Sometimes throughout my life it has felt like I'm not discriminated against or excluded because I'm disabled but more because I'm genetically predisposed to disability. This mainly rears its head in the way it feels like the healthcare system and doctors in general collectively discarded me after giving me a half assed MD diagnosis and realizing that I can't be cured and the assumptions some people have about me. I have zero evidence to back this up but I've always felt that if I'd been for example paralyzed in an accident or damaged in other more reversible/less permanent ways I would have had a lot more people advocating for me and helping me recover as much function as possible assisted by a child's natural ability to regenerate and recover quickly in hopes that I would only be mildly disabled and thus a more productive adult worker in the future and less of a drain on resources. I've also felt that most people who haven't known me since childhood/know what my deal is just assume I had a disabling accident because the way my disease presents doesn't affect my cognitive abilities, speaking abilities (for now at least, idk how bad it'll get in the future) and most importantly how pretty my face is. I've had teachers say to my face before (probably intending to make me feel better) that "well at least you're handsome" like they would treat me worse if I wasn't? or like that having a genetic condition (or even congenital ones maybe? idk abled people's perceptions of these things or if they even know the difference) somehow makes it utterly exceptional to have a pretty face? I just feel like there really ought to be more awareness about this, if I wasn't so uneducated and constantly tired and in pain I would write a book or essay about this.

Sometimes throughout my life it has felt like I'm not discriminated against or excluded because I'm disabled but more because I'm genetically predisposed to disability. This mainly rears its head in the way it feels like the healthcare system and doctors in general collectively discarded me after giving me a half assed MD diagnosis and realizing that I can't be cured and the assumptions some people have about me. I have zero evidence to back this up but I've always felt that if I'd been for example paralyzed in an accident or damaged in other more reversible/less permanent ways I would have had a lot more people advocating for me and helping me recover as much function as possible assisted by a child's natural ability to regenerate and recover quickly in hopes that I would only be mildly disabled and thus a more productive adult worker in the future and less of a drain on resources. I've also felt that most people who haven't known me since childhood/know what my deal is just assume I had a disabling accident because the way my disease presents doesn't affect my cognitive abilities, speaking abilities (for now at least, idk how bad it'll get in the future) and most importantly how pretty my face is. I've had teachers say to my face before (probably intending to make me feel better) that "well at least you're handsome" like they would treat me worse if I wasn't? or like that having a genetic condition (or even congenital ones maybe? idk abled people's perceptions of these things or if they even know the difference) somehow makes it utterly exceptional to have a pretty face? I just feel like there really ought to be more awareness about this, if I wasn't so uneducated and constantly tired and in pain I would write a book or essay about this.

Did you know that already? do you have many disabled people in your life? maybe loved ones? thoughts on this?

Hello, for context I am a fulltime powerchair user due to muscular dystrophy, my condition is genetic and will likely never be cured at least not until we can genetically modify adult humans safely which is quite far away, I just wanted to share this thought I had about the phrase "rabi ychafik" that I hear quite often when I go outside. If you have never heard of models of disability before I would advise you to do a quick search to find out about the three big ones, the medical model, the moral model and the social model. Under the medical and moral models disability is often seen as an individual problem with the person, something to be fixed, a flaw, a "3ayb" as we say as opposed to the social model which differentiates between the impairment (a person's limits due to their condition) and disability (the person being disabled because of unnecessary systemic obstacles in their way). I have a lot to say about the medical model and how much of a double edged sword it is but for the purposes of this post I'll be focusing on the moral model, to me at least having heard this phrase said to me by strangers constantly for most of my life now I've come to realize something which is that the phrase "rabi ychafik" while well intentioned and very kind on the surface in reality it only serves to deepen the clutches of ableism over mainstream society, it implies that the problem is not with society or our environment for being inaccessible but rather with the individual for being sick, it implies that their disability is some sort of a moral failing or problem that only divine intervention could possibly hope to save you from, it always centers the healing of the disabled person when in reality some disabled people are never going to be healed or don't want to be because their disability is a core part of their identity. We don't live in the age of miracles anymore, I can't go up to Jesus AS and ask him to touch and heal me even though I wish I could sometimes. Anyways sorry for rambling I just wanted to get that out there, I would advise you all to learn more about ableism and read books by disabled authors to learn more about how much ableism is normalized as a prejudice, peace out.

