u/GroovingPenguin

Y'all I don't understand what I'm doing help

I brought an XL bikini top and it fits okay but it needs some inserts for support

I tried to buy the official ones but it kept coming up with a 5x to 6x because I need 8 by 8 inches to fit roughly (i measured a sports bra to get the numbers)

Have I done something wrong?

How do I get the right size?

Edit:

I'm a 38c

I'm really confused

I brought an adapted bikini set online and it didn't come with inserts,so I tried to buy the official ones and it kept saying I needed a 5x for a XL bikini top..

I'm not quite sure what to do,do I try the official ones or maybe somewhere else?

Also nitpicking,I absolutely HATE the fact to get stuff like this it has to be online,I want to support my local high street not Amazon!

I am actually out of words am I stupid?

I have a tomboy x adaptive swim bra thing in an XL, slightly a bit big but I'm a 38c it's all fine

It doesn't come automatically with cup inserts so I've gone through the website contacted the company ect

I would need a 5x to a 6x supposedly

*Blink blink*

(Help,what have I done wrong?)

Edit:

"For size reference, our small cup insert measures 5.2 inches in width and 5.3 inches in height, medium at 5.5 inches in width and 5.6 inches in height, large at 5.98 inches in width and 6 inches in height, and 2XL at 6.6 inches in width and 6.8 inches in height."

"5x/6x at 7.8 inches In width and 8 inches in height"

I'm still young and learning about life,I've also not had a lot of female mentors so I'm a bit behind in that department

I'm fed up of one peices I want to enjoy my body but I am struggling to find anything that looks nice

I tried one on,high cut and it was the worse thing I ever wore but I want to keep trying

Is there any good sites or advice?

High waisted?

(I'm a UK 16-18)

In reference to the movie soul which I feel is a good film but a brilliant message

How did you find your spark,your purpose and what is it? (Especially with disabilities)

I'll go first

For me its Surfing but I'll take anything in or on the water,I crave it constantly and live for it

I'd been doing water based activities for years but it only took one adapted sport session to find it

(I gravitated without even realising for 14+ years)

So I'm very realistic a 0% upf diet isn't attainable for me for several reasons so I aim for low or reduced,20% or under which is well below my countries average

Trying to swap out chips/fries for a more nutritious option, still convience because of time and energy

I focus on nutrients and what they provide as a priority while trying to keep upf down

The issue I am running into the "healthier" alternatives are actually more processed and not sure how to approach It

How do you do it?

Ie root vegetable fries

"Carrot 29%, Parsnip 28.5%, Red Beetroot 28.5%, Vegetable Oil (Rapeseed Oil, Sunflower Oil, in varying proportion), Rice Flour, Modified Potato Starch, Potato Dextrin, Maize Flour, Salt, Tapioca Dextrin, Raising Agents: Diphosphates and Sodium Carbonates, Stabilisers: Xanthan Gum and Methyl Cellulose, Colours: Paprika Extract and Curcumin"

Marks and Spencers fries/chips

"Potatoes (91%), Vegetable Oils (Rapeseed/Sunflower) in varying proportions, Wheatflour, Cornflour, Rice Flour, Salt, Turmeric Extract, Natural Colour: Paprika Extract, *Fortified with Calcium, Iron, Vitamins B3, B1 and Folic Acid"

I'm going to keep asking as there is bound to be SOMEONE in this situation or alike

I have eds and spastic muscles, likely to be caused by motor neuron issues

This means I have very very tight muscles but at the same time they're still too bendy to hold myself up

I just want to speak and find others in a similar situation of eds + spastisticy

So for context I have h-eds with mito metabolic and suspected spastic paraplegia

Translation: I'm hypermobile yet also have spasticity at the same time

I'm currently in afo's but they're at the end of their life and my condition has progressed to the point they're not working as well anymore

They've agreed on kafo but I'm nervous as they'll be a lot bigger and bulkier,more likely to rub ect

Any advice or tips?

