r/hivaids

Vcs que vivem com hiv a mais tempo, a Bad passa?

Edit: this is a venting post made by someone who just found this information out and is ALLOWED TO FUCKING GRIEVE. DO NOT RESPOND TO MY POST IF YOURE GOING TO CALL ME A DRAMA QUEEN OR CALL ME NAMES OR TELL ME IT ISNT THAT BIG OF A DEAL. I AM ALLOWED TO FEEL INTESNSE EMOTIONS ABOUT THIS. IT'S A BIG DEAL.

I hope this reads well because it was done mostly with speech to text .

I was at the doctor the day before yesterday because I had really dark brown urine. I mean, that wasn't the reason for going. It was just to follow up on my medicine. But like, I told them about it, and it was concerning enough to me and to them that like, we should do some tests. So they did blood work. And, you know, I told them to do an STD test while they were at it because I have a problem with needles, and the last time I was gonna get an STD test was like seven months ago, and I pussied out on it because I'm afraid of needles. So it's been, you know. Well, anyway, I was also trying to get my medicine refilled that day, and they sent it to the wrong pharmacy. So I was dealing with that, and it was fucking bullshit.

And I was waiting on a call from my doctor's office. And finally, at like 4:50, I got a call from UT Health. And I was like, fucking finally, you know, my medicine is getting sent over to the pharmacy, finally. And then it was my doctor on the phone. And as soon as I heard my doctor on the phone, instead of a secretary or a nurse, I was like, something is wrong. But, you know, even still, you don't assume the worst. Like maybe I have herpes or something, I don't know. But he just sounded so fucking morose. He just sounded so, hesitant to even say what was going on, and like asking me if,l I was okay before he said it, and all this shit. And I finally told him, I was just like, you need to just spit it the fuck out because you're making me more anxious. But I already knew what he was gonna say, just based on the tone and everything. I'm not a stupid person. I already knew he was gonna tell me that I have HIV. And I was right, because I have HIV. I have HIV. Oh my God. I'm only 27 years old, man. I just... Dude, I, like, I still haven't even remotely found, like, whatever it's gonna take inside of me to get the fuck up and actually work on the things that I love and care about that I'm so held back from because of, I don't know, any number of reasons, either insecurity or ADHD or both, just preventing me from doing anything I actually love and want to do. And now I have a fucking, you know, chronic illness for the rest of my life. I'm gonna have to be on medicine for the rest of my life, every single day, for the rest of my life. I'm gonna have to take medicines that prevents this fucking virus from destroying my autoimmune system and allowing anything and everything to kill me.

And like, whether it's amazing that we have these medicines or not, doesn't really matter to me, man, because like, I have to take this medicine if I can even fucking figure out how to get it and afford it, every single fucking day for the rest of my life. And if I fuck up and I don't take it or whatever, you know, like it's like I'm a ticking time bomb that has just something, you know, barely preventing it from going off. Like you have to reset the timer on the time bomb every day with these pills. And one of the worst parts is that I don't know if Steven, my most recent sexual partner, gave me HIV, or if I gave him HIV. Because if he didn't give it to me, then that means that I've had it for a while. Because the last time I was tested was like five years ago, and I've had sex three times in the last five years. And if I have had it for a while, then that means that I just gave it to Steven. But then if I haven't had it for a while, then that means that he just gave it to me. And he's the only one out of any sexual partner I've had recently who I have actually any way to get into contact with. Because I'm still fucking him. Or, at least, I was until I got this news.

I wish people would stop trying to tell me everything will be okay or tell me there are treatments. I fucking know. But now that is my life... treatment and medicine... Forever.

I called Steven and told him, "I don't know if you were lying to me when you said you were clean, Steven, but if you were telling me the truth, you need to get tested because I just tested positive for HIV." He sounded like he was going to have a heart attack, he said he couldn't breathe and he hung up the phone.

I think I fucking gave him HIV. Oh my God dude I fucking gave him HIV.

I'm at work now and I am having a fucking mental breakdown, I hate this so much and I fucking hate myself and this disgusting fucking disease

After so many years of loosing these two people, I have constantly cried my eyes out for year, I just want to ask a few questions. Maybe I can find some healing and peace.

I lost someone around 2004, this person died when their baby was 2-3years old. The family didn't know the person had hiv until they got sick, diagnosed and died within weeks. This tells me the person wasn't taking medications. Is it possible to die or hiv within 2years?

Then 2012 in my presence someone was diagnosed on hiv, I was a little young to even read the diagnosis, the doctor didn't explain. She just directed us to the pharmacy to get the medications she wrote and since the person was too sick to go to the pharmacy, I went there and got it (the looks I got, hmmm I'll never forget). Then 2013 this person got sick again for the third time, the person experienced night sweats, blood shortage (twice), will feel severe stomach pains at night but will feel semi better and sleepy during the day.

Now I know this person tested negative around 2011 when they did their test. All of a sudden they tested positive in 2012 and died in 2013.

My question is, could it be that the person already had hiv before 2012? Is it possible to be diagnosed of HIV in 2012 and die in 2013?.

