couldn’t move my left side.
Fuck that and fuck the medicine I’ve been pumped with. I went from like 150 to 210 (5’8 female) on olanzapine, my boyfriend of 4 years had broken up with me, I wasn’t allowed to see his daughter. Got put on like 5 meds.
I now suffer with an essential tremor, ataxia, over all clumsiness, sometimes can’t swallow or chew, sometimes can’t move my limbs voluntarily, and chronic migraines. The only good thing is I’ve lost all the weight and am back down to 147.
Now to present this documentation with my psychiatrist. Wish me luck !
For example, I’m way more sensitive towards animals. If I hear or see an animal get hurt in a movie like a Game of Thrones I have to close my eyes and cover my ears. If there is roadkill, i close my eyes. I can’t handle it. I don’t take jokes or sarcasm well anymore either. I can dish it out, but I definitely can’t take it. I WILL cry or get upset.
Just wondering if this has happened to anyone else or if it’s caused by something ? I (female) had a Wallenberg Stroke 3 years ago for reference. 25 at the time. The sensitivity started immediately.
Hi again. 28f. I used to be apart of this sub after I was diagnosed by a geneticist back in late 2018/2019, I can’t remember the year. However, I left the community because I felt like a fraud due to all the viral hEDS stuff going around on social media.
Last Tuesday, 7/28, I went to the EDS clinic at Mayo (I live 45 minutes away) just to reconfirm I had hEDS (like I said, I felt like a fraud). I was officially diagnosed again as hEDS. 9/9 on the Beighton Scale, if there were extra points, I would’ve gotten them lol.
I suspect I have had this since childhood, as I’ve been in excruciating pain since I was at least 6. I suffered a fracture in my right ankle when I was 6 that never got treatment. The bone broke off and when I got an xray recently at the hospital - the lady told me I had an extra bone in my ankle lol. But I knew that wasn’t true and that it was due to the fracture.
3 years ago, when I was 25, I suffered a Wallenberg Stroke, a rare stroke in your brainstem that is actually common in people with EDS or a connective tissue disorder in general. I didn’t know about this information until my Mayo appointment.
Bottom line, always advocate for yourself, even if it takes 22 years lol.
Just found out on Tuesday my “psychosis with mania” was actually delirium caused by a rare stroke in my brainstem called a Wallenberg Stroke. I was 25 at the time, about a month before my 26th birthday.
I am 28 now and so pissed at the doctors in the hospital. I screamed and screamed for an MRI and they told me the only way they would do that is if I baker acted myself (psych hold in FL). They just kept me in the ward for 6 days and gave me a walker because I couldn’t move my left side.
Fuck that and fuck the medicine I’ve been pumped with. I went from like 150 to 210 (5’8 female) on olanzapine, my boyfriend of 4 years had broken up with me, I wasn’t allowed to see his daughter. Got put on like 5 meds.
I now suffer with an essential tremor, ataxia, over all clumsiness, sometimes can’t swallow or chew, sometimes can’t move my limbs voluntarily, and chronic migraines. The only good thing is I’ve lost all the weight and am back down to 147.
Now to present this documentation with my psychiatrist. Wish me luck !
TW: Medical Trauma
Hi guys ! I have news. I am not bipolar. 1 or 2. I was wrongly diagnosed in the most traumatic way in 2023, and almost exactly 3 years later - I have received confirmation of this.
In 2023, on September 3rd, I woke with a migraine unlike anything i had ever experienced. I let it go because I have chronic migraines and figured it would go away in a day or 2. It did not. I started talking backwards, seeing stars move, couldn’t chew or swallow, lost temperature sensations so hard I almost touched a grill that was on just to feel if it was actually on. Eventually couldn’t move my left side voluntarily and I was in a lot of pain in my body (I also have chronic pain so I assumed this was a flare). The migraine did not stop.
Fast forward about a week later, by this point I can’t sleep because of the pain, I’m freaking out because I can’t recognize my family & I’m scared of my boyfriend. The catalyst was on September 9th. I had fallen asleep for about an hour, woke up and I couldn’t exhale. My body wouldn’t let me breathe. I couldn’t open my mouth to get air. Just like how my body wasn’t listening when I tried to move my left side, it wasn’t listening when I was telling it to let me breathe.
