r/hivaids

What can HIV elite controllers teach us about a cure for AIDS?
▲ 14 r/hivaids

What can HIV elite controllers teach us about a cure for AIDS?

Diagnosed HIV positive in 1986 and told he might not live to see 30, one man has now spent more than 40 years undetectable without ART as one of the world’s longest documented HIV elite controllers.

“A Moment That Changed Me” in The Guardian explores survival, stigma, survivor's guilt, and participation in HIV cure research.

A very interesting read:
https://www.theguardian.com/lifeandstyle/2026/may/20/a-moment-that-changed-me-hiv-diagnosis-survived-40-years

u/bodles9 — 21 hours ago

Weird symptoms

I started Bik about two weeks ago and was feeling fine until about two days ago. I started feeling some chest pain whenever I got my heart pumping or when I breathe too deeply. Today at work I even went on my usual walk after eating and the discomfort was so nauseating I threw up my entire meal I had just eaten. Do you guys think this could be a side effect even though I didn’t feel anything before.

reddit.com
u/Un1c0rnSC — 1 day ago

Injectables?

hey all! i was diagnosed back in february of this year and became undetectable in april. my doctor when i was first diagnosed mentioned all of the options for medications. i’ve been in biktarvy ever since i was diagnosed. i have been thinking and talking to my mom about making the switch to the injectable options. i was told i can go in to the clinic to get them done or be at home doing them myself. has anyone made the switch to the injectables? how have they worked for everyone who was on the pills? any side effects that are significant compared to biktarvys?

reddit.com
u/FinalArmy7895 — 1 day ago
▲ 21 r/hivaids

2026 AIDSwalk NYC

I (30F, poz 3.5 years) raised $1,000 for the NY AIDSwalk this year, doubling last year’s goal.

Last year was my first year attending. I went alone and cried while walking alone, somehow I felt so isolated with a group of people that supported me.

This year my best friend and my boyfriend walked alongside me. It was fun, encouraging, inspiring. The total raised was over $1.7M, I’m just happy to have been involved.

In case you’re in NY and want to get involved, it’s organized by GMHC. 🙂

reddit.com
u/xoQueenieox — 1 day ago

Odd question.

My best friend/ex/roommate has started feeding our pups raw food. I read this is highly not recommended in my case due to probable bacteria exposure. Anyone have any info on this? Thanks!

reddit.com
u/GoofyFoot76 — 1 day ago

Update on Syphilis treatment

So my first dose of syphilis treatment is done after taking 3 injections each last three weeks. I will be again tested after 3 months to check the titre, but I'll be moving to another city by then for my studies. So there's a lot of planning that needs to be done before the move like how I'll transfer my information to the new art centre over there, how will I get access to the meds and most importantly how will I hide my treatment and meds and paperwork from my parents until it's sorted. I guess time will tell. But for now I feel okay. The meds haven't affected anything in my life except making me remember that I have HIV.

reddit.com
u/HomeOk5082 — 1 day ago
▲ 58 r/hivaids

Milestone

Long story short, I (64 yo) now have been positive longer than I haven't been. 32 years ago today, I got my diagnosis. What an odd marker, right?

reddit.com
u/rbinphx — 2 days ago

New diagnosis (33. Bi M. Texas)

Just found out my diagnosis a few weeks ago.

Hoping to make new connections, friends, maybe even love in this community

reddit.com
u/ClassMission3530 — 2 days ago
▲ 0 r/hivaids+1 crossposts

Did Robert Kardashian Sr have AIDS?

I know everyone says he was diagnosed with esophageal cancer and died a few months later, but is that true? Khloe has said she didn’t talk to him in those few months, but that doesn’t make sense if she thought he had cancer, it makes way more sense if she found out he had AIDS. Has anyone sleuthed this bc the timeline and time frame fits… and idk just random little coincidences and things make me think cancer was a cover story bc of his traditional religious parents/family and the stigmatization of AIDS especially at that time.

Couldn’t post in literally any KUWTK community bc mods don’t allow open discussion unless they deem the topic worthy or inoffensive. I’m genuinely curious about this and it’s a fair question bc they constantly talk about the trauma of his quick passing, so are they lying?

reddit.com
u/youredoingitpeterr — 2 days ago

Do any Poz people wanna connect on Instagram?