4 years I've been on this hellhole journey (14 if you count the before time) and finally someone has listened

Multiple upper motor neuron signs, indicative of a upper motor neuron disorder or system dysfunction with suspicions of cerebralum involvement

Some lower neuron signs but likely to be a complex form with overlap of glycogen storage disorder and possible mitrochondrial dysfunction (query hsp mito overlap)

Nothing present on spinal cord MRI which took 4 years to get, threatening legal action and waiting 8 hours in the er (AE)

For context I have autism and physical disabilities

My parent has always been a bit.. interesting to say the least (I have cptsd for a reason)

But the last 18 months it's been getting worse,they were diagnosed with b12 defincey and celiac but treatment isn't improving it

They forgot they made dinner within 5 minutes of serving it,directions names it goes on ect

I can't keep doing this but I don't know what to do or where to go

I worry if I contact my GP they won't keep it anymous and I'll be in so much trouble

What do I do?

Edit:

They are very good at masking and people love them, saying they're amazing ect

Not dystonia, neurological spastic tone mixed with eds

Not a combination I'd ever personally recommend,0/10 wouldn't pick again

But in all seriousness I am struggling to find anything regarding it,in reality or theory as it's such an unusual presentation

Does anyone know of anything or anyone?

Yep I'm in a very weird situation that's rarely seen

Full on spastic tone clonus ect ect while simultaneously having 9/9 hypermobility,so on the severe end

Does anyone else have it or know of someone with it as we are really struggling to manage it

Ie I am struggling to maintain blood pressure for pots

Edit: Not dystonia

I'm not sure I'm ever going to understand it

I'm completely undiagnosed, absolutely no clue other then umn disorder and lmn possibly

Spastic tone but also missing reflexes

In 4 years I went from running and sports to needing crutches full time and likely a wheelchair in the next 18 months

I went swimming one day and left my crutches on the side,just casually as I can walk very short distances but with all the water weight I couldn't stand to get out after,I had to physically crawl/scoot across the floor

I'm so confused about all of this,my friends haven't discovered the crutches yet either

Like this is absolutely nuts and I'm sick of it

A normal bikini is about 60,an adapted one is 160

Shoes are 120 and only last 6 months (and they're never on sale)

Braces are at least 200+

I don't think I can actually keep doing this anymore

In my country I can get vatback in theory but it's near impossible for equipment ("Prove it's for rehab")

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Obviously I don't keep up with the news,my symptoms are primarily pots and eds (and others)

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So it was quite a shock to discover the NHS is admitting mcas is a thing and pathways now exist compared to about 18 months ago (where there was nothing)

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So I've finally started my journey towards diagnosis and management

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But when do we think nice guidelines are going to come in?

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Long story short I help friends and family with their hearing aids

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I'm not a professional but i have enough common sense and reading to work it out.

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I've got Target no problem but both oasisnxt and genie are a struggle,I cannot find them anywhere to download

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Has anyone got a copy they could share?

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Honestly I've been at this for 4 years and nobody can make sense of it Oae showed a 70% reduction or absence in DPOAE but within normal for my expected thesholds

Mild high frequency/borderline moderate (at 40) but with a pta average of 22 so officially mild

Apd testing came back as very mild borderline nothing (more due to deprivation);

But I cannot have a 1-1 conversation with a majority of people,even in a silent room without lip-reading. And It's not an understanding or processing issue I literally cannot hear them, especially if soft spoken

I didn't know what a car horn sounded like,the differences in ambulances and police cars,birds are so damn noisy, rustling plastic ect ect

Everyone is very confused at this point what is actually happening, nobody can pin the tail on the donkey

Has anyone else been in this situation?

;

Long story short I have a cat

I cannot hear the cat

I keep getting jump scared by said cat about midnight demanding dinner/breakfast? (Whatever you call that time period)

The only solution seems to be wear one of the ha's to bed but I feel it'll be too noisy to even think about sleeping

Has anyone done it?