u/bimbiibop

The IEP says:

Adult support is REQUIRED daily, throughout his school day, across settings and people, specifically including safety due to elopement.

There ARE 1:1 services written into the IEP but they’re instructional, not continuous supervision.

Services section says that for several instructional areas, individual (1:1) sessions and/or small-group sessions will be utilized.

I am a concerned parent as IEP expressly identifies adult support as required. However, there's no quantifiable requirements.

The class ratio is 1 teacher, 3 paras:9-13 students.

I'm just wondering how to ask for required adult support to be more quantified so that if someone doesn't know my son at all and they read his IEP they will know the extremely high risk without supervision. He finds every opportunity unsupervised to bolt/elope/mouth.

I need help as to what to ask for, I realize it's difficult to get the full jest of requirements without reading the actual IEP.

Also, quick question last year on the bus my son was riding without a secure safety seatbelt and they had many issues with him getting out of seat and trying to open doors or unsafe behavior. It's required in his IEP but I guess not every bus has access to seat belts? Should they be taking this more seriously and if they can't provide a bus with a seat belt, should they provide alternative transportation?

Hello I have secured an emergency IEP meeting due to my sons increased interest and ability to bypass locks and obstacles to elope. After a police level incident and increased behaviors I decided to read over my son's IEP just to make sure it reflected the type of supervision and support he needs to stay safe.

It says he needs adult support in regards to transitions, lunch, recess, bathroom, gym, etc but it doesn't explain what that adult support should look like, who will be providing it, and frequency or intensity. I think it needs to say he needs to be within arms reach at all times, eyes have to be on him at all times, or he notices and bolts.

I can't take my attention off him even second without an incident and he needs the same level of supervision across all settings. We used to have 1:1 language more frequently throughout his IEP now it says 1:1 or available adult support in various sections but it repeatedly is minimized to faded adult support, unfortunately,that is no longer acceptable in his current high risk elopement state.

He's clever and sneaky and will bolt or elope in school without any signs or distress or warnings. Let's say another student is having an all hands on deck incident, my son sees an opportunity, so we call him an opportunistic eloper.

Where within the IEP should the level of supervision necessary to address the documented elopement risk actually established?

I know PLAAFP should establish the need, yet it only says adult support, should it establish the level of adult support necessary in this section?

We have a BIP, but it is focused on my sons escalation behaviors, he's incredibly sensitive and doesn't like it when people are not genuine, frustrated, etc, obviously it happens but if you don't acknowledge and express clearly, he gets triggered. It barely touches on elopement other than he has a history.

Get100 is my favorite promo! I had it for about 5 weeks and suddenly it disappeared. I think it may have disappeared because I asked for a price match for some perfume. I was charged more than any other retailer Amazon target or Walmart though I was charged more. I was using a get100 coupon, so in hindsight, I still got a deal but at the time I was frustrated because it was nearly doubled. The cost on Temu and it was anywhere else really was my mistake. I feel bad for complaining, but I wasn't unpleasant and they didn't honor my price match and I let it go, but then the next time the promo ended I got no invite to a new one and I feel so sad.

I've thought about making a new Temu account, I did, but I don't know how to get it on the app because every time I've done that it connected to my old account just updates my email.

Anyway, maybe I have to wait a while. The one trick I did have previously was it kept renewing the promotion as long as I was getting on between midnight and like 12:10-12:15 I literally set an alarm for a while. I do think the night I lost it. I used my last coupon a little too late. I wasn't on at midnight like I usually was so the promo had run out and now it just hasn't been offered since despite going on at midnight.

I have a childhood friend that remained a strong presence in my adult life up until recently, however we had been slipping and our dynamics shifted after my son's diagnosis.

At first, she invited us to stuff and she tried to include us. She was supportive of the emotional toll and isolation and listened and I was there for her too but she always felt bad whenever I'd be trying to help her through stuff because "my life was so hard," and hers is everything she's always wanted, but of course tragic stuff still happens. I never wanted her to feel that way but she obviously felt bad for me? Or this was the start of the shift in our friendship dynamics.

She told me she doesn't want to have another kid because her two kids are perfect and if she had another child and it ended up autistic it'd ruin her life. I get that... but... still made me sad.

Her party's and outings were the only thing we were ever invited to and my kids loved them! My autistic son loved her daughter and tho communication is limited he still asks about her. We looked forward to any invites! Still, some of my son's behaviors bothered her like his dumping and throwing of stuff. He threw a Bose speaker in the pool and she said it wasn't a big deal, that it was old, I still replaced it! It wasn't the same model but it was as close as I could find and 200 is a lot of money for us but I looked at it like the profound autism tax, we are always replacing stuff, it is what it is.

