u/butaretherecookies

Transphenoidal surgery in a few weeks... Give me some hope 😅

One night, a few weeks ago, it was hot and the doors were open. Well, a cricket got in the house 🙄 there is nothing more annoying than a loud chirping cricket keeping you up all night. Anyway, the chirping stopped pretty quickly and I went to bed, slumbering blissfully.

Morning came, and I went to take a drink from the water on my bedside table. Good thing I looked at my phone first. When I looked down at the cup, yep, there was the cricket, and there were a a couple very long very thin writhing parasitic worms in my cup.

After my soul left my body and I threw the water as far the fuck away from the house as possible. I looked up wtf I almost ingested. And here you go, so you can fuel your nightmares even more, if you wish:

https://en.wikipedia.org/wiki/Nematomorpha

So friends, we always👋check👋the 👏cup👏before👏 we drink. ✨🌠

I have a consult tomorrow morning with the neurosurgeon at Stanford. My insurance wouldn't cover this second opinion because it's a private research hospital. The coordinator for Stanford informed me that they would do this consult as a not billed appointment, and also they have done the authorization process for other people like me. It feels daunting. I do have surgery scheduled at UCSF next month. My partner thinks I'm going to jinx it all by trying to get a second opinion. But what the hell, I just want to try and make sure this operation is only done once. Anyone else go through this process and be successful with insurance?

Hey all. 6' tall woman with moderate rotary scoliosis, and I'm realizing now that part of improving my mobility is going to be investing in decent shoes.

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My feet are 11w-12; I've got bunions and a moderately wide foot in general. I just learned I've got a very slight difference in leg length that might be helped with orthotics.

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Any gals with similar size feet or issues? Tell me what shoes you like. Budget options appreciated ❤️

Came into Physical Therapy for pelvic floor dysfunction, delved into the litany of my year (hospitalization for tubo-ovarian abscess, hysterectomy, emergency laproscopy four months later for ovarian torsion) and finally the acro and my other oddity, ocular pharyngeal muscular dystrophy (OPMD).

Boy was the therapist just blowing through pages on her notepad. Anyway, she was great and set me up with exercises to help my pelvic floor.

She was also great about delving into the other stuff and that was incredible. Turns out my left side, hand, shoulder hip and knee are all *significantly* weaker than my right side. Which i atleast odd in that I'm left handed.

It was demoralizing at first to be shown the profound loss on my left side that I've apparently been compensating for.

She has no idea why, suggested I get MRIs.

Before I go down another medical rabbit hole and appt after appt (this is an expensive and time consuming hobby...)

Anyone other acromegliacs find they developed profound weakness which improved after surgery and/or medicinal control? Ive already got to schedule a colonoscopy that I'm not jazzed about. Do I really need to get more imaging? Ultimately I do want my strength back, if possible. Just, I don't want to waste time with imaging that ultimately results in "yeah it's acro and yeah give it time"

Anyway, let me know your experience. I read all your folks posts and soak it in. I'm just trying to wrap my mind around this disease.

I am scheduled to start pelvic floor PT next week, and I am just hoping that it begins to help me. My main symptoms are recurrent BV, chronic constipation, and disabling abdominal and pelvic pain. Sometimes it is painful to urinate, and I have constant gut sounds. The most bothersome part for me is that my constipation involves yellow mucus in my stools, sometimes tinged pink. Perhaps that's normal with constipation. I guess I worry that the surgery left me with scar tissue or an internal infection. I'm reaching out to see if other people experience these issues form pelvic floor tension, and whether you got help from PT.

I take 25mg amitriptalyine and Zyrtec for the pelvic pain, have noticed no relief. My surgery was for a 11cm hemmorhaghic ovarian cyst that caused my ovary to torse twice; ovary was very dead and had to be removed. Currently have just own ovary, hysterectomy last Nov.