u/Confident-Till8952

I’m trying to get blood testing done. And I wish you could just walk into a blood testing center and order the blood test you want covered by insurance.

And I also wish you could do a 10 minute interview process before paying for a doctor. Because so many things could be worked out in a short conversation that let you know you shouldn’t be seeing that doctor. Yet you have to pay hundreds or thousands of dollars just to sit down and talk to these people.

Anyway …

I want to get different blood tests. A general baseline blood test, but also some added things like electrolytes. And I just want help figuring out the names for different blood tests and how to retrieve the information.

I want Lyme testing, but I don’t want the lab to just give me a generic Lyme screen. I want a copy of the actual results and the specific assays performed.

And obviously, I want something from the ILADS perspective.

Can you help me think of anything else to get tested for?
Can you help me communicate this to a physician?
Because chances are, I’ll be seeing a general physician who doesn’t even know about any of this stuff having to deal with lyme, and better yet it doesn’t believe in it.

I just wanna have some bloodwork done for myself and also before I go to specialist. Unless you think that’s a bad idea? I’m open to discussion. Tysm :)

CBC w/ differential
CMP
Magnesium
Phosphorus
Urinalysis
HbA1c
Lipid panel
Blood pressure
Lyme testing — [your requested testing approach]
Review age-appropriate cancer screening

I feel like I get dehydrated so easily.
So I wanted to get a blood test taken one day. Two days later. Then another two days later.

And then try that on three different weeks.

Just to demonstrate the different fluctuations that my body goes through in someway.

But maybe that’s going to out of my way.

I’m also trying to gather information on only for specialists for my own guidance but to build a disability case.

Like a center.

Nothing bad happens to them. Its like a rehab or mental health center.

With specifically trained people.

Its not like narcissism is full on psychosis.

But its a highly manipulated and fabricated version of reality.

And it ruins so many lives.

The people who run the center all have full awareness of what narcissism really is.

You can send em away for weeks at a time lol

The last time I bought herbs was maybe five or six years ago.

I was wondering where people are getting quality and reliable tinctures nowadays.

I have found herbs that help me with symptoms and healing damage.

And herbs that seem to have a high possibility of helping with the antibiotic/antimicrobial aspect of the treatment.

I am mostly really interested:
Teasel Root
Sida Acuta
Houttuynia cordata
Alchornea cordifolia
Istasis
Otoba bark - people still using this?
Olive leaf - any experiences?
Cats claw - can over stim. immune/nerves be careful

Symptoms/pain/recovery:
Blue vervain: top of neck near skull pain
Black cohosh: side neck pain, traps, back
Kudzu: overall neck pain , cytokine quell

Pedicularis: muscle relaxant, a few sub species
Rose: works with nervous system to ease pain

Mullein root: musco-skeletal aligning, facial nerve pain

Stephania Root: eye nerve issues, facial nerve issues

Motherwort: relaxant, cytokines

Hawthorn (leaf, flower, berry): relaxant for heart muscle and other things, do research before use

Herbs from buhner’s lyme arthritis blend:

Devil’s claw
Horsetail
Nettle leaf
Dandelion + peppermint leaf
Celery seed

Digestive help:
Slippery elm
Marshmallow root
Black cardamom - also antidepressant and dries/opens sinuses

I know we all have lyme in different ways but this is how I experience it.

I’m going to explain it in a nutshell and then leave a longer but still concise explanation in the comments.

I just want to know if this is ableism and if there’s anything I can do about it.

In a nutshell:

I have an illness that on normalizes the signaling of the autonomous nervous system, making my muscles over contract and not fully relax. Particularly with repetitive movements like swallowing drinking water typing, etc..

I can even lose my voice very easily as well.

When I swallow, each swallow makes my muscles more and more constricted, and I’ve noticed that if I do a movement with that same or similar muscle group, it seems to offset that momentum.

So I will swish in the water in my mouth before swallowing, and that seems to not only help the function of swallowing, but it also seems to offset the constriction.

