u/Frosty_Pilot667

I’m COMPLETELY BLIND, have Aspergers and a heart and lung condition.

I posted about my needle-related trauma triggers before but if you haven’t seen these, I have an issue with needles because the humans behind them fall back on canned autopilot scripts like “deep breath,” “relax the arm” or “relax 1 2 3.”

I call these pebble words because they’re like throwing pebbles to a drowning person, which is why I preprogram Mom to say a favorite word of mine before anyone so much as puts a fingertip against my skin.

My first invention is an autoinjector who, when he pushes through your skin, tells you good job, my brain treats affirmations just like it does favorite words.

Also I was thinking that instead of deep breath, the provider should tell the patient to say “night-in” or “nougat” because it creats some resinence when you say them, also it’s a word they aren’t expecting in this moment as it’s not related to a needle.

If you don’t want to use night-in or nougat, maybe sassafras, because it has that sissing sound that slows exhale.

For a kid who doesn’t know how to say these just ask what sound the letter S makes and as the answer you slide it in.

I personally used “hex” before as it’s one of my favorite words and it helps breathing, one day I noticed I was stress-sitting meaning shoulders up to Nigeria, and I said “hex” and boom, it fell right down.

As I said here https://www.reddit.com/r/autism/comments/1v93iyt/trauma_trigger_playset/ I’ve been trying to confront my monsters.

I thought of a really good invention that, if it were real, I’d buy one but I don’t have the knowledge or money to make it be.

It’s a plush nurse doll who has a hidden voice box in her that, when triggered, plays a nurse checkoff video/scene for a skill like an IV insertion or something.

This would 1. Act as a dryrun for the real thing but in a safe space.

2. If it’s a very young child, give a chance to use social skills like when she asks you your name and if you have any allergies or anything that would require you to actually answer, I don’t struggle with this but some do.

3. Let’s face it, nurse checkoff vids are good for ASMR, I watch them for this purpose as well as a dryrun. Also I was thinking if this was to be invented, let’s say the one in the white or yellow scrubs could be for a normal nurse, but the one in the scrub that’s the color of buffalo wing sauce, could be the S A N E nurse, and she can play a skill demo of a kit being done in case that’s your trigger. It would be good for normal consumers to buy for home use but also therapists, nurses, doctors and those kinds of people can buy it. Also the plush itself should be washable, with electronics removed of course, because depending on who’s using her, she might get cried upon a lot.

https://encouragemebear.com/shopI found a plush that speaks affirmations, his name is encourage me bear.
I need affirmations because all the humans don’t appreciate me following the wordrules.

I’m COMPLETELY BLIND, have aspergers and a heart lung condition and in Dec2022, my alcoholic/addict brother moved in with me and Mom, ripping my peace away like a dropped lovey, ripped from a baby’s hands in the middle of the night.

I’m a dopamine junky who doesn’t get enough verbal praise for following the often unfair wordrules and putting up with more than a normal (or abnormal) human should ever have to put up with.
This bear speaks affirmations and as sad as it is to have to get this from a plush bear who doesn’t know me from Ted Bundy, it’s more reliable than a human.
He can’t get drunk and be mean, nor get sick and forget, nor can he get onto me about words nor can me and him be incompatible.

He can ONLY say what they programmed him to say and that’s final.

I’m COMPLETELY BLIND, have aspergers or whatever it’s called now, and a heart and lung condition.

I got some money for my birthday and am using some of it to build my trauma trigger playset.

As there’s no pre-made kit for this, I have to buy each piece individually.

Two of my trauma triggers are needles and cameras, for the same reasons, both force me to perform for them, and the people wielding them don’t know that in order to perform, I MUST hear them say a favorite word of mine.

FOr pictures they use smile or cheese which doesn’t work, and for needles they say relax or deep breath.

My trauma trigger playset is basically toy versions of the things I’m scared of, I have a nurse doll and a toy camera coming and I have syringe keychains.

My idea is that The versions I ordered are ALL under my control, they’re all dumb hardware, no app or connection.

I’m thinking of having my brother’s GF join me in play once I got the pieces, maybe she can be the CVS pharmacist?

I think Polaroid needs to bring back the talking cam.

I say this because I’m COMPLETELY BLIND, have ASD1 (whatever it’s called nowadays) and a heart lung condition.

I’ve also noticed that autistic joy is NOT something we can fake or script, like when we hear something that’s related to something we like, our faces light up like a Christmas tree.

People often try and force this by saying “smile” or “cheese” for pictures but this fails for some including me.

I thought of an idea of a camera who has an indwelling recorder and funnily this did USED to exist, you know, in the real world.

It was called Polaroid talking cambut it’s now discontinued.

