u/sunny7319

I'm at the end of my rope
was dealing with bad malnutrition symptoms, got too cocky and tested too many supplement brands in one day that were flaring me up, now 3 days later and my stomach and skin are now reacting to my one safe food, potato chips, and my one multivitamin keeping me afloat. I barely ate yesterday and was the first day in awhile I didn't even take that vitamin, my labs are low in a lot of stuff and feeling it. I titrated super high on my ketotifen from basically 3mg to now 6 or 7mg a day at more frequent times, and it doesnt seem to be helping so much like i thought. It's only been 3-4 ish days since the big flare up but still.
There were times I reacted to my safe things but idr how long it took to get over it. I'm scared to even eat right now.

I'd rather die quick on my own terms than slowly or in a hospital, in a ton of situations that are becoming a reality soon right now, and that's all I'm thinking of right now.

I'm calling every pharmacy if they have amlexanox with my safe filler so I can maybe try and see if it doesnt worsen me, but itll take til like monday for my doc to see my request, and for a place that has it to be open to respond probably, so it may be another half week til I even get to TRY to see if it helps

Currently in a huge flare up, sometimes I titrate up during a huge flare and i reeeally need to right now to tolerate my supplements since im in a malnutrition situation too

I usually take 1 - 1.3 mg 3 times a day, sometimes if i have to accidentally stay up for more than 17 hours ill take two more of those

i might be thinking of doing 4 times a day every 4 - 5 hours like people do with cromolyn, except i dont use cromolyn, only ketotifen, 20 - 50 mg of loratidine, and 10 - 20 ish of famotidine

i think some people even do like 8 mg a day? is that the upper limit? i know data may be scarce with how new this disease and treatment is, im just worried about cons

I've noticed for a year now since starting ketotifen, this dumb conundrum where it making me super sleepy I'll accidentally fall asleep and nap a bit because my eyelids are so heavy, BEFORE my scheduled "end of day" so i dont get all my dozen things i need for my body done (im homebound), but it can be literally like a 30 min nap, and itll make it impossible to fall back asleep again at the scheduled time like at the end of a 16 - 17 hour day. But so when I do stay up and "extend" my day and routine, still taking my meds with the same game of time for coverage, past maybe the 21+ hour mark i'll notice flare symptoms come in slightly, my first kind, and I'll think I'm losing something or did something bad somehow even though my days are mostly identical then I recall how late I'm stayed up

but so yesterday it freaked me out because i trialed too many new supplements in one day, was rationing my loratidine because I was low, stayed up too long and got too cocky and took the tiniest bit of topical iodine which i know used to flare me up, and then without even eating anything really my stomach started bubbling like crazy, gas, etc all of it, had to benadryl myself a ton and it freaked me out but certainly staying up like 28+ hours despite a 2ish hour nap compounded an extreme reaction

No movies, **shows**

can be about anything except for anything paranormal, medical, or food related

honestly the mood I'm in is I miss those old vice docs on youtube back in the day, as well as other popular docs and docu filmmakers of that era and just that directing and editing style at the time especially too
also, i've seen a lotta the popular ones, so im looking for lesser known ones or deep cuts

I'm trying to speculate right now if what i thought was a take-out food smell that my mom brought home that didnt bother me at first, smelled like a familiar food i used to crave. food smells that set me off usually smell SUPER strong and just "bad" to me now, some of which are foods i used to love like onions, they know not to even eat many kinds of things in the house anymore, but i been flaring up for half the day and now came into the kitchen and smelled some thing so strong from the garbage my eyes started getting itchy despite holding my breath/masking up around it, and even my lips started tingling which freaked me out and never happened before from a smell and now im kinda trapped in my room

has a smell ever built up like this with anyone? im really hoping its just this possible food being brought in and not something else in my routine because then idk what ill do

I'm going to get a blood test eventually and talk to my doc again, albeit they're usually not much help, even my dietician, but I'm asking this here just for posterity, because I think most communities will just say "just go do this or eat this" not knowing that I can't or have already tried/am working on it.
I'm not exactly vegan, I have a rare health condition that essentially makes me have to eat this way and it comes with a lot of malnourishment issues, and I figure since a lotta people have to stay ontop of that and may struggle with it I just wanna ask if people have explicitly experienced this here?