Well, this year she's cut us out, entirely. I have reached out, said we miss them, we are thinking of them. My therapist suggested a vulnerable message that said something like I miss the part of our friendship when we were included, and it was gentle but just asking if we could try that again. She completely ignored my message, I thought maybe she didn't see it cus she started sending funny videos so I sent it again, ignored it again, still sending funny videos.

It hurt so much I just had to step away.

I wouldn't consider myself a jealous person but I started to experience feelings that made me really uncomfortable. I started to reminisce about all of our memories from when we met throughout our life. I started to question if she really liked me then, I started to tear myself apart in scenarios I never thought I did anything wrong in before. Sounds silly now but I was always more 'alternative' and she wanted to be part of the art and music scene i was involved in and would frequently reach out to me to make sure she was included in all the events, and I never closed the door, but sometimes i resented her because I wasn't often included in her world, like she thought I wouldn't be into the more typical hangs, and the thing is...I would have been, anyway it didn't go both ways, so she lived vicariously through me whenever she wanted but also was building another life.

The other life is her entire world now and she grew out of me...or the old version of me, I don't have anything she wants anymore, I grew out of the old me too because my life revolves around caretaking and advocating for my son I've had to shelf my interests, I'm always in survival mode, i mourn the loss of my old self too.

Anyway, I really am trying to move on and radically accept not being included but the grief keeps sneaking up on me and I miss her and luckily I have been super strong not to say anything else tho I've wanted to.

There's more examples of being an afterthought before she cut us off, but I'm trying not to obsess.

Basically, there's fact, we aren't invited anymore (despite reaching out) and then there's all the rest of this crap, all the stories exaggerated in my head or invented in my mind, or nuisances that may or may have not happened that aren't significant, none of that is fact and I'm trying to let it go.

But it's hard. My life is not what i imagined it to be but I wouldn't have it any other way. I'll get over this in time...I just wanted to post to help me let it go... this group makes me feel better and I know a lot of you have been through some version this...

In Episode 3, Sam is clearly inside Judith’s apartment, talking on the phone. He jokes, “Who do you think cleans?”, which only makes sense if he’s familiar enough with the place to be comfortable there.

Then in Episode 8, when he arrives, his reaction comes across as if he’s seeing Judith’s apartment for the first time. The dialogue doesn’t really explain why he’d suddenly be surprised by where she lives.

What happened here?

Basically, I'm reactive to all over-the-counter pain relief. It's been a problem. I currently I'm struggling with pretty severe pain. Think I caught a virus on vacation and then because I have asthma the wild fire air mixed with a viruses caused some serious infection. I have been prescribed azithromycin. In the past azithromycin has helped with pain by day three but it's not touching this ear. I also have a fever. I just wish there was relief :(. Does anybody know of any supplements, herbal remedies homeopathic treatments that may have helped them in this situation?

I'm trying to figure out if my swollen lymph nodes and sore throat/post nasal is the bad air quality. It would make sense! I had to drive through it 6 hours yesterday. However since I was on a trip I also am being cautious as I could have caught something at the arcade with my kids.

I have no fever but I will say this swollen sore throat is different than my usual reactions. I usually wheeze, runny nose, blood shot eyes, itchy hives.

I don't have any patches or anything that is obvious Covid, strep, it basically looks and feels just swollen af. I'm allergic to 85% of whatever they test for on the pin prick panels tons of environmental stuff that's hard to avoid, grasses, trees etc.

Not asking for a diagnosis and will see doc if continues but just wondering how yall are reacting to this bout of forest fire air??

Above was my previous post

First, I want to say that obviously people's experiences with CPS vary and it's probably dependent on the staff wherever you're located in the states. But overall, my experience was better than expected. Of course, I was nervous because of how they're portrayed in the media and horror stories that we've heard, and just simply the power they can have.

My experience was with a kind and gentle social worker who has been doing this for a long time. When they receive a report of elopement and autism and it's a first time report, the most common intention of CPS is usually alternative response, this is to see what changes you've made if any, and to see if you may need to be connected to support. Obviously it may vary based on each situation.

In a nonemergency, they have five days to follow up. Follow up, starts with a call from the department of human resources. I missed my first call and when I called back I left a message and then I called the next morning and we connected but it was the fifth day so we did need to see each other,however, he did offer for us to come into his office.

