u/Thy_Water_BottIe

I can’t figure out for the life of me what’s going on. For context I also have POTS and none of my standard pots remedies are working. I did recently have surgery and already was diagnosed with iron deficiency.

But I have been waking up every single day with a lot of adrenaline/panic without actually being worried about anything. It feels like my blood isn’t flowing almost. I’ve also been having horrible restless legs and headaches. And when I stand my HR will spike 30-40 beats and I’m so lightheaded. I can’t fall asleep easily due to the restlessness legs and I wake up horrible. I feel so miserable

Hi I am helping my boyfriend study for the apprenticeship test. He has previously taken it and I had made a study guide based on all the pre tests and study material I could find online.
He took it and apparently said none of it was on the test.

I had gone over basic algebra with him, factoring, graphing, and word problems.
We even took practice tests online.
He said on the test the only thing he can remember was problems with letters and not numbers.

So I’m just trying to get insight of what might be on the test in San Antonio so I can help him study.

Thanks.

Has anyone delt with them or their child not able to have an EEG due to severe panic and sensory issues not allowing them to catch nocturnal seizures on an EEG. In that situation what would a neurologist do?

I love ocean vibes/siren/mermaid
I’m more into blues and purples and bioluminescence. If anyone has any recommendations on what to buy plz lmk!
This is for my PC and desk setup. Walls included

I have me/cfs POTS MCAS hEDS like the whole trifecta. Recently I’ve been waking up with a lot of adrenaline making me feel very panicky. I checked my HR and blood pressure and both were normal. When this happens I usually feel like my blood flow is off like I feel like my blood is pooling downwards and someone is squeezing my heart. It’s a very uncomfortable feeling in my chest.

Everyone who talks about adrenaline dumps mentions their HR being high but mine is completely normal.

Has anyone experienced this/ know of anything that will help.

I’ve tried increasing my fluid intake the day before and also wearing compression bands.

I’ve had Cdiff in April and now again in July. Both times I’ve been given 10 days of dificid. I’m really worried and in a lot of pain. I want to be rid of Cdiff. My gastro said no to a tapered dose. Is this the standard?

My doctor has prescribed me both at some point. Have you guys have side effects of vanco. I feel I am more nauseated. If 10 day dificid does not work then do you have to switch to vanco or should you try a tapered dose?
What should I bring up to my GI. I have an appointment Wednesday.

Hi I’m still having a 8/10 pain with bowel movement only. It feels like a wasp stung down there and it’s pretty bad burning and stinging. It hurts for about two hours after bowl movements and I have to spray numbing spray continuously until I get some reprieve.
Please do not suggest sitz baths or anything OTC or diltiazam. I’ve exhausted my options unfortunately.
Has anyone experienced this and what did you do.

I also apprantly have Cdiff making bowel movements very frequent.

When I think of me I go completely blank. I can’t remember significant events of my life good or bad. And recently bad events have been happening and I’ve lost a lot. I mostly kinda remember recent negative things but have nothing to pull from or ground me towards the positive. I feel like a computer without a command or objective. I just kinda am here

Was in the er for severe lower right abdominal pain. The nurses were very dismissive because my gallbladder ultrasound came back normal.
They also told me we were waiting on my ct but
"it's probably normal". It was not normal. I had colitis and my lymph nodes swelled. My pcp orders a stool culture and it came back positive.
But it just seems no one is taking me or my pain seriously.
When I went to a Gl, she was like "we all have a little cdiff idk why ur pcp tested u for it"
Is this really not that big of a deal?