It'll be tingling in the limbs for an hour or so after eating tofu
I know that too much zinc can deplete copper and cause neuropathic symptoms, and they're antagonists, and on my food tracking app I get slightly more zinc than I do copper
I get adequate B12 in a multivitamin, albeit at least 10+ mcg a day, and I'm just getting over an issue for the past few weeks of being low on certain electrolytes/minerals like magnesium and enough sodium and too much water intake (before this, I was fine with tofu) that I've only just for the past few days been supplementing better now so it's helping with these symptoms more present throughout the day, but it's like they all flare up in a way right after my daily tofu meal, but then dissipates in a couple hours or so, and I'm just wondering if it's this sudden "protein" load thing, or a copper/zinc thing, or an electrolyte issue, or any other blindspots that may happen in a state of deficiency that y'all have experienced before

I went through this all before I knew of MCAS and finally got on meds but I haven't strayed from it yet and trialed, but I've also gotten much worse since then. I rely on a processed food product as one of my very little safe foods, an olive oil chips product from Trader Joe's, just those ingredients and sea salt (so non iodized). I then tried a Boulder Canyon brand of the same exact kind, and reacted to it pretty badly in small amounts somehow--is it in the type of potato? way it's cooked? the texture was way thicking and *powderier* is the skin with more histamine in it left on? or the way it's processed and left to sit out that causes it to build more histamine or something???

This happened with a ton of other brands I tried too

I ask because occasionally, like now, it'll go outta stock everywhere and I'll be stuck rationing and panicking while figuring out what to do for however many weeks, and messaging these companies are sometimes useless ofc because idek what I'm looking for

right now I'm trying to see if it's different type or variety of potatoes like russet etc for my safe TJ brand.

please help if you can but stay on topic

I'm using N-track studio pro version 10.4.43 for Android, and the forum site feels super dead and there doesn't even seem to be a sub on here when there seems to be a sub for everything especially a super old software so im just kinda confused, does anyone have any experience with this program and can point me to a community that overwhelmingly does on here or elsewhere that's slightly active?

There's dozens of issues I'm having and one of em right now is glide working in the piano but when recorded in the actual piano roll and played back they don't have glide, and i have to manually overlap all the notes invididually after the fact to get it

Needing completely serious shows, so don't suggest docu or comedy type stuff like Jury Duty

I've heard of The Twelve, and The Jury, and that's it
I've obviously seen Twelve Angry Men and heard of Juror #2, not exactly looking for movie recs either but theyre welcome after any tv recs

Every post here is about wanting to enable it and finding about it either being only on higher end phones or certain game modes

i just wanna turn it off on ranked

they mention a live show where a bunch of grannies show up to their show thinking it was something else but they ended up fans, but i even lost my place of what ep they mentioned that

maybe they said florida? idr

thanks

Obviously whatever factors will worsen and things will stack, bucket will fill up, and itll eventually make it to stomach symptoms after skin symptoms etc first or whatever else etc, but does anyone have it just jump to straight stomach pains? I just needa know cold is the biggest contributor rn like i think it is

specifically like, the kid feeling trapped because their parent who's a victim wont leave or divorce, begging them to leave/divorce etc, and then feeling like they cant leave or live their own life when they grow up because of this expectation to be there for protection

i think youll see this a lot with parental abuse of siblings and feeling obligated to stay to protect the sibling, but this is specifically one parent abusing the other parent and needing to protect the parent

doesn't need to be a feature length movie, can be a short film, tv show, book, or just a small subplot in something

Answer it SIMPLY please, does brands of oral potassium iodide in distilled water still absorb into the skin when applied to skin? No matter if poorly, does SOME still absorb at all? as in meeting SOME iodine supplementation?

So it's clear and only has potassium iodide, it doesnt have "iodine" mixed in like Lugol's 2% brand and isnt dark orange like it