My heart hurts so bad, why does bad things happen to good people? I can't keep count of the people I have lost to hiv, I live with the pains and regrets of losing them.

Do people sell their Biktarvy?

Hello everyone. I’ve been talking to this guy for quite some time. Our compatibility with each other is undeniable, and I believe this is something that would last. However, I must eventually tell him about my HIV+ status (yes, I’m undetectable). So far, we have only spoken to each other online & through phone calls, and we plan on meeting each other soon. How do I break the news? I’m so scared that I’ll mess this up, that I’ll ruin something beautiful, just because of my status. I wish he would understand that all it means is that I have to eat a pill a day, and other than that, I live a very normal life. I’m worried on so many different levels though. What if he subconsciously fears being intimate with me in the future? I really need advice from people who have been through similar situations. I really don’t know where to start with the disclosure. Do I just break the news immediately? Or do I provide context first, before breaking the news? Any advice would be very much appreciated 🥹

Do people sell their meds?

I have been on ART for almost 2 years now. I want to know if my kidney function will mess up in the future what will be the course of action then. Till now it's fine.

Hello everyone, I’m currently going through one of the biggest shocks of my life, and in the midst of all this uncertainty, I really need to vent and hear from anyone who might have gone through something similar.

I recently had a routine blood test done and I had absolutely no reason to suspect HIV and didn't even specifically ask for it to be tested. However, the initial screen came back positive for HIV-1. My doctor immediately ordered a PCR test for confirmation.

I am honestly completely devastated because this is something I never, ever expected or thought was even possible. I’ve been in a long-term, monogamous relationship. For my partner, I am their first relationship. As for me, I had a few one-night stands about 5 years ago, but I’ve never experienced a single symptom, and my routine blood work has always been perfectly normal (though, to be fair, I had never been specifically tested for HIV until now).

Right now, my mind is just looping on one question: "How is this even possible?" I'm trying to understand how common false positives are in initial screening tests and how this whole lab verification process actually works. Has anyone here gone through a similar experience where the first test was positive but the confirmatory test came back negative?

or never experienced single symptoms before and still diagnosed?

Thank you so much in advance for your support

EDIT: I was also diagnosed with Lyme Disease at the same time (was strongly positive), and was thinking the possibility of false positive.

Is there a sub or website for poz dating ? Do people sell their rx?

Just wanted to ask if anyone else has been having similar issue on Biktarvy. My VL is undetectable. CD4 is in 500s. I’ve been on meds for 6 month and my lipid profile keeps getting worse. My Triglycerides have come back 990. Anyone else had similar issues?

Hi everyone, posting because this is causing me anxiety and while I try a lot to suppress getting in my head about being pos, it happens. I’ve been diagnosed almost two years, and probably caught it after a year of infection. Since starting ART I’ve been consistently <30 viral load, suddenly with no change, no recordable illnesses besides a throat infection(wasn’t even notable but all I can think of) and barely any missed doses, my viral load has spiked to 550 and my cd4 is back at 500 from about 600+ a year ago. I’ve honestly rarely been getting sick vs when I was first diagnosed which is how I know it’s working but very worried I’m developing a resistance. I just really want to have this out of my mind it’s truly bad enough as is…. I’m worried I may not even get the luck of just taking one pill and forgetting about it:(

Has anyone developed a resistance? How did it happen/how did you know.

Hey all. Just got diagnosed today. Feeling super blessed to have apparently caught it early as my viral load before starting ART is 23 copies/mL and my CD4 count is 924. I’ve been handling it pretty well but one intrusive thought struck me- what if even after the genotype testing there isn’t an effective ART for me? I realize that this is statistically unlikely, but it’s what scares me the most. I have a lot of reading to do but thought I’d start here by asking y’all if you’ve ever ran into this issue or know of anyone who has? I plan to take my medication religiously as soon as it arrives but I realize there is a chance it might not work as intended.

I would also like to hear how your pills have worked for y’all in general. What were the side effects, things you noticed, etc. I’m starting with Biktarvy but that could change once my further test results are in. Thank you all in advance.

 1.      Call to Action Against the Proposal to Rewrite Rules on Federal Health Grants https://www.poz.com/article/call-action-proposal-rewrite-rules-federal-health-grants

 

 

 

 

2.      HIV in 2026: Four Experts on Aging, Testing, Equity, and Prevention's Next Era https://www.contagionlive.com/view/hiv-2026-four-experts-aging-testing-equity-prevention

 

 

 

 

3.      Researchers Develop an HIV-Prevention Guide Without the Stigma of Asking About Risk https://sph.rutgers.edu/news/researchers-develop-hiv-prevention-guide-without-stigma-asking-about-risk

 

 

 

 

4.      Cause of Death of Actress Daveigh Chase, 35, Revealed to Be AIDS https://www.poz.com/article/cause-death-actress-daveigh-chase-35-revealed-aids

 

 

 

 

5.      Medical Frailty and Medicaid Work Requirements: Challenges for People with HIV https://www.kff.org/medicaid/medical-frailty-and-medicaid-work-requirements-challenges-for-people-with-hiv/

