u/rainboweyess

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Hi! I live in a house with shared walls and I have new neighbors that keep playing music so loud I can hear it, is it normal that I get agitated by this? I have to have my noise canceling headphones on for hours a day and I feel like this isn't oké.

The reason I'm asking is because I'm sick and couchridden from a chronic illness, so I'm more sensitive to noise of all kinds, so I just wanted to check if I'm just being too sensitive.

Hi! I live in a house with shared walls and I have new neighbors that keep playing music so loud I can hear it, is it normal that I get agitated by this? I have to have my noise canceling headphones on for hours a day and I feel like this isn't oké.

The reason I'm asking is because I'm sick and couchridden from a chronic illness, so I'm more sensitive to noise of all kinds, so I just wanted to check if I'm just being too sensitive.

So I have a 11y/o sheltie and he's my whole world. I am couchridden and mostly housebound due to illness, I live a very isolated life so it's just him and me.

My dog is reactive and it takes a lot out of me to walk him, but we have made lots of improvements along the way. He gets very short walks a couple of times a week atm because I'm not doing so well health wise, but I make sure he gets lots of sniffing time and mental stimulation and he seems happy to me (believe me when I say I'm very hypervigilant when it comes down to his happiness).

So my health does take a hit from having to take care of him and it's a big stressor for me, even though I would never give him up.

Now the last couple of weeks his IBS has flared up and I have tried everything that I could for so many years to make sure his IBS got under controll, and it did for a long time, but now it has gotten worse and he even poops in the house sometimes at night. It is just so stressfull and I'm afraid that if this gets worse I would have to euthanise him because I woudn't be able to take care of him, and there is no way he would be better off with someone else considering his age, health problems and behaviour problems.

Sometimes I feel relieved about the idea not to have to take care of him, and part of me would feel lighter thinking about the IBS being the final straw to put him to sleep. At the other hand I woudn't know if I would ever get over the grief of not having him near me. Even thinking about him not being here one day, for whatever reason, even if he would die of old age.. I don't even know if I would ever get over it.

I feel selfish for feeling this way, but I guess I just needed to vent.

Hi! I have M.E and I have been stuck in a push-crash cyce for a years. This year I had a big crash from pushing myself yet again and this crash was a big one, this was also the reason I started learning about pacing for the first time. This was more than 4 months ago and after the first week after the crash I got out of the worst of it (the poisening feeling) but I haven't improved anymore after this.

I don't really know what's going on and I'm afraid I'm in rolling PEM, but I have been writing down my activities and how I feel everyday sinds the big crash and I don't see any correlation between them, I do however see that my symptoms still flucuate a lot due to hormone fluctuations, poor night sleep, heat waves etc.

So does anyone know what's going on?

-Am I in rolling PEM?

( this frightens me because that means I'm f*cked.. I can't do any less than I'm doing now, but also, I don't feel as bad anymore as in the first week of the big crash 4 months ago.)

-Am I still in a Crash even though not in the acute stage of it anymore?

-Is this my new baseline? (Doesn't make that much sense to me because I don't feel I have a steady baseline due to the fluctuations in symptoms.)

-Or does my body simply need more time to revover from the crash?

The unsertainty of it is driving me insane and I'm SO scared I'm doing something wrong with my pacing.

So I ordered a wishlist plant and I coudn't decide on the second plant I wanted to order because I coudn't find anything I liked that much, it took me a while before I realised I didn't HAVE to order a second plant just because I like to have multiple items when I unpack something and now I can't help but feel a bit dissepointed that I only have one new item arriving in a few days even though it's a wishlist plant that has been on my wishlist for half a year..

I noticed this a while back, that I can never just order one thing, it always have to be multiple things, especially when the shipping costs are higher.. what is this all about? How do I stop doing this?

So I get heartpalpitations from showering even though I only shower ones a week or so. I sit down on the floor because sitting in a chair is more difficult (my orthostatic intollerance gets worse when I can't pull my knees up).

So I try to wash myself at the sink in stead but than I have to stand and get my arms above my shoulders to wash my hair (which is shaved btw, but my scalp gets really itchy if I don't wash it every 3/4 days or so.

How do you guys handle this? Any advice?

I just can't, there are way to many symptoms that make it absolutely impossible for me to relax or get comfy when laying down. I often just dissociate from the overwelm but this makes me feeling too spaced out so I try to distract myself (when possible) with scrolling because I cant focus on anything else. It's a constant symptom managing situation for me and it feels like a relentles ungoing torture. Anyone else? Or are most of you able to relax?

Hi!

I crashed real bad in March because I was in a push crash cycle for 13 years without me knowing. And have been learning how to pace. I havent crashed anymore sinds March but my baseline is a lot lower now, at least, I think this is my new baseline considering my last crash was months ago. I was was wondering how long it can take to improve a baseline after a crash? I know this will be different for everyone but like to hear your experience with it. This new baseline is extremely difficult for me and it also makes me quite anxious to think this will not improve anymore.

Hi! I have cptsd as well as cfs and I think having a huge inner critic is one of the symptoms of cptsd for me. It doesn't mix well with cfs because I can cause myself a lot of distress by treating myself poorly.

Like, when I think I did too much and I'm afraid I'm going to get PEM, instant blame and shame attacks because I should have been more carefull.

I keep feeling like I'm messing up my pacing even though sinds I started learning about pacing 4 months ago or so, I haven't had PEM anymore, but everytime I'm having a bad day I feel like that's because of not being perfect at pacing yet and again, beat myself up over it.

Even when I'm awake at night not being able to sleep, I feel like it's my fault.

When I get dizzy because I didn't eat in time because I felt too sick to get myself something to eat and I forgot that I didn't have any snacks close by, I beat myself up.

The worst is when I feel those adrenaline spikes and I'm being very restless, I'm so worried I have caused myself to go into a crash and I blame myself for it.

This goes on and on even though I try really hard not to beat myself up, it happens anyway.

Does anyone struggle(d) with this as well and how to show up with more self compassion?

Sorry for my bad english today, having a lot of brainfog atm.

I have M.E for more than 13 years now, but I was slowly getting worse. About 3/4 months ago I crashed really badly and went into severe for a week or so and this scared the hell out of me. I learned that I was pacing all wrong (or better said not at all😬) and without me even realising I was in a push crash cycle.

So now I have been trying to pace and after 2 and a half months I felt a tiny bit of improvement but the heatwave in my country really messed this up again. I'm still relatevely stable though and haven't crashed anymore, just more bad days because of the warm weather but no PEM..

I am very insecure about my ability to pace well and I'm still learning, so I wanted to know if me staying somewhat stable and no big crashed anymore is a good sign, or my lack of more improvement a sign I need to improve my pacing more?

Also, my baseline is still a lot lower than before the big crash and this makes me quite insecure as well.

Like to know what your thoughts are☺️