I feel like I’ve been tortured in a war prison. I am genetically different in terms of how I metabolize medicine. A simple surgery turned into excruciating pain with hours of me screaming and crying with no help. I experienced so much pain that it feels like my nervous system is fried and the drs just shrugged it off. I don’t metabolize pain meds properly making it difficult to administer pain control. I feel so lost and hopeless like there’s nothing anyone can do.
I’m on the other side now but I feel less than human and more like a bag of meat. I don’t feel like a person anymore. I know with hEDS nerve blocks can have issues and they either wear off on me very quickly or cause more pain.
Also a lot of nausea meds are super dangerous for me. Quite a few of them taken at moderate doses can throw me into full blown akesthesia and almost psychosis and it takes WEEKS not to feel su()idal. I found out the hard way and AGAIN no one believed me until I got pharmagentic testing done

I feel like I’ve been tortured in a war prison. I am genetically different in terms of how I metabolize medicine. A simple surgery turned into excruciating pain with hours of me screaming and crying with no help. I experienced so much pain that it feels like my nervous system is fried and the drs just shrugged it off. I don’t metabolize pain meds properly making it difficult to administer pain control. I feel so lost and hopeless like there’s nothing anyone can do.
I’m on the other side now but I feel less than human and more like a bag of meat. I don’t feel like a person anymore.

I have always had trouble using the restroom. I have chronic diarrhea but my pelvic floor dysfunction or the way my muscles work just make it so I have to strain to use the bathroom no matter what.
Years of this turn into a fissure and hemorrhoids.
I just had a surgery called LIS where they cut my rectum loose basically. I explained to the surgeon I have EDS and nerve blocks and loc anesthetic don’t last.

Guess who is in severe pain and I mean severe after just 12 hours. Since the first night after the procedure everything wore off and I feel like a wasp is repeated stinging my rectal area while simultaneously stabbing me It’s an 8/10 pain. I was given 10 mg oxycodone and it’s not helping at all. Nor is toradol or Tylenol. I have genetic enzyme changes that make pain meds less effective.

After my first bowel movement I had a lot of bleeding that stopped and I couldn’t walk due to the pain. My 2 bowel movement was even worse 13/10 pain. I couldn’t even get up to clean myself. I was crying screaming in pain covered in feces. I couldn’t clean myself until 5 hours later. I’m sure I have a uti by now. My surgeon’s office is just saying “idk but the pain isn’t normal but we aren’t gonna do anything about it”

I’m so done. I want to go and cry and beg the ER to just give me and ostomy bag until I heal.

Hi I just had my LIS. First day no bowel movement and was okay. Since the first night after the procedure I think the nerve blocks wore off and I feel like a wasp is repeated stinging my rectal area. It’s an 8/10 pain. I was given 10 mg oxycodone and it’s not helping at all. Nor is toradol or Tylenol. After my first bowel movement I had a lot of bleeding that stopped and I couldn’t walk due to the pain. My 2 bowel movement was even worse 13/10 pain. I couldn’t even get up to clean myself.
My rectal area looks normal as far as I know but I need help not sure what to do.

Hi I’m 24f and was wondering if any of you had advice or a relatable experience. I have an extremely tight pelvic floor and a lot of pelvic floor disfunction. I feel like even at times my return tightens up so much I can barely poop. I am in pelvic floor physical therapy. I also have hEDS

So I’ve had a fissure for about 5 years and rectal bleeding. The bleeding got fixed with a hemmriods ligation but it didn’t fix the pain. Forward to now I have a fissure not sure if it’s the same one or I keep getting more but it’s making my life miserable

I’m borderline su%idal because of it. I go through extreme pain during and after bowl movements. I feel like battery acid is being poured on my rectum and the spasms after are horrible. I have tried for years SITZ baths and every prescription creme possible and yes I put it in internally but nothing heals.

Also I am never constipated. My rectal area just does not work with me and I always have to strain to go but my stools are soft.

so am I making the right decision. I feel like I didn’t want the uncertainty of Botox and then wait for the time it sets in. Since I’m so tight I felt like the LIS Is the right idea.
Any thoughts?

Currently suffering from a fissure that won’t heal and that’s getting progressively worse. It’s been 3 years. I have done everything and I mean EVERYTHING by the book to help it but nothing has worked. My dr recommended Botox but seeing posts of Botox not working online is making me nervous

Currently suffering from a fissure that won’t heal and that’s getting progressively worse. It’s been 3 years. I have done everything and I mean EVERYTHING by the book to help it but nothing has worked. My dr recommended Botox but seeing posts of Botox not working online is making me nervous