With my boyfriend by me, I somehow managed to call 911. He eventually pried my jaw open & I was able to breathe again. But when the ambulance came I was delirious & was afraid to let them touch me or go with them. A cop came & ended up taking me instead.
When I got the hospital I made it very clear I was here for my head and I needed “a picture of my brain”. I was yelling, screaming at the doctors to give me an MRI. They made me go through my symptoms and I knew I sounded crazy. It didn’t help that I also had a previous psych hold at that hospital.
The doctors kept coming in and out all the while I’m dying in pain, begging for imaging. They didn’t even take my vitals ! They eventually told me the only way to get imaging is if I voluntarily admitted myself on a psych hold. So I did.
I was held for 6 days. In those 6 days, I had to use a walker, couldn’t pick up a fork, was pumped with meds all the while I’m waiting for neurology to get back to me. Neuro gets back to me and tells me nothings wrong.
Well here I am now, 4 days after my Mayo Clinic appointment, diagnosed with a Wallenberg Stroke with delirium. Doctor looked at me dead in the face and said I’m not bipolar. It was so validating.
I will be bringing my medical records to my psychiatrist at my next appointment. Now if I can only get off these meds …
Hi, for the past 4 nights I have dreamt that I am dying. I am aware that I’m dying in these dreams and am saying my goodbyes, prepping for death. But, whenever I’m about to officially die, or saying goodbye to the one person that I love the most, I wake up panicked and in a cold sweat.
What could these mean ?
UPDATE: thank you guys for this info ! I’ve always been super curious about the difference or if they were a specific like species of shrimp or something lol.
I’ve lived in Orange park my whole life and ever since I can remember reading I have seen signs for effing Mayport shrimp on the side of the road. Are these type of shrimp rare or something ? Seriously what’s the deal I’m honestly just curious
Now, realistically I know this will probably bring me more pain. But in my head I’m like “maybe this will just fix my joints and they won’t hurt as much if they’re broken and then heal with proper treatment ?” I’m extremely hyper mobile, so all I have to do is go a little bit further than I normally can and then boom: broken.
Idk. I’m 28f, almost 29. I’ve had chronic pain in my ankles since I was 6 that has slowly spread up throughout my entire my body. My main pain areas are my wrists, ankles, elbows, shoulders, neck, and fingers/toes. I’m currently seeing a Rheumatologist, but after my 4th appointment with abnormal labs he still doesn’t know what’s wrong me. He has expressed that based off my labs, my joints should be swollen and I should barely be able to walk but guess what !! I LOOK FINE !!! Luckily, he’s concerned and not completely blowing me off because of the way I look and believes that there IS something going on. He just can’t figure it out.
I’m in the process of transferring medical records to Mayo Clinic so that they can kinda take over from here.
It’s been 22 almost 23 years of this. I’m just so tired of being in pain.
My boyfriend got me this necklace. It’s 2.0 carat lab grown diamond and it’s beautiful. He thought it was a white gold setting/charm (idk what to call it), but it doesn’t look like it is since the back is quite obviously turning and even in the front a little. I’m wondering if, based on the pictures, you guys think that it might be possible to get the diamond set into something different. What do you think I should do ?
My life this past week has been nothing short of being worth of that of something straight out of Lifetime Movie Network. I swear to god I sound crazy or someone’s playing tricks on me.
For background info: my boyfriend (Let’s call him mark) has his texts set up to where you can see them on his computer screen. So when I go in his office, I can see them.
About a month ago, I saw a thread from one, “Shawn” could’ve been “Shawna” idk. I didnt open it. I skimmed the message. All I remember is something about “watching episodes “. I didn’t say anything to mark. I get scared to say anything like this because I don’t want to seem like I’m prying, but I didn’t recognize this as a normal friend that mark had ever talked about. So I never said anything.
Last Tuesday, mark and I were going to a concert. Mark has full length mirror in his office so I went in there to check my outfit. The messages were pulled up. He had one from Shawn/shawna? (I’m sorry, I take a lot of sedatives and memory is fuzzy), this time talking about UPS parcels and being stressed. I wanted to ask him about it when we got in the car, but he was already aggravated and it wasn’t a good time.