 

 

 

 

6.      Lenacapavir and the Future of HIV Prevention: PURPOSE Trials, Long-Acting PrEP, and What Comes Next https://www.contagionlive.com/view/lenacapavir-hiv-prevention-purpose-trials-long-acting-prep

 

 

 

 

7.      Hefty New Study Takes on Weight Conundrum in HIV Care—and Its Answers Are Complicated https://www.thebodypro.com/hiv/weight-gain-antiretrovirals-insti-july-2026

 

 

 

 

8.      HIV Can Convert T Cells From Helpers to Killers https://www.poz.com/article/hiv-can-transform-t-cells-helpers-killers

 

 

 

 

9.      The Evolution of DoxyPEP https://www.thebodypro.com/video/hiv/doxypep-overview-update-2026

 

 

 

 

10. 2026 HIV Drug Chart https://www.poz.com/article/2026-hiv-drug-chart

11. HIV dramatically increases the risk of HPV-related anal cancer, data show https://www.cidrap.umn.edu/hivaids/hiv-dramatically-increases-risk-hpv-related-anal-cancer-data-show

12. Inside the Hotline Helping Clinicians Navigate Complex HIV Care https://www.thebodypro.com/hiv/nccc-hiv-clinician-hotline-lealah-pollock-2026

13. Switching HIV Treatment https://www.poz.com/article/switching-hiv-treatment-new-medication

14. Spanish study finds similarly low rate of new cancers after liver transplantation in people with and without HIV https://mailchi.mp/catie/spanish-study-finds-similarly-low-rate-of-new-cancers-after-liver-transplantation-in-people-with-and-without-hiv?e=d7d7c4df82

15. Does Timing of Immunotherapy Really Matter? https://www.poz.com/article/timing-immunotherapy-really-matter

16. Beyond the Daily Pill: Long-Acting Antiretrovirals For HIV Treatment and Prevention https://www.idse.net/ARTclass/Article/06-26/HIV-Treatment-Long-Acting-Antiretrovirals-Prevention/80954

17. Single-Tablet BIC/LEN Noninferior to BIC/FTC/TAF in Suppressed HIV https://www.infectiousdiseaseadvisor.com/news/single-tablet-bic-len-noninferior-to-bic-ftc-taf-in-suppressed-hiv/

 

I’m not sure if this follows the rules and I’m sorry if it doesn’t but this guy that I’m interested in HIV and I have herpes we met off of the positive dating app and I’m wanting to know kind of the basics and what you guys go through and how I could also protect myself. I’ve already updated him on my side about the herpes, but I’m kind of uneducated about HIV and really wanna know the real, not just what Google will tell me thank you in advance.!

How long does it take for prep to be effective?

I was drunk and messed around with a guy I barely knew which I never do so I’ve been freaking out.
Exposure: he had a sore on his knuckle, looked like he punched a wall or something. From what I remember it wasn’t bleeding but it was red as though there could be slight bloodiness at the surface. He used that same hand to f*inger me for like one minute. It could have 100% touched my inner labia, etc.
That’s all we did.
Am I overreacting?

I feel really stupid for waiting until my insurance expired to do something about it. Now I don’t have insurance, which previously covered the full cost of Biktarvy. The insurance policies I am applying for won’t take effect until August and I only have 9 pills left starting today. I haven’t felt this helpless since I was diagnosed in 2023, and even then I felt the security of having a good health insurance policy to cover me.

I just feel so dumb for not doing my due diligence to make sure I still have medicine. And now I feel stressed out. I live in California and my mom is a nurse, so she pointed me in the right direction. I told her I needed a specialty medication and now she asked what kind. I never told anyone in my family about my diagnosis, and the friends I did tell offered me solace at the time, but I didn’t make it my personality (who would).

Today I had a moment where I felt alone, helpless, and defeated. I never cried when I got diagnosed, but today I did. I’m reaching out to a few drug assistance programs through my state and the drug manufacturer in order to get my prescription.

I know I’m not alone and the likelihood of having an interruption in medication that would affect my HIV status is slim, but I can’t stand feeling like there’s a chance nothing will be alright.

Has anyone else ever been in this situation?

Hello everyone,

I am undetectable for years now. I had a sex with girl without condom. Is there any harm in that? I mean what if we exposed to hiv again? Or something else.

I never thought I needed to be on prep cause i literally rarely even have sex. I have a single 1 night stand and it ends up ruining my life. I feel like its ruined my life now i cant even quit my job if i want to or travel i always have to have my insurance active and i also get rejected almost immediately. I told one guy and he ended up telling everyone now people avoid me like I’m contagious. It makes me regret being gay too. I feel like the rest of my life will be nsa hookups and people laughing and being disgusted with me behind my back. I want to feel normal but i feel dirty. My youth has been stolen from me.

I don’t even trust u=u at all. I see all the comments online of healthy people wanting us quarantined and jailed regardless of that status or not. All the pro hiv rhetoric just feels like cope to get us to not wanna off ourselves. I dont want to be defective at all