Please help calm me ! Lol.
Been scared to take this for 2 months but finally am going to start, mostly scared of dizziness or nausea since I hate both.
Thank you
Im lucky I have great doctors and specialists now but the first time i was referred to a cardiologist for pots before being officially diagnosed he refused to even have me in for a TTT or test for pots as he said its not real.
I have heard of this happening where Dr's dont believe in pots but I dont understand why.
Hey, never posted on here but im struggling. 25f, bed bound alot of days.
If anyone has dealt with pots/dysautomia from covid please tell me anything that has helped you. This has caused me such depression and I miss my old life, I need it back or at least to feel like i can go for a walk without dying.
I am willing to try just about everything!
Started about a year ago, meds arent an option for me. (Severe adverse reaction).
Thank u ♡
I know this has been asked before but i just had a bad episode of presynscope due to a heatwave where I live and my A/C deciding to malfunction. 🫠
Its a bit better now, put cold water on me, fan, electrolyte water, ginger for nausea.
Any other tips? I get really anxious whenever I have presynscope. :(
Thank you.
I have zero quality of life. I am extremely depressed. This condition has also caused extreme anxiety. I can hardly get out of bed and have spent 80% of my last 2 years in bed. I'm constantly dizzy, the heat is horrible, I have zero energy, I hate eating now due to how I feel after, I cant go out anymore and enjoy my life. Im only 25 and feel like I have lost everything. I cant even sleep at night without waking up every 2-3 hours with a high heart rate that lasts 30-40 mins.
I cannot take beta blockers as I had a severe reaction causing my pulse to drop to 25 bpm while awake. I cant tolerate the other meds. Partner will probably leave me at some point cause I think hes tired of being with me now due to my symptoms.
I feel bad complaining, I know things can be so much worse and people have it way worse than me, but I cant help but feel this way.
I have had pots for 4 years, but it was not horrible until I got covid a year ago and its been 100x worse since then. My care team has referred me to a POTS/long covid place that specializes in pots and dysautomia for a one year program to hopefully help.
Its my last bit of hope. Just needed to vent.
TLDR: depressed from my symptoms, meds aren't an option, miss my old life.
I love found footage and I have watched hellhouse.
Also love the creep movies and creep tapes, creepshow.
Not picky with horror, please tell me your faves !!
Pls tell me what helps you have a good sleep!
I wake up every couple hours, have a hard time falling back asleep and can never seem to have a peaceful sleep. Either have to pee or wake up and cant fall back asleep due to a high HR / lightheadedness when waking. Not getting enough sleep and it makes my symptoms so much worse. Anything helps, thank you. ☺️
Between the heat & watching everyone enjoy the summer while I can barely function outside for 5 minutes absolutely sucks. I feel extremely depressed during the summer months, and I cant wait for the weather to start to cool down.
What have been your favourite summertime activities that dont bother you?
Always been a thriller reader but recently have been reading horror novels and wow! This is definitely my genre.
What books do you recommend?
I am not picky, just like a well written and spooky book.
Thank you. :)
Help me decide what to get next pls.
Have been playing tiny bookshop recently but looking for something new. Any other recommendations welcome.
Thank you. 💓
Only starting on 5mg once a day for 3 days then increasing 2x a day then 3 eventually if needed. Im really sensitive to meds.
I saw alot of side effects people experienced that make me nervous, I really dont wanna feel like im high or anything lol.
I have severe anxiety and panic attacks so taking medication is horrifying to me.
What was everyone's first dose like?
Never used to be this bad after I eat but my heart rate goes crazy for an 1-2 hours and I have to lay down and i get so tired and feel just bad. What helps you?
I have had pots since 2021, but i had the best week I've just had since being diagnosed with POTS. I never really have good days. I still had symptoms, but they were so much more manageable than usual. For the first time in a long while, I felt genuinely happy and hopeful. It almost felt like I had a little piece of my old life back. Now the good days are over, and my symptoms have flared up again, and flared badly.