Hello, for context I am a fulltime powerchair user due to muscular dystrophy, my condition is genetic and will likely never be cured at least not until we can genetically modify adult humans safely which is quite far away, I just wanted to share this thought I had about the phrase "rabi ychafik" that I hear quite often when I go outside. If you have never heard of models of disability before I would advise you to do a quick search to find out about the three big ones, the medical model, the moral model and the social model. Under the medical and moral models disability is often seen as an individual problem with the person, something to be fixed, a flaw, a "3ayb" as we say as opposed to the social model which differentiates between the impairment (a person's limits due to their condition) and disability (the person being disabled because of unnecessary systemic obstacles in their way). I have a lot to say about the medical model and how much of a double edged sword it is but for the purposes of this post I'll be focusing on the moral model, to me at least having heard this phrase said to me by strangers constantly for most of my life now I've come to realize something which is that the phrase "rabi ychafik" while well intentioned and very kind on the surface in reality it only serves to deepen the clutches of ableism over mainstream society, it implies that the problem is not with society or our environment for being inaccessible but rather with the individual for being sick, it implies that their disability is some sort of a moral failing or problem that only divine intervention could possibly hope to save you from, it always centers the healing of the disabled person when in reality some disabled people are never going to be healed or don't want to be because their disability is a core part of their identity. We don't live in the age of miracles anymore, I can't go up to Jesus AS and ask him to touch and heal me even though I wish I could sometimes. Anyways sorry for rambling I just wanted to get that out there, I would advise you all to learn more about ableism and read books by disabled authors to learn more about how much ableism is normalized as a prejudice, peace out.

Title basically, please don't give me any of that nonsense about there being someone for me out there, I'm looking for people with similar experiences to mine where they have been pushed into the fringes of society and thus barred from marriage due to factors entirely out of their control. If you are one of the aforementioned people please share your story, advice and any words of wisdom you might have, thank you in advance.

I'm curious to hear both genders' opinion on this but especially women as they are the ones who lose "value" and frequently end up destitute with children if they get divorced without papers, would you ever accept a marriage that's religiously valid but legally invalid? the only real scenario I can think of where this would be necessary is where two people who are too disabled to work want to get married without losing their benefits which they often need to survive (you can't be married while on disability benefits in Algeria and most countries around the world, yes this is a form of marriage discrimination)

Title basically, I find it difficult to not be in a constantly sour mood due to the amount of pain I'm constantly in, it's just hard to be nice to people when I'm in so much pain I can't even function well enough to engage in my useless hobbies let alone be productive, I've been on SSRIs and antipsychotics for 3 months now and I was really hoping they would entirely fix my mood issues but it appears that as long as I remain untreated for my LGMD I won't be able to ever be in a good mood

Does anyone know any disabled/chronically ill sheikhs/imams? I mostly ask because I'm disabled myself but I've never seen someone like me act as a religious authority figure, it feels like our specific issues and lived experiences as disabled people aren't thought about by the ulemas at all, thank you in advance.

Have you ever experienced a suffering so profound, so ubiquitous, so insurmountable that words struggle to even describe it? All I can feel is the sensation of pain rushing through my body, my inflamed joints and ligaments, my struggling heart and lungs, the human body is so fragile unfortunately, one small mistake in my genes and it leads to a lifetime of unfiltered unadulterated suffering, on one hand I hope someone here can relate but on the other I wouldn't wish this upon my worst enemy.

Hello, does anyone know of any wheelchair accessible swimming pools in Mostaganem? if so how is their customer service? will the staff be able and willing to help the wheelchair user get in and out of the pool? is there a risk of drowning due to neglect? I ask all this because I have muscular dystrophy and am incredibly weak but I still want to swim at least once in my life, thank you in advance.

Hello, does anyone know of any wheelchair accessible swimming pools in Mostaganem? if so how is their customer service? will the staff be able and willing to help the wheelchair user get in and out of the pool? is there a risk of drowning due to neglect? I ask all this because I have muscular dystrophy and am incredibly weak but I still want to swim at least once in my life, thank you in advance.

Hello, I'm in constant pain and agony and always tired and fatigued but unfortunately life doesn't stop even when my body does, do any of you know a good way to be able to push through the pain, grit my teeth and simply be productive? I used to be able to do this when I was younger but now at 20 all I feel is never-ending discomfort, aches and fatigue and it makes me want to curl up into a ball and die, it's been over a decade of this, please make it stop.