And I have really reactive muscle constriction in my forearms. There’s deeply embedded muscle knots in my forearm near my elbow, and it can get so bad that it constricts my fingers from moving. And then I also have burning freezing numbing nerve pain from the muscles irritating the nearby nerves. So essentially, I work around this every day and everything I do.

And one of the things I’ve realized helps me is to drink water at a certain height. So there’s this one counter space that I like to use that allows a range of motion that significantly reduces the risk of these muscle seizing up.

And basically my mom started throwing tantrums because she says that the swishing annoys her.

Meanwhile, I’ll avoid being in the kitchen for days, I only go in the kitchen when she’s not in there, but it’s hard to always time it perfectly.

But she’s asking me to carry water from the kitchen into other rooms of the house, bathrooms in my room upstairs.

And I just feel like I’m at the point where this illness has escalated to the point where it’s not worth risking.

So the last time I was in the kitchen, she started slamming doors and cabinets pacing around the house saying mean things through that she left the house for two hours and came back. And then told my dad that this house isn’t a safe space for her. Meanwhile, I had already left the kitchen after 20 minutes. So there was so much time she could’ve just used the kitchen.

Well, I can understand it’s annoying. I feel like she could definitely be more tolerant and flexible, especially with the fact that I I’m already doing so much to avoid her.

And my dad doesn’t want to stand up to her because he’s scared. He flat out, told me that. There’s been times where she gets into such a rage that she will actually attack him while he’s sleeping and he told me he doesn’t want to get to that point again. So he’s also asking me to do something that will risk these muscle cramps happening. He wants me to carry jugs of water up the stairs every single time I have to drink water. And since swishing is just a random part of how I drink water, I don’t know what it’s going to happen. This is very stressful.

And I see it as my mom just creating problems from a very narcissistic behavior.

But I’m open to counter points. I really am.

Is this ableism?

I’m going to explain it in a nutshell and then leave a longer but still concise explanation in the comments.

I just want to know if this is ableism and if there’s anything I can do about it.

In a nutshell:

I have an illness that on normalizes the signaling of the autonomous nervous system, making my muscles over contract and not fully relax. Particularly with repetitive movements like swallowing drinking water typing, etc..

I can even lose my voice very easily as well.

When I swallow, each swallow makes my muscles more and more constricted, and I’ve noticed that if I do a movement with that same or similar muscle group, it seems to offset that momentum.

So I will swish in the water in my mouth before swallowing, and that seems to not only help the function of swallowing, but it also seems to offset the constriction.

And I have really reactive muscle constriction in my forearms. There’s deeply embedded muscle knots in my forearm near my elbow, and it can get so bad that it constricts my fingers from moving. And then I also have burning freezing numbing nerve pain from the muscles irritating the nearby nerves. So essentially, I work around this every day and everything I do.

And one of the things I’ve realized helps me is to drink water at a certain height. So there’s this one counter space that I like to use that allows a range of motion that significantly reduces the risk of these muscle seizing up.

And basically my mom started throwing tantrums because she says that the swishing annoys her.

Meanwhile, I’ll avoid being in the kitchen for days, I only go in the kitchen when she’s not in there, but it’s hard to always time it perfectly.

But she’s asking me to carry water from the kitchen into other rooms of the house, bathrooms in my room upstairs.

And I just feel like I’m at the point where this illness has escalated to the point where it’s not worth risking.

So the last time I was in the kitchen, she started slamming doors and cabinets pacing around the house saying mean things through that she left the house for two hours and came back. And then told my dad that this house isn’t a safe space for her. Meanwhile, I had already left the kitchen after 20 minutes. So there was so much time she could’ve just used the kitchen.

Well, I can understand it’s annoying. I feel like she could definitely be more tolerant and flexible, especially with the fact that I I’m already doing so much to avoid her.

And my dad doesn’t want to stand up to her because he’s scared. He flat out, told me that. There’s been times where she gets into such a rage that she will actually attack him while he’s sleeping and he told me he doesn’t want to get to that point again. So he’s also asking me to do something that will risk these muscle cramps happening. He wants me to carry jugs of water up the stairs every single time I have to drink water. And since swishing is just a random part of how I drink water, I don’t know what it’s going to happen. This is very stressful.