I wasn't expecting the emotional side of it to hit me this hard. Having a glimpse of what life used to feel like has made it even harder to be back where I am now. It's like being reminded of everything I've lost.
I know setbacks are part of these conditions, but today I'm just feeling really sad and grieving the life I had before my diagnosis.
Has anyone else experienced this? How do you cope with the emotional ups and downs when you have a good stretch and then crash again? or just in general, thank you. ❤️
I had the best week I've had since being diagnosed with POTS. I still had symptoms, but they were so much more manageable than usual. For the first time in a long while, I felt genuinely happy and hopeful. It almost felt like I had a little piece of my old life back. Now the good days are over, and my symptoms have flared up again.
I wasn't expecting the emotional side of it to hit me this hard. Having a glimpse of what life used to feel like has made it even harder to be back where I am now. It's like being reminded of everything I've lost.
I know setbacks are part of these conditions, but today I'm just feeling really sad and grieving the life I had before my diagnosis.
Has anyone else experienced this? How do you cope with the emotional ups and downs when you have a good stretch and then crash again? ♡ or just in general, thank you.
Have had basically no good days for the last year and a half up until this last week and a half, im feeling much better, I havent changed much besides increasing my physical activity (walking a bit, because I felt good enough to do it.)
The last week i have felt so much better, my heart rate is much better, I still will have some symptoms throughout the day but its much more manageable.
Have had pots for a few years but havent experienced this. No complaints. 😅
Have only taken prozac for anxiety and stopped due to severe vertigo and nausea, and I read dizziness is quite common on this med so im scared as I hate feeling like im going to faint. Please give me your tips or anytning to make me feel better lol.
I got diagnosed with pots after multiple testing and specialists, was a long journey but I got a diagnosis.
My friend now claims she has it, along with every other disorder. Its to the point where she is stating to doctors before appointments or procedures that she has multiple medical conditions which she has never been diagnosed with.
I was diagnosed with pots now suddenly she has it, I was diagnosed with a separate very heart heart disorder and now she has it. I dont understand, and it bothers me because this is something I would never want, and has made me extremely depressed. She doesnt have symptoms of anything, has been to the doctors and they said everything is normal. I dont want to sound rude either or like I am dismissing someone, but she claims she has all these disorders when she does not. Our other friend has a medical condition as well that our friend now magically has. Its strange. I dont know what to say to her when she tells me all these things. And if I am having a flare up its like she gets mad or jealous somehow and instead of helping she is instantly also having a flare...
I also worry about her as she frequently got surgery and claimed to the surgeon she had all these conditions + allergies to medications which she has never had nor been tested for. I worry people like this is why we arent taken seriously sometimes.
Has anyone dealt with someone like this?
Feels good to finally know what is going on, and have a doctor take me and my symptoms seriously! Advocate for yourself. ❤️
I currently just bought tiny bookshop but would love to add more to my collection! Thank you :)
We have sex maybe once a month or twice if im lucky!
He has cheated online (sexting) before, a few times...
I know i should have left but I didnt.
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We used to have sex all the time, and if I bring it up or ask him he just gets annoyed and wont answer me.
I know he gets horny, he looks at nsfw subreddits and wants a threesome, which previously I was open to as I am bisexual but not anymore due to him having a bit of a lying issue.
I moved away from home to live with him. And im dealing with some health issues so packing up and moving back home is currently a bit tricky.
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He doesnt seem depressed, I know my hygiene is great and I smell good.
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This has been ongoing issue for 6 months, but there was a time a couple months back where he would have sex with me almost daily when I agreed to a threesome.
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If its just me he doesn't seem all too interested, but if other females are mentioned then hes into it right away.
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It sucks! I love physical affection and find sex is a great way to connect. And im so understanding, I wish he would just tell me the whole truth, im not the type to get mad or lash out.