Hello, I'm in constant pain and agony and always tired and fatigued but unfortunately life doesn't stop even when my body does, do any of you know a good way to be able to push through the pain, grit my teeth and simply be productive? I used to be able to do this when I was younger but now at 20 all I feel is never-ending discomfort, aches and fatigue and it makes me want to curl up into a ball and die, it's been over a decade of this, please make it stop.

Title basically, was just wondering if there are other people here who deal with nigh constant fatigue, I'm always too tired to do anything productive, it really sucks, it feels like I'm going to keel over and die any second now.

Why do people treat being in bad health (chronic illness, over/underweight, addiction, genetic conditions etc.) as something that reflects poorly on our character and moral standing as a person when in reality the human body is very fragile, health outcomes are mostly genetic and disability is just a part of the human condition, some examples I can think of off the top of my head is when people justify putting their aging parents in care homes by saying "They didn't take care of their health when they were younger so it's their fault they can't move/think properly now" which is complete bullshit, unempathetic and simply not based in reality, or like when people tell a disabled person that the reason they aren't getting better/cured is because they don't pray enough, believe enough, they need to get closer to Allah even if that person is already very devout or the people that say "the only disability is a bad attitude" which is obviously wrong and trying to downplay the randomness and unfairness in how any of us can become severely ill at any moment. Thoughts?

This post is more aimed at my fellow genetic condition sufferers, do any of you ever feel like you're discriminated against not because you're disabled but specifically because you're genetically disabled? This is a thought that has been bouncing around my head for a few months now but as someone with pretty severe muscular dystrophy who has NEVER had access to any treatment and is currently in 24/7 agony due to it I've always felt that the medical system and doctors all collectively discarded me once they found out I have MD, I haven't even gotten genetic testing to know what type of MD I have, the neglect is that bad. It's like they figure out you can't be cured and what few treatments there are only have minor effects and decide you're not worth saving anymore, like we don't deserve treatment and the happiness and improvement that comes with it just because our genes are shittier, I've always had people assume I use a powerchair because I had an accident too which rubs me the wrong way NGL, it feels like they're implying that my witty self and admirable character (according to other people, not trying to toot my own horn) can't possibly coexist with poor genes, like my (once again according to others) handsome face and intelligence aren't characteristic of what people usually expect from people who are genetically disabled, I hope what I wrote makes sense, I'm aware this post might rub some people the wrong way because it sounds like I'm trying to draw a line in the sand between acquired disabilities and genetic/congenital ones but I swear I'm just trying to start a discussion here. I'd be happy to elaborate more in the comments if people engage with this post.

If you're physically disabled in Algeria and don't have a LOT of material and financial support from family you're not allowed to have anything more than the bare minimum, you're not allowed to dine out, not allowed to go to doctors, not allowed to go inside a mosque, not allowed to go into libraries, not allowed inside most businesses, not allowed to study what you want, not allowed to take public transit, not allowed to be an integrated member of society in general, you will have none of your care needs met and you will suffer and be forced by everyone around you to be patient, keep quiet about your blatant oppression, be gaslit by medical professionals into thinking you're not oppressed and say alhamdulillah regardless. حسبي الله ونعم الوكيل.

Do any of you ever think about disabled emancipation and think we've all just collectively tricked ourselves into thinking we deserve equal rights? I mean think about it, our bodies/minds are just fundamentally broken often through no fault of our own or someone else's, should it really be society's responsibility to care for its less capable members? do we really deserve that? I remember mentioning to my therapist that disabled rights and our emancipation was all I could think about in recent times, it's been consuming my mind, the only thing I think about it is it, it's the only thing I wanna talk about, the only thing that gets me to wake up in the morning yet I can't do a damn thing to make my dreams of a society where I am valued real. It just all feels so futile doesn't it? Maybe we've all deluded ourselves into thinking we deserve to be uplifted and cared for as a coping mechanism, maybe we realize how we're so utterly fucked that we can't do anything but wish society would accommodate us.

Title basically, I ask this question mostly to gauge social norms and attitudes about disability in Algeria, I understand the answers to this question will vary depending on the type (physical, mental or sensory disability) and severity but for the sake of the question I'm keeping the disability up to interpretation, disabled people STILL don't have marriage equality in most countries around the world and I think the first step to changing that is making people aware of it.