u/Cookie-Cakes243

I’m looking for Fragrence free products for my hair. The strands themselves are not super thin. My hair tends to fall flat pretty easily, and may lean more towards over moistured. It is frizzy and kind of tough to manage (so I’m hoping to find some good new products!)

What’s the difference between no nothing, jessicurls, curlsmith, not your mothers, and any other fragrance free options? Do certain brands tend to work better for certain issues?

My current routine is Fragrence free but not geared towards wavy hair: Paul Mitchel clear shampoo/conditioner, it’s a 10 Fragrence free, brushing after a shower, air drying, and seen hair oil. Looking for more wavy hair products and have watched a few YouTube videos on catering towards waves.

Thank you!

I’m looking for Fragrence free products for my hair due to MCAS. The strands themselves are not super thin, but I do have hair loss leading to a thin look, not sure if that matters in regard to products. My hair tends to fall flat pretty easily, and may lean more towards over moistured. It is frizzy and kind of tough to manage (so I’m hoping to find some good new products!). The less I do the curlier/wavier, but I need some products to control it better.

What’s the difference between no nothing, jessicurls, curlsmith, not your mothers, and any other fragrance free options? Do certain brands tend to work better for certain issues?

Thank you!

I did the chop protocol a few years ago but had a huge flare up and want to get started again. I’ve heard about adapt as well, and I’m wondering which would be best?

Has anyone tried both? Would love to hear others thoughts/experience

I’m looking for a top I can put on a garbage can to shred paper (and then remove it).

It seems like the good paper shredder brands don’t make an option like this, I can only find cheaper ones that I’m assuming won’t last.

Any ideas?

It’s been 2 years of constant hypo/hyper swings, med changes, amongst other health issues. Is this normal? Can anything be done to stabilize this? I already eat healthy/gluten free etc.

At what point should you advocate for more testing? I had nodules that were initially suspicious, but then was told I don’t need a biopsy. Maybe it’s just Hashimotos but 2 years of constant swings like this is terrible for my mental health (and hair).

Recently diagnosed wish HSD after years of pots, MCAS, autoimmune issues (et al.). I don’t currently meet criteria for hEDs, though I know the criteria may be changing soon. The most “reliable”(?) source I’ve come across online is EDS society but I’m not sure if that would be the right place to look if it’s just HSD.

I’m very new to this, well versed in pots/mcas, and looking for a reliable way to learn more about HSD (also I appreciate Reddit and “first hand” info from people who’ve learned themselves as well!).

My rheumatologist was amazing and diagnosed me with HSD. She said right now there isn’t really anything to do since I’m already treating the comorbidities, but exercise can be helpful.

I’m curious if anyone here does anything to improve their HSD/health? My other conditions seem to have clear treatment, but HSD seems like you’d only treat pain as it comes up?

Very new to this, my rheumatologist is amazing im just thrown off that this condition that has impacted my whole life has basically no treatment other than treating issues it causes. I guess I just want to make sure I’m not missing anything.

Does this happen to anyone else? Sometimes 30 mins after I eat I get so tired it feels like I’ve been drugged and can’t fight it to stay awake. This goes on for 2 hours until I can shake myself out of it.

I’ve taken my blood pressure and heart rate during a flare like this- comes back normal. I’ve tried laying with my legs up incase, which doesn’t help.

I’ve taken my blood sugar which also comes back normal.

I do have MCAS as well, but falling asleep is my only symptom during flares like this, and usually in a MCAS flare I have tachycardia, hives, and flushing.

It’s happened after a meal today (chicken, green beans, 2 baby potatoes so not many carbs) and another time last week small bowl of frozen pineapple. I don’t see a correlation with the types of foods that trigger this.

It’s scary because if this happened outside of my home idk what I would do, it feels dangerous.

Has anyone else figured this out?

A year or two before I was diagnosed with MCAS I had a reaction to the “My Way” emergency contraceptive pill. I had hives and my throat got swollen to the point my voice sounded different.

I was told I couldn’t be allergic to the pill, but now I’m wondering if it was MCAS related?

Curious if this is common?

How long did it take?

I like the Clara bra, but struggle with skin sensitivities and my other panache bras can be irritating. Because of this I haven’t bought it but have tried it on.

Are there any bras that fit similar to the Clara without lace trip under the wires/on the straps?