And I see it as my mom just creating problems from a very narcissistic behavior.

But I’m open to counter points. I really am.

And I just wanna know is ableism?

Ebaumsworld

You don’t know how bad I wish I could go on Ebaums world.

That was such a fun website.

The whole layout with all the random tabs and everything.

Every week there was a set of about seven new videos and those were the viral videos.

And then I think every two weeks they used to do submissions from random people that were featured.

I wish I could get some of those photos. Probably lost in some worm hole of the Internet data storage.

Does anyone remember fuck shit piss?

You don’t know how bad I wish I could go on Ebaums world.

That was such a fun website.

The whole layout with all the random tabs and everything.

Every week there is a set of about seven new videos and those were the viral videos.

And then I think every two weeks they used to do submissions from random people that were featured.

I wish I could get some of those photos this lost in some worm hole of the Internet data storage.

Does anyone remember fuck shit piss?

Those of you who I’ve used teasel and found it to help or at least not be hurtful. Where did you buy it from? There are so many options. I’m getting overwhelmed. I feel like I have to do a massive trial and error phase of triangle all the different tincture, sources, and brands out there.

I tried it many years ago and it actually helped my tendon damage. It causes an intense treatment reaction that was so painful but the repairing it did on my tendon was so quick and effective.

I see that Dr. Marty Ross likes the Montana pharmacy and although I really appreciate his open-mindedness and his openness with the information he shares on his website. I remember checking out Montana pharmacy and it’s like an apothecary shop. Is this legit? I don’t know why it just feels like it could be potentially fishy, like some sort of business plan between the two of them.

Anyway, if there’s some source of teasel that you feel was safe effective in reliable and be really nice to know.

I know there’s some discrepancies between sub species

Sylvestris, fullonum, a chinese one, and several of their Asian and american deriving varieties

I also saw a company that uses high tech equipment to extract, teasel , tinctures, and root sap

TeaEl was so intense I remember not even being able to handle one drop so maybe lower potency is better but I’m open to all information.

Tysm.

I believe I have a dental infection or abscess that has gone into the deep tissues of my jaw and cheek
I am now having irritation and redness in my right eye and it does feel like it’s actually swollen more than the left. This started two days ago.

If I go to urgent care tomorrow , is that OK?
Or do I have to go right now or I’ll lose my eyesight by tomorrow

Due to really bad joint muscle and connective tissue pain I can’t even hold my mouth open and I have acid reflux and chronic postnasal drip so these things have made going to the dentist, a nightmare, and I’ve been avoiding it for a long time and I think at my own expense.

If it turns out, I have to take intravenous antibiotics or any antibiotics. Should I just also take antibiotics for Lyme Bartonella and co - infections?

I know if there’s another infection in there that’s bothering my eye that’s from my teeth. There is a lime in bartonella and another coin infections in there too.

Should I just treat the dental infection first?

And then take it from there?

Or will I just start a lyme reaction?

I’m trying to find this film, but I can’t find it anywhere.

I’d like to also find the other films and TV shows by this director.

I was able to find several other Japanese films, including two by this director on the other sites.

But there’s so much I can’t find.

I’ve been trying so hard to find Japanese films by directors that I like.

I’m so sad. There’s so many I can’t find.

I have found some I’m so far.

But I’m getting really into director Naoko Ogigami and I can’t find a lot of her work anywhere.

And other directors too.

Films I’ve been able to find another website so far:

The taste of tea
Kamome diner
Bread of happiness
Adrift in Tokyo
Evil doesn’t exist

And more

And I can’t find so much more with English subtitles and decent quality.

Sometimes I wish i had some more night owl friends

I used to talk to this Turkish guy at the 24/7 store.
Or stop by the late night gas station, the guy was Nepali.

Or 3am fork it over to this convenient store making empenadas in the back.

The world of the night settles in

Sometimes I wish I had some more friends

My friends used to stay up till sunrise drinking smoking laughing and walk home at 8 am like 3 miles home.

Ahh..

The night

Trying to move furniture in a room so I can lay on the floor cause my body hurts too much to lay in a bed. It’s just not comfortable to be on a bed.

