u/I-am-a-cactus2324

Mon copain aime beaucoup les jeux vidéos, jusque là osef, beaucoup de monde aime ça, moi je n’aime pas beaucoup ça, et je ne comprends pas comment on peut passer autant de temps dessus, mais soit, chacun ses passions.
Ce qui me dérange, en revanche, c’est qu’il joue pendant les repas quand on est à table tous les deux, et on parle pas. Ce qui me dérange, c’est de l’entendre gueuler parce qu’il a perdu, et d’avoir à subir sa mauvaise humeur après. Et ce qui a fini de me blesser c’était hier soir : le ciel était trop beau, on voyait parfaitement les étoiles et puis je vois une étoile filante puis une deuxième. Je vais pour lui dire, je lui demande de venir. Il vient regarder le ciel 1 petite minute et puis il se casse. Je revois une étoile filante, je lui dis et il me répond « ah mais je les loupe toutes » alors je lui dis « bah en même temps tu te casse, donc logique », il hausse le ton mais je comprends pas ce qu’il dit. Bref. En fait c’est que je me demande où sont ses priorités. Est-ce que les jeux vidéos sont plus importants que de regarder les étoiles filantes avec sa copine ? J’ai dû le convaincre de venir, et il est venu pour regarder le ciel avec moi, et c’était chouette, c’était romantique, mais j’arrête pas de me dire que si je l’avais pas fait il ne serait pas venu.

It’s something about me I’ll never understand. I feel shame about everything I do. For instance I decided I’d start working out and be more active…my boyfriend is very athletic and even is a martial arts teacher. He said he would help me whenever I’m ready. But WHY do I work out in secret then ? Why am I working out as if it was the most illegal thing on earth and that NOBODY should be aware of it ?

It’s mostly like that with my loved ones. My friends, my parents, my boyfriend. I never open up to them because I feel immense shame. I don’t share the things I do because I feel shame. Hell, I once had a meltdown because my boyfriend had found a video of me on my phone. The irony is : I have no problem sharing things like that on the internet to tons of strangers, but the minute I have to be vulnerable with someone I know it feels like the end of the world.

I’m really proud of myself. What completely changed is that i now live with my boyfriend in the countryside. We share the food and the expenses and the closest store is a 20min drive away. Now : I still eat big food quantities and I still have binge urges and they’re really BAD. I’d say I have food noise almost all day long. It’s hard. But damn I’m proud of myself and I hope It’ll keep going this way !

Hello,
It’s always been a dream of mine to do ballet. However I’ve been diagnosed with hEDS a year ago and i started to experience pain during flair ups and general exhaustion. Would ballet be too risky for hypermobile folks, considering the risk for injuries etc. I want to note that im an inexperienced adult, and I would do ballet recreationally. Thank you in advance !

I don’t know if this is a common experience. My whole life I didn’t know I had HEDS. I was experiencing pain sometimes, but very mildly and it didn’t affect my day to day life. It seems that it got worse all of a sudden, in just under a year, when I started working last September. My job involved me walking a lot, rarely sitting down. I could ignore the pain, the dizziness sometimes. But some other times not. I started experiencing pain I had never felt like in my shoulders, my fingers, my wrists. Now I feel like I got run over by a train every time I do a slight physical effort. I’m so extremely exhausted. Sometimes I don’t have strength in my fingers to hold stuff. I have to lay down all the time and I feel like a burden to my boyfriend. I feel so lazy and useless. Sometimes I feel like I’m faking it or i exaggerate the way I feel. That just sucks and I hate being such a burden.