Instead of noping out of pictures because people don’t know what to say to get me to smile, they could just use that camera with the indwelling recorder, Polaroid needs to bring that back!!!!!!!!!!!!!

I don’t get nervous when taking selfies because I usually do this in my room away from people to avoid the cues that don’t help me.

I’m COMPLETELY BLIND, have aspergers or whatever it’s called now, and a heart and lung condition.

I got some money for my birthday and am using some of it to build my trauma trigger playset.

As there’s no pre-made kit for this, I have to buy each piece individually.

Two of my trauma triggers are needles and cameras, for the same reasons, both force me to perform for them, and the people wielding them don’t know that in order to perform, I MUST hear them say a favorite word of mine.

FOr pictures they use smile or cheese which doesn’t work, and for needles they say relax or deep breath.

My trauma trigger playset is basically toy versions of the things I’m scared of, I have a nurse doll and a toy camera coming and I have syringe keychains.

My idea is that The versions I ordered are ALL under my control, they’re all dumb hardware, no app or AI connection.

I’m thinking of having my brother’s GF join me in play once I got the pieces, maybe she can be the CVS druggist?

I’m COMPLETELY BLIND, have aspergers or whatever it’s now called, and a heart lung condition.

I figured out that mixes like cappuccino, latte, some cocoa and chai mixes are basically like big people formula but with a little flavor added.

All those mixes I just named are very dairy-heavy, when I was at the school for the blind at age 13, my teacher let me get cappuccino mix at the store and it was called hills bro.

It was very dairy-heavy and essentially like formula but for big people.

Some of these even come in a canister like infant formula does, like the hills bros and ovaltine, although ovaltine is a powder you have to add milk your own self.

Last Dec, Mom got me some cocoa mix and it was very nurturing because it was very heavy on the dairy but it also came in that big canister we talked about.

The only thing is I cannot use these mixes for bottles because you can’t use hot liquids in a baby bottle it’ll warp the plastic

I’m COMPLETELY BLIND, have aspergers and a heart lung condition.

Do any of you have food and drink associations and how did you overcome the bad ones?

I used to have one with instant noodles as a preteen because when we were kids, we had to live with my mean uncle who would word-torture me and because we were so poor we would eat instant noodles so after that, the noodles reminded me of my mean uncle.

I coped by the spoonful of sugar method which does NOT involve actual sugar.

It just means taking something you like to cope with something you don’t.

I used to like the word capsaicin back then so I would put spicy stuff in the broth of my noodles, or things that brought back good memories, by the end you couldn’t even tell what it was.

I think Polaroid needs to bring back the talking cam.

I say this because I’m COMPLETELY BLIND, have ASD1 (whatever it’s called nowadays) and a heart lung condition.

I’ve also noticed that autistic joy is NOT something we can fake or script, like when we hear something that’s related to something we like, our faces light up like a Christmas tree.

People often try and force this by saying “smile” or “cheese” for pictures but this fails for some including me.

I thought of an idea of a camera who has an indwelling recorder and funnily this did USED to exist, you know, in the real world.

It was called Polaroid talking cambut it’s now discontinued.

Instead of noping out of pictures because people don’t know what to say to get me to smile, they could just use that camera with the indwelling recorder, Polaroid needs to bring that back!!!!!!!!!!!!!

I don’t get nervous when taking selfies because I usually do this in my room away from people to avoid the cues that don’t help me.

I think Polaroid needs to bring back the talking cam.

I say this because I’m COMPLETELY BLIND, have ASD1 (whatever it’s called nowadays) and a heart lung condition.

I’ve also noticed that autistic joy is NOT something we can fake or script, like when we hear something that’s related to something we like, our faces light up like a Christmas tree.

People often try and force this by saying “smile” or “cheese” for pictures but this fails for some including me.

I thought of an idea of a camera who has an indwelling recorder and funnily this did USED to exist, you know, in the real world.

It was called Polaroid talking cambut it’s now discontinued.

Instead of noping out of pictures because people don’t know what to say to get me to smile, they could just use that camera with the indwelling recorder, Polaroid needs to bring that back!!!!!!!!!!!!!

I don’t get nervous when taking selfies because I usually do this in my room away from people to avoid the cues that don’t help me.

I’m COMPLETELY BLIND, have ASD1 (or whatever it’s now called) and a heart and lung condition.

Do any of you on the spectrum notice that, despite the happy or gentle lyrics, certain songs seem sad?

Despite how the songs are used, the melodies sound fifty shades of sad, some examples, Bram’s lullaby, sing of joy and gladness now, and oh how lovely is the evening.

It’s like the happy and gentle words are a cover story that my brain isn’t buying, and if you strip them away, the melody just the notes, chords and the arrangement of the notes you’re supposed to sing by mouth are sad.