Well, for some reason I couldn’t hold it in and brought it up this week. He had no evidence of what I’m talking about. Has no just “Shawn”’s or “Shawna”’s in his contacts. But his texts/contacts are connected to his computer. He apparently has no text threads from a “Shawn”. So he just keeps saying he had no idea what I’m taking about and that it’s my fault for bringing it up a week later instead of in the moment.
Guys, I know what I saw. I know what I saw I know what I saw I know what I saw. Am I being punked ?
Hi all! I’m attending the Turnover show at colonial oaks park tonight and wanted to know what’s it’s like. Parking ? Pay for parking ? Where DO we park ? Full bar ? Thanks ?
28f. I have had chronic pain in my ankles ever since I was 6 that has slowly spread throughout my entire body. In 2018 I was diagnosed with fribro by rheum. In 2019 I was diagnosed with hEDS by a geneticist.
My current rheum cannot figure out what’s wrong with me. He does think I have fibromyalgia or hEDS. He has done a lab called a 14.3.3 ETA Protein where my levels have been consistent in the 3.5-3.6 range (significantly elevated). He has repeated the lab thinking it was an error at least twice because of the way I look, which is completely fine. He believes I’m in pain, has offered solutions (many medications in which I have already tried and failed or have had major reactions too).
He now has me at a 3 month follow up with more labs I have to get done, including ANOTHER 14.3.3 ETA Protein. Where is this going ? The last appointment I asked if he was working towards a diagnoses (3rd appointment with him at that point) and he basically said yes and no. Ugh. Need support.
Currently trying to read Dear Debbie by Freida. It’s not that the book hadn’t grabbed my attention. I started topamax about a month ago for my essential tremor and had to increase to 400mg. It turned me into a zombie when I started taking it. All I could do is sleep and listen to Dateline lol. Not even watch it, just roll over and listen. I had started reading Dear Debbie during the process, but only made it to page 14. The book grabbed my attention, I just didn’t have the energy to keep going. How do I find the energy again ? I’m feeling better, still a little bit tired but feeling a little bit more motivated. Help me find the energy to push forward !! I was reading 3 books a month !!
Currently trying to read Dear Debbie by Freida. It’s not that the book hadn’t grabbed my attention. I started topamax about a month ago for my essential tremor and had to increase to 400mg. It turned me into a zombie when I started taking it. All I could do is sleep and listen to Dateline lol. Not even watch it, just roll over and listen. I had started reading Dear Debbie during the process, but only made it to page 14. The book grabbed my attention, I just didn’t have the energy to keep going. How do I find the energy again ? I’m feeling better, still a little bit tired but feeling a little bit more motivated. Help me find the energy to push forward !! I was reading 3 books a month !!
It’s not that the book hadn’t grabbed my attention. I started topamax about a month ago for my essential tremor and had to increase to 400mg. It turned me into a zombie when I started taking it. All I could do is sleep and listen to Dateline lol. Not even watch it, just roll over and listen. I had started reading Dear Debbie during the process, but only made it to page 14. The book grabbed my attention, I just didn’t have the energy. How do I find the energy again ? I’m feeling better, still a little bit tired but feeling a little bit more motivated. Help me find the energy to push forward !! I was reading 3 books a month !!
Yesterday, I texted my mother happy Mother’s Day and that I loved her the usual and that I wanted to make plans to come see her. I told her I would be out (my boyfriend and I were having lunch with his mom), but that I could come over after. She told me she was fighting a migraine but could I come over later. I told her that was fine.
Here’s where it gets weird. 4 minutes later, she texts me that my brother and sister and law just got there and that I could come over now. So I thought that was a little odd. Told her I couldn’t come over now because I was having lunch but that I would be over later.
We get to the house and there’s a whole spread of crab legs and sides and I’m like overwhelmed. Everyone’s all dressed up. It looked planned. That didn’t dawn on me until after I left. I feel dumb for showing up.
What the fuck ? Was I not invited ?