I went to a neurologist around 10 days ago and he prescribed me gabapentin for my nerve pain but it's barely doing anything. I'm not sure how I'm not supposed to kill myself when I have to put up with living in this broken body every moment of every day.
If you want to know more specifics about the illness/disability let's assume that it's either physical or sensory (blind, deaf etc.) and it's severe and incurable. Husbands leaving their wives after they become suddenly disabled is so common that nurses are trained to warn the wife that he might want a divorce soon or cheat on her, what about you? Do you think you could outlast the difficulties that come with disability or would it be too much for you? Does it depend on if you're already married or not?
The amount of envy and jealousy I feel when watching abled people do anything I can't (cook, mod cars, ranching, have pets, go hiking etc.) has been ruining my life, it makes me act cruelly and aggressively towards my abled loved ones, it makes me unable to enjoy content about the topics I mentioned, I used to love watching car modding videos for example like chrisfix but nowadays I can't bring myself to because EVERYTHING that people can do that I can't makes me upset. How do I move past this?
Does anyone else feel like abled mainstream society and the medical industrial complex have both decided to team up to convince us that our lived reality and the discrimination we constantly face isn't real? Almost every single abled person I talk to seems to be convinced that doctors can do no wrong and even if they do it's not their fault, how do you not go insane when it feels like everyone and everything is trying to gaslight you into thinking your suffering isn't caused by doctors and abled people at large? I posted this on another sub and it got removed for being "doctor hate" whatever that means, hopefully that doesn't happen here.
Does anyone else here live in a developing country? I often feel lonely and like my lived experience is being discounted because I don't live in a country where people like us are afforded even the most basic of care, I've never had treatment for my most severe conditions (muscular dystrophy namely) because in my country the infrastructure just doesn't exist, EVERYTHING is inaccessible. Please don't bring me that bullshit about it being just as bad in the US or whatever, you truly have no idea how bad it can get if your reference point is the US.
Title basically, I'm in so much pain on the daily it's driving me to think of killing myself. I can't actually kill myself because my disability limits my mobility to an extreme degree but the thoughts are still there regardless.
I'm asking this to get a gauge/measurement of how woke Algerians are when it comes to ableism, what do you think of the word? do you think it's acceptable to use? do you view it as a slur similar to the N-word or not?
I have pretty severe muscular dystrophy (can't stand, can't sit up on my own, have to drink using a straw etc.) and unfortunately due to my lack of access to any sort of treatment my body is in a deplorable state. I've been wanting to get more into writing and reading recently but I find it extremely hard to even begin doing so because I'm in constant agonizing pain, my right leg in particular is more degenerated than the left and thus hurts a LOT more. I'm at my wit's end honestly, I wish I had a way out.
Title basically, my family doesn't own a car and buses/taxis aren't accessible so whenever I need to go anywhere outside of walking (or I guess wheeling) distance my dear mother has to pay a chauffeur to take us there and back, these car rides are extremely painful and tiring for me because I have to sit unsupported with my spine bent sideways cuz of my scoliosis. I wish we had dedicated services for transporting disabled people like so many other countries do, I'm in a lot of pain every single day and this lack of transportation is one of the many the many obstacles preventing me from accessing physical therapy and other essential care for my well-being.
This pain is destroying me from the inside out, my entire leg feels like it's about to explode and constantly burns, doctors refuse to do anything, I'm so tired and at my wit's ends I can't even make this post much longer.
Any of you ever make a post and just get a spontaneous figurative Noah's flood of ableists in your comments? it always continues to amaze me how entitled and arrogant abled people are, they all have an incredibly paternalistic and dismissive attitude towards us.
Made the mistake of sharing a take that's very common in disability spaces and trying to be nuanced when I should've just shut up like a good cripple and let the abled people talk over me.
Title basically, I'm trying to get a gauge of how big the overlap between being pro extinction and disability is, can anyone relate to suffering immensely due to disease and medical neglect?
Title basically, I'm in constant never-ending physical agony due to my muscular dystrophy and lack of access to treatment, I wish I had an easy way out of this suffering. Read Judith Heumann's memoir if you haven't already, I think it should be essential reading for anyone looking to learn more about arguably the world's most oppressed people.
It's a very long story but basically I'm a disabled guy with muscular dystrophy who has suffered an obscene amount throughout my life, in recent times due to my chronic pain I have begun directing my anger at my abled peers both online and IRL. I say very cruel things to my abled friends online sometimes and feel bad later, I've already asked in a bunch of communities but no one seems to be able to truly relate to my experiences, every time I try speaking about my dislike of ableds I feel like an alien. How do I stop this? How do I access pain management or any sort of care in general for my illness? How do I move on? How do I stop stewing in the pot of hatred, jealousy and envy?
Just trying to find someone to relate to I guess, feels like I've been neglected my whole life and I've turned into a very bitter, miserable, awful person to be around because of it. It doesn't help that I feel unwelcome in most disability spaces because of my experience either, everyone wants to pretend it's all rainbows and sunshine when in reality it's actually all doom and gloom, it's even gotten to the point I got silenced because of my hatred for ableds at one point, don't feel great, hope this post reaches my target audience of burnt out miserable people.
The pain is ever-present and extremely agonizing, I wish there was a way out, please don't tell me to speak to my doctor, I have horrible access to healthcare
Title basically, my lived experience has turned me into a very miserable and terrible person, it got so bad I got myself banned from the disability sub for complaining too harshly about ableds, "less" disabled people just don't seem to get it, maybe some of y'all can relate to me? or am I just a selfish piece of shit?
I hate seeing everyone around me get treatment, get medical attention, get BETTER meanwhile I can't even be afforded the most basic of care for my muscular dystrophy, I'm so jealous, so envious.
Title basically, I really hate it when people who are similarly ill (progressive neuromuscular conditions) imply that my lack of access to treatment is my fault, that my suffering is due to my own mistakes and making the "wrong" decisions when that is demonstrably not the case, they make it sound like I'm playing the victim and am giving up but is it so bad to acknowledge reality? Yes, I am a victim. I am helpless. I have little hope of ever living a fulfilling life, is it so wrong to acknowledge my lived reality instead of deluding myself into thinking it's somehow all my fault?