But there’s all these random old, rusty, antiques and sofas around the room that no one even uses my parents like the aesthetic appearance of it .

Anyway, I haven’t been sleeping at all cause every time I go to lay down there’s a piece of furniture in the way.

So I asked if we could move it and I finally moved it around to where I’m somewhat comfortable and have enough space for my body to lay down but they refusing and acting like I’m asking for so much like I’m asking for some luxury treatment. Just asking for two pieces of furniture to be moved so I can have options where to lay down on the floor, depending on what my body is asking of me.

Yeah, well this old rusty antique unicycle looks good on this part of the room so we’re not gonna move it even if it gets in the way of you sleeping.

And then they try to act like I’m not making any sense as well

Saying:

“Why would you feel more comfortable on this part of the floor and not that part of the floor?”

Meanwhile, the floor is slanted and it’s literally like a 15‘ x 10‘ room. It’s so small. It’s just one room.

I had 8 feet width and 5 feet length of space because of this furniture. I just wanted to experiment with it to see if there could be a way to be more comfortable.

All I know is that if someone in your life, particularly if they’re experiencing a lyme related illness. Is uncomfortable in a room, and it happens to be your house. Or if you happen to be able to help. Go ahead and help them based on what they’re doing to try to live inside of a body that is doing a horrible thing to them.

Don’t just put the value of an aesthetic appearance of random antiques and furniture over them.

Also, this is an individual experience the muscle joy, pain that doctors put on symptom charts aren’t the same as the muscle pain you get from the flu, doing sports are working out too much, or impact like getting kicked or hit with something. It’s a whole other experience and level of discomfort.

This is one thing that no one has ever done for me after over 20 years of lyme is to approach it like

There is a person in there.
What does lyme feel like to you?
What is the lyme-related experience like to you?
How does it affect your body?
How does that affect impact your life?

Either people haven’t actually cared to understand
Or they cared about other people‘s lyme experiences that are more generic and similar to mainstream medical system narratives, or like other illnesses (aches n pains, arthritis)

To those who have it in a way that is constantly overlooked. I just wanna encourage you and know that your life has value and there’s simple beautiful things in this world worth experiencing.

Anyway, I don’t know how much longer I have. My body is tired. My heart is tired of pumping blood. It hurts to just have an anatomy. And it’s just so tired.

Probably won’t work out for me.

I never had the help. I found some treatment options that are really promising. I don’t have the finances or any family support.

I’m gonna miss earth. There’s so many cool things like nature art music. Earth is cool. Hahah

Anyway, its ok. Keep going. Keep doing trial and error till you find what works.

Maybe it will work out for me after all , but probably not. It’s an uphill battle for many with this illness.

The human experience suuuuuuucks

Whats going on??

People act like im too passionate about things
Or they’re just as passionate but they see me as competition

Or they say im unique, but then use me as a flavor of ice cream you only like sometimes.

No one seems to actually give a shit.

Like theres an actual person in there. Having a human experience.

No one gives a shitter.

Films like Little Forest

Anything like the japanese films: Little Forest?

I tried to watch the Korean little forest and I couldn’t get through it.

It felt so much more staged it didn’t feel real.

There was so much more camera angles.

And a lot of the copy choices were like a version of the originals camera work, but with more close-up motion.
And the characters look all airbrushed with backstage make up.
Just looks like it’s trying too hard.
Trying too hard to be perfect and captivating, while still retaining some of the originals value.

Am I the only one who feels this way?
I can’t be ..

It’s like obviously so much more superficial but I only watch like five minutes.

The male character who enters the scene is so ridiculous.

He has this perfect haircut that almost looks like a perm and a fancy jacket on and the way they’re talking is so contrived.

The Japanese one lets you in on a reality a bit more.
The Korean one is like trying to make its most pretty and dramatic presentation of something
A lot of the camera work is unnecessary and there’s like so many more camera angles. It’s kind of ridiculous. You could feel the set up of the scene.

