u/Acrobatic_Block4226

Did my partner's assessment end of April, What's everyone's current wait time for the report and outcome been?

I love all things medical, psychology, etc. non fiction only. Recommendations welcome! I love things like doctors accounts of their careers, medical anomalies, dean Burnett books, anything really

NOT ASKING FOR DIAGNOSIS.. OBVIOUSLT

Asked GP for an ANA for partner (UK). Only test result says this:

CTD SCREEN (BIOFLASH) (HHFT): 5.5 cu

I assume it's meant to be a titre and pattern so not sure what these units mean and Google can't help. Any clue? Is this not an ANA?

Asked GP for an ANA for partner (UK). Only test result says this:

CTD SCREEN (BIOFLASH) (HHFT): 5.5 cu

With a range of 0-16.9 being normal

Google is no help at all. Can't work out what this means. Not the standard titre and pattern. Ant clues?

My partner fits all the criteria I feel. I'm curious how others found out they have this and their symptoms and life experiences? I would love to understand it more. Especially experiences of muscle weakness and how severe this tends to be?

Ask me anything

Anyone else have hypertrophic scarring with hEDS? Got what looks like a bit at the bottom of an ankle surgery scar. Doesn't bother me but was curious if that's common

Does anyone take modafinil?

Has anyone managed to be prescribed modafinil off label in the UK? Had a negative sleep study and trying to find any way of trying this medication. They claimed it is prescribe off label for ADHD and EDS.

I am disabled by chronic fatigue (not CFS/ME) which appears to be deemed down to ADHD, Ehlers Danlos, dysautonomia etc. This medication might change by life but sleep clinic won't prescribe as they said I don't have any sleep disorders