I'm M21 and Bisexual, anyone wanna connect as friends? Been recently diagnosed (a month ago). You can dm me if you want to.

reddit.com
u/Devildoingsins — 1 day ago

How much stronger is ART vs Prep?

My understanding is prep contains 2meds and ART contains 3. Can someone use truvada plus one more med as treatment?

reddit.com
u/Kruten10 — 2 days ago
▲ 13 r/hivaids

Newly single and wondering how to tell someone/if I have to

I got out of a relationship not too long ago but one I had been tuned out of for a while. I’m currently talking to someone new and debating if I actually need to have that convo especially because I’m undetectable and have been for years. I also need to use condoms since I’m not on birth control. I know honesty is better but if there’s no harm or chance of transmission do I need to tell if I just want to have a good time? The chances of me actually dating this guy down the road are like 10%.

reddit.com
u/AsleepTailor — 3 days ago

Taffic from IndiaMart or Universal Drugstore

As the title says. I live in the USA and am trying to get at least 3 months worth of generic Biktarvy, Taffic. I've only seen a few posts on here where people say they got their medication from IndiaMart. Could anyone let me know if they've had recent success? I saw one person say their order from IndiaMart got flagged at their post office and sent back to customs, but they were buying a whole years worth. If I buy just 3 months worth would I have the same issue? Or would I have better luck at ordering it from UDS, since that is coming from Canada? Any insight on this would be appreciated.

reddit.com
u/Potential_Sugar_6744 — 3 days ago

Writing historical fiction about the AIDS crisis. Looking for firsthand experiences (early 90s, informal caregiving networks)

Hi everyone. My name is David. I'm writing a novel set in rural Massachusetts in the early 1990s. The central character is a retired nurse who runs an informal, clandestine hospice out of her own home for friends and acquaintances dying of AIDS — people who had been abandoned by their families and by the formal medical system. Her neighbors know and keep silent.

I want to get this right. I'm not looking for statistics or history articles. I'm looking for what you saw, heard, and felt.

If you were there as a patient, a caregiver, a friend, a bystander, I'd be grateful for anything you're willing to share. Even something brief.

Some specific questions, answer whichever feel right:

On the body, late stage

  • What did you first notice, physically, in someone arriving at end stage? Face, body, voice?
  • What did breathing sound like in someone's final days?
  • Were there particular smells you remember?
  • What did advanced oral candidiasis or Kaposi's sarcoma look like to someone who had never seen it before?

On abandonment and informal care

  • On people, whose families refused to take them in or even visit, how did those people end up finding care outside the formal system?
  • Were there informal networks ...private homes, retired nurses, neighbors ? operating outside hospitals or official hospices? How did they work? How was the secrecy managed in small or close-knit communities?

On what happened when someone died outside the formal system

  • How were deaths handled when someone died at home, informally, outside of official medical oversight?

On nurses specifically

  • Did you know any nurse who went well beyond what her job required? I'm interested in how she moved, how she spoke, what she did that others didn't.
  • If you remember a specific nurse, what stays with you about her?
  • How did they change, after seeing so much death and not just physical death, but moral death. Watching so many families deny their own children. Did that leave a mark on the nurses you knew? What did that look like?

On the feasibility of my premise

  • In my novel, a retired nurse runs an informal hospice inside her own home, in a small conservative religious community in early-90s Massachusetts.

On children

  • Did anyone ever have to explain what was happening to a child a neighbor's kid, a nephew, a younger sibling? What did they say? What did they leave out?

Thank you so much. I'm trying to write this as close to reality as possible, and to do it in the most respectful way I can , honoring the lives of everyone involved, the ones who cared and the ones who were cared for.

reddit.com
u/NextFix9333 — 3 days ago
▲ 20 r/hivaids

Being arab and having this is so hard

As fellow arab hiv positive still in ur original country, what do you suggest to ease the pain?

reddit.com
u/Final-Skill9751 — 4 days ago

Stigma between genders

From what I’ve noticed as a bi guy on HIV dating apps is that women usually don’t have face pictures and the profiles are usually bare to say the least. Whereas with guys profiles are a lot more detailed! It’s really a general discussion and maybe because I’m a man I haven’t noticed it, but is HIV more stigmatized in society amongst women than men? Like in society is it worse for women with hiv? I mean no harm by this just genuinely asking because on apps women seem a lot more reluctant to share details about themselves, where as with guys everyone is pretty much an open book! Like are women scared to come forward their status and put their faces out there?

reddit.com
u/Large_Pair_2509 — 4 days ago
▲ 14 r/hivaids

Are You Living with HIV and Currently Receiving Treatment?