The Japanese one at times feels like reality TV, a Vlog, a reenactment, a documentary with slice of life fiction, yet it feels like none of these things entirely. It just has aspects of all of them.
I know at times the Japanese one is like embellishing a bit too, but it just seems more subtle and down to earth overall.

I think some of the Japanese film is a critique of the familial emotional dynamics.

You can see the main character being affected by how her mom treats her throughout the film.

How it also affects how she is in other friendships, and in other ways.

I’ve seen people say the Korean adaptation has better character development.

But to me, there’s a balance in the Japanese film. That creates implication, where we inadvertently learn a lot about a character through certain instances and actions.

It’s just a lot more subtle, and the filmmaking is really tasteful.

I’m looking for anything else like this.

I also recently watched:

Adrift in Tokyo
The taste of tea

Anything like the japanese films: Little Forest?

I tried to watch the Korean little forest and I couldn’t get through it.

It felt so much more stage it didn’t feel real.

There was so much more camera angles.

And a lot of the copy choices were like a version of the originals camera work, but with more close-up motion.
And the characters look all airbrushed with backstage make up.
Just looks like it’s trying too hard.
Trying too hard to be perfect and captivating, while still retaining some of the originals value.

Am I the only one who feels this way?
I can’t be ..

It’s like obviously so much more superficial but I only watch like five minutes.

The male character who enters the scene is so ridiculous.

He has this perfect haircut that almost looks like a perm and a fancy jacket on and the way they’re talking is so contrived.

The Japanese one lets you in on a reality a bit more.
The Korean one is like trying to make its most pretty and dramatic presentation of something
A lot of the camera work is unnecessary and there’s like so many more camera angles. It’s kind of ridiculous. You could feel the set up of the scene.

The Japanese one at times feels like reality TV, a Vlog, a reenactment, a documentary, yet it feels like none of these things. It just has aspects of all of them.
I know at times the Japanese one is like embellishing a bit too, but it just seems more subtle and down to earth overall.

I think some of the Japanese film is a critique of the familial emotional dynamics.

You can see the main character being affected by how her mom treats her throughout the film.

How it also affects how she is in other friendships, and in other ways.

I’ve seen people say the Korean adaptation has better character development.

But to me, there’s a balance in the Japanese film. That creates implication, where we inadvertently learn a lot about a character through certain instances and actions.

It’s just a lot more subtle, and the filmmaking is really tasteful.

I’m looking for anything else like this.

I also recently watched:

Adrift in Tokyo
The taste of tea

Maybe not the right place for this

My mom is a nightmare and my dad Enables + isn’t so kind in his own way.

You call your mom when you have good news?

If something is bad, she actually makes it better?

What are those conversations even like?

Basically, I just survived high school. I knew if you were good at stuff and you’re funny you could get by but in reality I was hiding so many parts of myself, including suffering with lyme.

Now the lyme has gone really bad partially because of abusive family dynamics.

I am finally starting to have productive conversations with my parents. We sre going to try to confront how I can deal with this lyme situation.

Anyway, someone I haven’t seen in like 10 years who knows I have lyme, but they don’t know the extent of it because well sometimes this person is very booksmart but kind of not in other ways.

I’m literally managing managing so many thresholds like at the point where if I talk too much I lose my voice tomorrow. If I shake someone’s hand, I hurt my hand. If I type too much on my phone I literally fucking burn out my forearm. They get all knotted for weeks.

And I’m managing a stressful household and this illness.

my friend texted me to hang out. I just couldn’t because I don’t feel well but I was trying to …

you know .. put up a boundary lightly with him.

Long story short, he showed up to my house out of nowhere with two other people and left a note and asked my neighbors if I still live there

and all of this is just making me really upset and overwhelmed.

I know what he did is from a good place, but I also I know human nature and what actually happens when you tell people about the realities of Lyme .

And I also feel like one of the last things you get is the personal freedom to control access to yourself and information.

I want to keep them small the things that trouble me because I think it also just bum them out.

I just feel like if I really want to explain the autonomous nervous system, and all the ways that this disease and affects my body and how that impacts my life I have to do it on my own terms, not pressured into it.