After talking to him for a little while, I actually felt comfortable with him stopping by. He said the visit would probably be less than 15 minutes, and it was! It's just to make sure that My Son is OK and that I'm OK.

Because I had a chance to discuss things with him before he came. It did help, a bit of my nervousness. I was mostly nervous because we moved here about eight weeks ago and because I am a sole caretaker of two kids with special needs and we don't have much support. I am only about 70% done unpacking and it's kind of been put on hold until probably My Son's go back to school.

All of my stuff is in a corner of space that I would love to use for something else, but it is safe. I have all the heavy things against the wall and then I have sort of the bags of clothes and the soft items in front of those everything is secure and not at the risk of falling. However, if something did fall. It would be soft.

My kitchen is a little cluttered because it's a very neurodivergent kitchen, but it's also clean and functional. I try to keep my sink empty. I always keep the stove clear and have some space to prep food and a space on the table for my kids to eat dinner. I also always have fruits and veggies on the table, but it wasn't as a prop it's just I literally always do that. It reminds me to eat things like avocados, potatoes and onions before they go bad and the fruit my youngest just loves grabbing and eating all the time.

My bathrooms are clean one is pretty barren and that's the one that the boys use. I have to keep it minimal because that's what they prefer. My bathroom looks like a cluttered woman's bathroom with products everywhere and it has a little corner that's sort of storage and like a towel chest it's very small so it's got a lot of stuff in it for the size but it's still functional and clean.

My room is what I was most worried about because I am what they call furniture broke at the time. I have most of our linens and clothing in bags against the wall, but there's some sort of plastic furniture that makes the things we need accessible. It's just I don't have a place for the rest at the moment. My Son's room looked like a typical boys room. It was kind of messy with some stuff on the floor, but also had everything he needed and lots of toys and entertainment. My autistic son sleeps with me. He has his own bed, but our beds are next to each other so he has the option to sleep with me if he wants it also just allows him to have some independence while we still maintain the safety of cosleeping.

Anyway, I had some reason to be anxious because of the fact that I'm not unpacked it looks a little like hoard but it's also in boxes and labeled. It's just I feel like a lot of people would be done unpacking by now and I guess I'm embarrassed that my situation makes it that I really can't get to it.

I was offered two things that was really kind although I was warned that they have a budget and there's a chance that it won't go through because they may have ran out of funds for the year. The two things I was offered was a storage unit just so I can have the stuff out of the way until I am able to go through it when the kids are back at school and then the other thing I was offered was a dresser for our room. Both of those things surprised me! They would be very helpful.

They're gonna look into child friendly respite care, but I was told it's limited. They're also gonna look into in-home ABA we're on the waiting list for pretty much all the services in Maryland and basically they just said they'll see what they can do and they definitely see we have the need for it, but the demands outweigh the need at the moment. They are disappointed in the lack of resources as much as I am.

I already know services are limited and hard to come by but the main thing I hoped for was grace and understanding based on the fact that Support is so limited and that we're truly doing the best we can.

The cps worker definitely understood and gave us grace. I could tell that they had the best interest of children in mind and do this because they love children, but the hardest part of the job is convincing people of that because of the perception people have of CPS.

If you're ever in the situation, my advice to you would be to show you're competent, but be realistic about your situation. Ask for understanding and tell them what you're nervous about. If they have to come for a home visit, it's gonna be in your best interest to be welcoming as it could escalate to investigation if you refuse to be compliant or show hostility.

The outcome we had after the visit is called alternative response and supportive services.

Anyway, I don't know who this could help, but I just thought I should share that if you're truly doing the best you can, you'll be ok!

We have locks like two inches from the top of the door and he basically stacked up toy bins to unchain. He was up til 4am the night before so I was still sleeping.

I'm so lucky someone recognized him, and even remembered where we live!

He was found in the middle of a semi busy road by a family they brought him

To the office. They got him doughnuts gave him toys. He actually had a blast which is concerning in a way. The police officers were kind, but they have to report to Cps.

I'm wondering, to other parents this may have happened to, what happens next? Does cps help get us more support? My house is still not unpacked from moving in April but it's accessible and clean and functional just with stuff in boxes and bags in corners. I don't even know if they'll come here but would I get in trouble for unboxed clutter? The reason it's not unpacked is because I need help! I can't do anything without someone watching him.

The important stuff is all unpacked and out as well as 1000's of his toys he endlessly dumps and sorts and repeat cycle.