We are looking to speak with individuals in the United States, United Kingdom, and Germany who are currently receiving treatment for HIV to better understand real-life experiences with managing the condition and treatment journeys. M3 Global Research is interested in hearing your opinions and insights to help improve future treatments and patient care. This study consists of a 35-minute online survey, and participants who successfully complete the survey will receive compensation as a thank-you for their time. See if you qualify here: http://m3gr.io/VVYDDCL

reddit.com
u/M3GlobalResearch — 4 days ago

Nômade com HIV

Alguêm que seja nômade e consiga os retros percorrendo o país, no SUS,independente de que estado do país esteja? Se sim,como se faz? Teve de fazer cadastro novo toda vez que esta numa cidade diferente,pra receber? ? Somos casal do Brasim, carga indetectavel e usando o " frasco unico" , pelo SUS / RJ. Temos o desejo de passar um tempo viajando pelo pais, tipo dois meses em cada estao ou cidade diferentra. Recebenos no Rio, retros ,mas para dois meses ,apenas.

reddit.com
u/Ok-Belt-1656 — 4 days ago

STD test came up Abnormal for HIV and HSV1

Im lost,I Been texting STD Hotline with no replies.

I recently took an STI test after feeling discomfort with swollen tonsils.

Results shows Abnormal for HSV1 and HIV.

I suspect I contracted it about 2 months ago,i’m afraid I’ve contagied someone I really like a month or so.

How do I go about seeking a local STI specialist in order to know my viral load and ART treatment.

I’m currently unemployed with no health insurance.

reddit.com
u/ksct7 — 6 days ago
▲ 24 r/hivaids+1 crossposts

HIV News. Week of May 15, 2026

1.      Can a single infusion of immune cells suppress HIV for years? https://www.advocate.com/health/breakthrough-for-possible-hiv-cure

 

 

 

 

2.      New Wellness Center Provides Crucial HIV and STI Services in Long Beach https://www.aidshealth.org/2026/05/new-wellness-center-provides-crucial-hiv-and-sti-services-in-long-beach/

 

 

 

 

3.      Higher STI Prevalence Linked to HIV PrEP Use in MSM https://www.infectiousdiseaseadvisor.com/news/msm-sti-risk-prep-use/

 

 

 

 

4.      DoxyPEP Effectiveness Against Gonorrhea Is Declining https://www.poz.com/article/doxypep-effectiveness-against-gonorrhea-declining

 

 

 

 

5.      Transgender health in Australia: HIV drops by 94% as PrEP increases over 10 years https://i-base.info/htb/53800

 

 

 

 

6.      Limited drug resistance after doxyPEP but inequitable access: uptake of 4CMenB vaccine https://i-base.info/htb/53891

 

 

 

 

7.      Healthcare Insurer Questioned on Diverting HIV, Hepatitis Copay Assistance https://www.poz.com/article/healthcare-insurer-questioned-diverting-hiv-hepatitis-copay-assistance

 

 

 

 

8.      Why claim HIV is 'now curable' misrepresents research https://www.snopes.com/fact-check/hiv-curable-research/

 

 

 

 

9.      British Columbia study underscores the importance of the shingles vaccine for people with HIV https://www.catie.ca/catie-news/british-columbia-study-underscores-the-importance-of-the-shingles-vaccine-for-people

 

 

 

 

  1. Indiana Ends Statewide HIV, Hepatitis C Program Following Federal Funding Cuts https://www.poz.com/article/indiana-ends-statewide-hiv-hepatitis-c-program-following-federal-funding-cuts

  2. Bangor public health director reflects on conditions that escalated Maine HIV outbreak https://apnews.com/article/bangor-hiv-outbreak-homelessness-drug-use-98f92a3cddee641bd0bb4de039863ac8

  3. HIV and Infant Feeding: What U.S. Providers Need to Know, From Guidelines to Practice https://www.thebodypro.com/hiv/infant-feeding-primer-hiv-clinical-care

u/HI5news — 6 days ago