My favorite bras: panache Cari 32DD, Natori statement full cup 32E, Natori true zen 32E, panache allure Demi 32E, Chantelle Norah Wirefree 32E.

I had optic neuroitis and will be ruling MS out. My ophthalmologist ordered a MRI of my brain, but I saw on Cleveland clinics website it says brain and spine MRI are needed.

Is a brain MRI enough? Or is spine needed?

I hope it’s okay to ask- I can remove this if it isn’t. Im only asking because I’ve had things “ruled out” that I ended up actually having, so i just feel more comfortable doing my due diligence.

Also wondering if anyone else had anything else done in their work up after optic neuroitis.

Thanks

Currently taking claritin and ketotifin. Due to thyroid meds I can’t take famotidine until 4 hours into the day, and it takes another 45 mins or so to kick in. It basically cures my PMDD/depression but I struggle so much the first 5 hours of my day.

My allergist has said maybe we’ll try xolair because of the flare I’ve been in for a few months. I’ve seen how Xolair helps with MCAS but haven’t seen much about PMDD/neuropsych symptoms of MCAS so curious about others experience.

Has anyone noticed PMDD improvements with Xolair (obviously in addition to other MCAS symptoms as well- there’s lots of info on here already about how it’s helpful)? Or any other medication? Thank you

I’m at a point with my practice where I have a very niche speciality and have been getting too many referrals than I have ability to work with. I have been thinking about hiring and training another RD to work with me and see the clients who I’m unable to work with.

The issue is, I have no clue how to do this. I’ve seen videos online but still feel unsure about how to do it right. Seems like all the advice I’m finding is somewhat cookie cutter and non specific- but maybe I’m just overthinking it (typical RD…lol)

Anyone have resources to learn more about the hiring process? Or have any tips on how you’ve hired in your practice?

My insurance doesn’t cover out of state labs, so I’d have to cover the cost. Due to continued worsening symptoms and other autoimmune issues I really want to advocate for this test, but not sure if I can afford something too expensive.

Curious if anyone else has paid out of pocket for it.

I’m trying to find a good deal on glasses (my Costco glasses that were much more expensive snapped in half after a year), I also want sunglasses with my prescription.

Zenni has some good options, but I’ve read that they might not get the prisms right. Has anyone ordered frames from Zenni and gotten lenses put in by someone better equipped for prisms?

I have pain when I need to go to the bathroom, I can’t think straight during “flares” and need to relax every muscle in my body and breathe through it, i also get shooting pain up my butt sometimes.

My menstrual cramps aren’t great, but not terrible. I can think through it, don’t need to breathe during it, can stand up, etc. It hurts a bit, but it’s bearable.

I’m debating looking into this further, but honestly I have POTS, MCAS, Hashimotos, iron deficiency, dry eyes, and sleep apnea (oh and complex ptsd from the medical gaslighting and medical trauma…).

I feel really hesitant to explore it more because I was told I need surgery to rule it out, and my symptoms don’t interfere with my life enough to warrant surgery.

I’m curious what others thoughts are about this.

I’ve been disconnecting my hose when I have to get up during the night by basically just taking it apart each time because I thought it was either that or take the large connector piece out which can be a pain to put back in (taking the mask off with long hair is too annoying for me).

Well aparentky if you hold on the hard plastic part on top and pull the hose away from it- it completely disconnects. There’s a part of the dreamwear mask that stays attached to the hose, and you can easily clip back in.

Was this common knowledge? How am I just figuring this out

Searching for a new printer for my small business.

Budget- can be flexible, ideally less than $650

Country- US

Color- Color

Laser- not too sure, seems like laser is better for infrequent use, but inkjet is cheaper. Maybe laser??

New

Multi function- Printing documents/ power point presentations, Copying (from a larger book) ,and fax

Duplex printing- cool, but not necessary

Business use

Between 0-150 sheets per month, infrequent use (some weeks with zero use, some weeks printing 100 pages in one go)

Pages per minute - doesn’t matter too much, faster is preferred

Page size- letter

Printing from- laptop, pc, phone, iPad, copying from books

Connection- wireless (and maybe a wired option for malfunctions?)

I’m not sure if there’s any way to make them more quiet, i have the sound turned basically all the way down on my device, but it’s still a little too loud for my preference for background music while working. I turned the bass down which helped a bit, but not sure if there’s anything else I can do.

Anyone have any ideas/tips?

Thank you!