I think some of his behavior is driven by grief because one of our other childhood friends died a couple years ago and then one recently.

He knows I have an illness.

But I didn’t create this world. I didn’t create these darker sides of human nature. How do you create my disease and I didn’t create the situation I have with Lyme disease in my family.

But what I do know is how to survive the day to day. If I just go out and be spontaneous and do all this stuff and it causes severe consequences on my body, there’s not much I can do when my body is wasted because a lyme threshold ceiling collapses and I can’t type or talk or mive for four months..

I want to send a text putting up a pretty good boundary of like don’t just come to the house again, but like I love you I don’t know when we’ll hang out in the future, but just respect that please.

Am I being an asshole? I don’t know.

Deadpan camera work

I recently watched the movie: Sleeping Beauty.

The camera work is almost deadpan

Many of the shots were like if someone just set a camera on a cabinet somewhere in the room.
And let the shot be still.
There’s very little panning in this movie as well.
But, theres some zooming and movement.

But, for the most part, consecutively, every shot is like this, it’s unrelenting.

Almost like it’s saying this is happening. This happens.

I was wondering if there’s any anything else that does this type of camera work or similar to it?

I have a feeling that it’s not the only one, but it’s the first one that I’ve seen.

It’s funny, I was actually trying to watch sleeping beauty the fantasy film. But the website I was watching it on uploaded this sleeping beauty under the other title and year of the fantasy movie.

And I was just watching fantasy movies like The Hobbit and the Narnia movies. Which has such different camera work. The camera is constantly following the characters and doing crazy sweeping pans and following the character’s gaze.
So the contrast was sort of shocking.

The opening scene is just a still shot in a medical testing laboratory.

And all of the acting and everything that happens, all happens in that one shot in the scene.
Then every scene is like a new set up still shot.

It’s almost like it’s saying this is ordinary mundane reality.

And I thought they were going for a:

OK this is ordinary reality but at some point the Netherland is going to pop up, but it never did. And I was more than halfway through the movie and I was like this has to be a different movie. Lol

But I just couldn’t look away. It was captivating. It was almost like a test to my endurance too. Like how much of this can I take and how much can I grow and expand my empathy.

Anyway, I won’t get into all of the specifics and ramblings on the film itself, but maybe everything after this point will be more specific. I’m just wondering if there’s any other films directors other mediums that do a similar thing. Maybe even some opposites or antithesis of this.

The rest I’ll put in the comments.

I recently watched the movie: Sleeping Beauty.

The camera work is almost deadpan

Many of the shots were like if someone just set a camera on a cabinet somewhere in the room.
And let the shot be still.
There’s very little panning in this movie as well.
But, theres some zooming and movement.

But, for the most part, consecutively, every shot is like this, it’s unrelenting.

Almost like it’s saying this is happening. This happens.

I was wondering if there’s any anything else that does this type of camera work or similar to it?

I have a feeling that it’s not the only one, but it’s the first one that I’ve seen.

It’s funny, I was actually trying to watch sleeping beauty the fantasy film. But the website I was watching it on uploaded this sleeping beauty under the other title and year of the fantasy movie.

And I was just watching fantasy movies like The Hobbit and the Narnia movies. Which has such different camera work. The camera is constantly following the characters and doing crazy sweeping pans and following the character’s gaze.
So the contrast was sort of shocking.

The opening scene is just a still shot in a medical testing laboratory.

And all of the acting and everything that happens, all happens in that one shot in the scene.
Then every scene is like a new set up still shot.

It’s almost like it’s saying this is ordinary mundane reality.

And I thought they were going for a:

OK this is ordinary reality but at some point the Netherland is going to pop up, but it never did. And I was more than halfway through the movie and I was like this has to be a different movie. Lol

But I just couldn’t look away. It was captivating. It was almost like a test to my endurance too. Like how much of this can I take and how much can I grow and expand my empathy.

Anyway, I won’t get into all of the specifics and ramblings on the film itself, but maybe everything after this point will be more specific. I’m just wondering if there’s any other films directors other mediums that do a similar thing. Maybe even some opposites or antithesis of this.

The rest I’ll put in the comments.