If you took say a guitar or trumpet or anything not a mouth and played the notes made to be sung by a mouth, it’s still sad.

Even if you replaced the words with words about a cookie-dealing unicorn, with sparkles imbedded in his horn, spitting sprinkles onto the tops of the cookies, the song would STILL sound fifty shades of sad, like funeral music almost.

I’m COMPLETELY BLIND, have Aspergers and a heart/lung condition. For me, when people say deep breath, relax, calm down or any synonym thereof, it makes me more tense, to me, it seems like a chore like taking the garbage out or taking the dogs out/in when Mom’s sick and in the hospital. I discovered that on sooooo many levels, using a breathalizer makes me calm down. 1. I got interested in breathalizers a few months ago when I got interested in the company dräger who makes ventilators, backpack rebreathers and breathalizers. 2. Though I cannot see the screen I get sensory feedback from using it because of the oral stimulation from putting my lips on his mouthpiece and the piezoelectric speaker he uses to vleep to tell me when to blow. Because dräger units cost more than sportscars I cannot afford one, so instead I got the BacTrack T60. Thinking of using it at the devil’s chamber which is my term for the lab or blood draw station. I figured if she’s willing to work with me she can slide the needle in as I’m busy blowing?? also since I don’t drink and cannot read the screen, I can pretend it’s a bravery meter, measuring how brave I was for the stick. That’s another problem I have, phlebs don’t reward adults or bigger kids for needle sticks just single-digit kids

I’m COMPLETELY BLIND, have aspergers and a heart lung condition and it’s fixing to be my birthday in a few weeks. I have a question, I’m looking for a plushy who sounds like a sleeping drunk. I have the soothe and snuggle monkey who breathes, I LOOOVE him but he doesn’t sound like a sleeping, snoring drunk man. I’ve been looking at purring cat plush who are made to calm down cats, it’s similar but not the same, it’s closer. Can you give me suggestions? I need the product name and what site can it be found please?

I’ve been trying to make breath more interesting for me.

There’s a TV and remote inside my head, when something doesn’t resinate with my special interests, the TV and remote inside my head, clicks past it.

I’m COMPLETELY BLIND, autistic and have a heart lung condition. Allmy life, when I’m stressed or for needles, well-meaning people have told me to take a deep breath or calm down, words that feel like throwing pebbles to me when I’m drowning.

Well I’m interested in cops but also CPR, which lead me to be interested in the company dräger.
Dräger makes a lot of breath-related equipment like breathalyzers, and backpack rebreathers.
Well because I can’t afford a dräger breathalyzer I got one from bactrack though I can’t drink, I wanted the feel of the device.
When I got it home and tested it, it requires me to take the same breath patterns people often ask of me, a deep inhale followed by a slow exhale, however it does so in a way that resinates with my special interests better so the TV and remote inside my brain don’t click past it.

Because of this, it’s the perfect tool to use at what I call the devil’s chamber which is my term for the lab and/or blood draw station.
I like the feedback I get that I don’t get from just breathing into the air.
It makes a piezo vleep as I exhale, and it vleeps at me when it’s time to blow.

Dräger started as a beer tap company, the CO2 tanks n the beer taps didn’t regulate flow very good so it was dangerous to use.

So, Dräger made a valve back then, to regulate the flow of the gas.

The company then took those same valves and started using them on the oxygen tanks on backpack rebreathers and ventilators to regulate the oxygen flow and rescue miners.

In a way, we’ve come full circle back to beer because dräger makes breathalyzers as well.

The breathalyzer wants alveolar air, NOT tidal air, which is why deep breath is REQUIRED

I’m COMPLETELY BLIND, have Aspergers and a heart and lung condition and I’ve been finding ways to hack breathing. All my life, when getting a needle or when I’m stressed, well-meaning people threw pebble words as I call them, words that are like throwing pebbles to a drowning persion, like relax, deep breath, calm down or you’ll make it through this.

Well I’ve been finding ways that resinate more with my special interests because my brain is like a TV remote, when something doesn’t resinate with my special interests, my brain says nope and clicks past it.
Well I’ve found through life that taking a warm drink makes you calm down.
This is because hot liquids like soup, tea or coffee often force you to slurp, sending air through the liquid on its way up, cooling it down.

Well that same slurp FORCES you to take the same deep breaths people ask me to take but in a way that resinates with me and actually helps.

I’m COMPLETELY BLIND, have autism and a heart lung condition. I have the Fisher Price soothe and snuggle purple monkey. Have you ever seen him? This is about how he works and how he helps me https://youtu.be/OqIV\_8z9toA?si=RonG5pTHQhtFhtU2

Sent from my iPad