u/jellypuss0165

Either earlier on in the season, or in promo interviews, Baylen mentions that they will be getting deeper into other things she struggles with, like bipolar disorder and endometriosis. At some points I wanted to quit watching because of all the forced drama, but I stayed, waiting for the storyline to shift. Next episode will be the end of the season, and now I’m looking back confused.

Was the struggle with bipolar storyline (I don’t know a better word to use) just her forgetting her meds when going to Myrtle?? And endometriosis; was that just going to the doctor and kinda getting a whole lot of nothing?

It’s frustrating that this season is just wedding planning and family drama. I’m interested in Baylen’s story because I’m someone who struggles with many chronic physical and mental health conditions, and I see myself in her in many ways. I just wish there were more a focus on disability advocacy and acceptance, which used to be something Baylen seemed passionate about. But I guess that probably doesn’t bring in the views (and $$$’s).

I think they say something like ‘it’s never safe to drink and ride’. I’m so confused at what their point is. Like it’s obviously a much safer choice to be a passenger when you’ve been drinking than to drive yourself.

So I’ve been picking up more hours at work, and therefore am using my brain for tasks more than usual. I’ve noticed myself going into autopilot when interacting with customers, and sometimes I’ll mess up my ‘script’ by saying a phrase at the wrong time of the transaction. I also will feel dissociated, like I can’t focus my eyes or snap back to the task at hand. Lately when I get off of work, I’ll sit in my car for a while zoning out (usually on my phone) before I drive home, and sometimes sit in the car for a bit before going inside.

I’m curious if other people experience something similar to this and/or think this is narcolepsy related. It doesn’t feel quite like brain fog, but maybe similar?

So I’m traveling back to my home state next week to visit my family, as my sister just had a new baby. One of my friends wants to hang out when I’m back there and asked if I wanted to go hiking with her and a few other people, but they would be meeting up around 3am. I also fly in the night before at 11pm. I feel like it wouldn’t be the best idea to go on a really strenuous hike after not getting good sleep the night before.

In addition to narcolepsy, I also experience dysautonomia symptoms including possibly post-exertional malaise. I’ve experienced deconditioning in the past year due to multiple reasons, and I worry that I am just not physically capable of an excursion like what this one would be.

It would be ~10 miles, taking most of the day, and is rated ‘strenuous and difficult’. It’s been a goal of mine to do this hike, but even when I was more fit, it would be something that I would want to train for. I haven’t hiked in a while, as I’m living in the Midwest.

I feel like I should just decline the invitation, but the “don’t let disability define you” ableist part of me feels like it’s a cop out. I’m being delulu, right? Should I just say no? What do I do??

Also, to add: I haven’t seen this friend in a year, and she doesn’t know about my narcolepsy diagnosis, so I feel weird bringing that up as what feels like an excuse.

I posted here previously (I tried to link it, not sure if it’ll work right) about my issues with delays in the process of getting my medication.

My doctor did submit the prior authorizations, and they were denied. Appeals were submitted, but I can’t remember if we heard back on them or not.

My doctor called me and let me know that they were closing the clinic down in less than a month. Basically she kinda just told me good luck with trying to get insurance to cover anything and with finding a doctor that will prescribe meds for narcolepsy (specifically sodium oxybates)

I’m in a more rural area when it comes to healthcare, and this clinic was already 2 hours away in a different state. Before I was referred there, I saw a pulmonologist who specialized in sleep.

Who do y’all see for your narcolepsy? Would my pcp prescribe me meds? Are there any other medications that could help me (specifically with sleep) that doctors will prescribe?

Let me know if you have any experience with this, or any ideas. Thanks!!

I’m looking for recommendations for toilet paper that will hold up long enough to, um, get the job done, and that doesn’t disintegrate as soon as it gets damp. Ladies, I know you know what I’m talking about… 🫥

I bought a Costco sized bottle of benefiber after my gastroenterologist recommended I take it everyday. I’ve gotten less than 1/4 of the way through it because I haven’t used it in so long. Does anyone have recipes or ways that they use their fiber that they’d share??

So I got my period yesterday, and my eating choices have been a little questionable: homemade healthyish bars, cherries, blueberries, half a bag of dill pickle chips, and half a bag of white cheddar cheetos puffs was pretty much it for the day (not a conscious choice, just grazing after taking my adhd meds, so I forgot to eat meals). I was scrolling in bed and felt like I had some gas pain, so I went to use the bathroom. This did alleviate the pain, or at least distract from it, as I had watery, loose stool and immediate feelings of presyncope.

Having a small bathroom was helpful in this circumstance, as I could reach washcloths under the sink, wet them and put them on my neck and chest. Not sure what the science is, but I’ve noticed cold water helps me ‘stay with it’ and not pass out. And it helped. Either that or the praying. I hate passing out. It’s so scary and I get so panicky cuz it feels like I’m dying. It’s so vulnerable too. Once I feel steady enough to move, I laid on the ground and propped my feet up on the tub to help my blood flow. Not my proudest moment, but I texted my ex bf. He was with me the last time I passed out and I just felt so alone.

I knew I needed some Imodium so I wouldn’t hafta keep repeating this all night, but it was down 2 flights of stairs in my bag of essentials in my car. So I braced myself and got it. By the time I got back up to my apartment, I was feeling the need to ‘go’ again, so rinse and repeat the steps above, but including taking the Imodium, and… calling my ex. He didn’t answer as it was the middle of the night, but called me right after. Apparently he had just woken up before I called. Anyways, I guess tonight (this morning) was a reminder to take care of myself, even when I’m going through a lot, because I could be going through even more if I slip up.. lowkey forgot I had ibs because my other issues have just been taking precedence in my life, but yeah. Still hanging out down here till I get the motivation to move, take care of yourselves irritable bowel baddies😘