It's mostly clothes and stuff I have no furniture for. Furniture poor I guess, anyway... this has been terrifying af! I need a tag for him or more locks or alarms at the door that can wake me!!!

He was fully clothed but bare foot. His diaper was full as it is in morning but not excessive or leaking. He was clean and unharmed.

Just got a letter from my insurance that they will no longer cover qulipta.

I am devastated! With just 10mg dose I've gone from 5 migraines weekly down to 1-2x some weeks I've even been spared! I have zero side effects and I'm on a lot of other medications and it's caused no interactions. It's made my ibs better too!

I'm allergic to a ton of stuff so it's been a godsend with how well it works for me with no issues.

So I have a pretty intense fear of injections. I get a little psychosomatic about them and I can get my blood drawn fine but it's something about something going into my body that will affect me long-term. I like just the anxiety around that is overwhelming for me and they gave me a list of suggestions and they're all injections..

I'm allergic to NSAIDs ibuprofen Tylenol aspirin, allergic to wheat, sulfa drugs, toperimate and it's cousin that start with a z both are sulfa derived and they triggered my allergies as well. I can't do beta blockers because I have low blood pressure and I have asthma and it kind of works against my inhaler although I've tried some before they make my blood pressure too low.

Anyway, I'm really sad and scared about the change. It's going to have on the quality quality of my life. I'll try to get an appeal, but I've never won an appeal against my insurance and my doctors have tried many times.

I do have some 30 Qulipta that I can break up and I guess get possibly 90 days out of. I guess I'm hoping that I can somehow make it on the stack that I have until they decide to cover it again or a generic comes around but I probably only have a couple months worth left. I'm trying to get an early bottle covered before they cut off the medicine.

What has your experiences been with the injections? If you've been successful with Qulipta, Does anything truly match the success of Qulipta?

It's interesting that Zuzu city makes me feel uneasy. I have explored a little bit, but not nearly as much as other places because of this. I only get the one festival event every year and I think something is wrong with my bus stop cause I pretty much don't have the option to go to multiple places. I've heard that there's like a mall in Zuzu city and stuff. How can I make Zuzu city expansion more interesting to me? I know their secrets awaiting in different locations. I haven't discovered yet. I did buy an apartment there, but I havent decorated it or anything and I hardly stay there since like in the game my husband is Sebastian and weirdly I like going back to him to gift him daily lol I know it's just a game but maybe the repetition is part of the fun for me. Sebastian would love to go to zuzu city, right? However, I don't think there's any sort of mod that will allow him to stay there with me or explore the city. If there is let me know!

I lived at belcove place for 4 years (previously & when I moved in it was called country village but Sage ventures purchased it and renamed it belcove place)

Pros-

-friendly neighbors for the most part

-good school district

-outdoor lobby is a nice touch

-it's quiet and sound doesn't travel between units, everyone is respectful of quiet hours

-it's pet friendly

Cons-

-maintenance prefers bandaid repairs

-rude office staff

-sewage smells from p-traps, old pipes, water regurgitation from neighbors comes through in your apartment

-pesticides are not optional (had serious reaction)

-pests are still an issue such as mice, birds nesting in vents, even bats invading apartments was somehow normalized

-maintenance is miserable but nice enough however certain staff members quality of work reflects the feelings they may have towards job (ie-crooked installations, unfinished jobs, mess left behind, not following entry requests set by tenant)

-lawn care is constant but somehow they still have unfinished piles of dirt and caution tape all over the place.

-sometimes straight up ignore maintenance requests

-frequent water turn off that effects multiple buildings due to having 3 water main valves for over 300 units, they haven't updated water shut off to be individualized per building so it's like weekly shut offs.

-lots of geese poop and pet poop that hasn't been picked up by owners

-one bus stop for students is a hike for further units

-RATIO BILLING is both unfair and ridiculous! Don't try to cut costs by reducing running ac or heat less because you can't control how others are using it, just get comfortable because you'll be paying a lot anyways. Water is insanely pricey and doesn't seem to add up, it seems like they we are paying for pool filling up and lawn care and leaks that have nothing to personally do with us.

-dated ac units are loud and sound like planes taking off, hard to enjoy balconies because of the noise

-renovations weren't functional enough to raise costs and are just generic buzz word upgrades to appear more luxurious but don't actually improve quality of life and just cost more

I could go on.... I moved to a new apartment and the reviews seem so fluffy but I haven't been here long enough to pro/con new unit yet. I'm hoping some of your comments will shed more accurate light on what different apartment complexes are really like! Thank you in advance for contributing!