u/Excellent-Push2833

There is a link between HFS and PSSD/PFS

And there is a doctor that just started to figure it out.

I have a Rare Iatrogenic condition called PSSD. Unfortunately my parents decided to put me on Zoloft at the ripe old age of 7. I also have Hard Flaccid syndrome the onset was immediate and the exact same timeframe as my PSSD symptoms. Dr. Will powers recently figured out that we have most basically a low metabolic clearance rate resulting in an androgenic metabolic pileup. Im wondering if that is the cause of all HFS patients and it actually has nothing to do with the nerves but muscular changes in the penis due to a loss of androgenic signaling. Has anyone tried any kind of topical hormone?

Please read this before replying https://www.reddit.com/r/DrWillPowers/s/rKRCbnHwyb

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u/Excellent-Push2833 — 11 days ago
▲ 5 r/PSSD

My hormone panel Will post 3a labs when results come in

Incoming 3A lab. Everything looks normal. My dutch test is another post on my profile. Waiting on genome sequencing data

u/Excellent-Push2833 — 11 days ago

reaching out because we genuinely need awareness and support.

Many of us are dealing with real, persistent health issues, yet we’re often dismissed or not taken seriously by doctors. It’s a frustrating place to be—knowing something is wrong with your own body, but struggling to be heard or believed.

That’s why we’re coming to this community. The trans community, especially those connected to Dr. Powers’ work, understands what it’s like to advocate for yourself in the face of skepticism, to push for proper care, and to fight to be taken seriously. That strength in advocacy and openness to complex, under-recognized conditions is exactly what we need right now.

We’re a small group, and we don’t have the visibility or voice that many larger communities do. We’re asking for your understanding, your willingness to listen, and—if you feel comfortable—your help in raising awareness.

Even just acknowledging that what we’re experiencing is real would mean a lot. Any support, signal boosting, or shared insight could help us move toward better recognition and care.

Thank you for taking the time to read this and we will work to support you the same way

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u/Excellent-Push2833 — 25 days ago