u/Spookyremy420

Hey guys, 25NB here! On Monday I had the most agonising period of my life, like on the floor gritting my teeth, writhing around, ripping sensation like somebody was trying to steal my uterus. My iron is crazy low as well as my blood pressure. I’ve been bleeding way more than usual, huge clots, pads being changed rapidly. I’m not pregnant, I did check.

I went to out of hours docs tonight and they said my very low iron is normal and my low bp is normal for my height and weight (I’m a very small person)… like no? That’s not my baseline at all.

They asked me if it’d endo and I said I don’t know, nobody ever investigates it, and I’ve been complaining of right side ovary pain for like 2 years now. They keep repeating internal ultrasounds and finding nothing but ovulation cysts and my left larger than my right, but I’ve had no scans, nothing more than the usual ovary checks.

I don’t know how else to be taken seriously. I saw my lovely dietician today and she was so concerned about how low everything was and gave me home tips to combat the low BP (salty drinks and food). It’s like it’s always just excuses as “oh heavy period wait it out” like dude what?!

I know this is so common with AFAB people, but it’s crazy. Soooo crazy to me.

Hi everyone!! I started today and it’s extra painful, I can barely move into any comfy position without that ripping sensation in my lower tummy and legs. It’s proper flared me up too, my fatigue is wild.

I was wondering if anyone knew any hacks that help period pains during the summer heatwaves? It’s boiling and I tried putting heat on and it’s just too overwhelming. I’ve taken paracetamol bc it’s the only pain killers I CAN take annoyingly. So I’m really just thugging it out but need some tips to ride this wave.

Thank you!!

Hi everyone!! I started today and it’s extra painful, I can barely move into any comfy position without that ripping sensation in my lower tummy and legs. It’s proper flared me up too, my fatigue is wild.

I was wondering if anyone knew any hacks that help period pains during the summer heatwaves? It’s boiling and I tried putting heat on and it’s just too overwhelming. I’ve taken paracetamol bc it’s the only pain killers I CAN take annoyingly. So I’m really just thugging it out but need some tips to ride this wave.

Thank you!!

So, I track my periods and it’s usually pretty accurate very month. I’m due on today and I can physically FEEL it coming on. I joke that I can feel it “brewing”. I don’t know how to describe it but it feels like a weird, deep rumbling, gnawing feeling in my uterus and I get SO extremely tired. I have chronic fatigue anyway but it’s a different feeling. I’m almost certain I have PMS because of how crazy irritable and emotional I get a week beforehand.

Idk, it’s bizarre!! Unless it’s completely normal and common haha

So I’ve never had a proper reaction to food before. But this one has been mild but mean. I’m itchy all over, mouth itching and stinging, my throat was super scratchy and sore earlier. I took an antihistamine and it hasn’t done much so off to the walk in centre for me!

So annoying, the cookies I baked were so yummy but now I’m itchy so lesson learned lol!

Hi everyone. Today I’ve been reflecting on recovery and the fact I’ve been in recovery for an ED for a fair few years and I felt like somebody might need to hear this.

We all know the big discussion of the Lyme diet. Anti-inflammatory, sugar free, no white potato, gluten free, etc… and there’s not a solid plan that works for everyone.

I’ve tried it all… and honestly? I was sick. My blood sugar tanked, my dysautonomia was crazy, my fatigue was more fatigue-y than ever. My body was screaming out for carbs, natural sugars and comfort.

So I did that. I kept to gluten free - not only for Lyme and co but also it helps me not bloat after every meal and I’m cool with that trade! I’ve been vegan for 7 years so that was an easy addition. But sugar? She’s back. I try my best to have natural sugars rather than refined, but when my blood sugar needs a pick me up, a dark chocolate rice cake is my best friend, even these amazing allergy kid’s cookies with less sugar.

I use to kick myself for doing these things. Like having ice cream on a birthday or indulging in a cookie when my body needed it. I wasn’t going to let this disease throw me right back to such a triggering; restrictive time in my life.

It’s okay not to be perfect. You’re doing your best. Your body NEEDS food. It needs calories, energy. If we don’t feed ourselves then how will we fight it? I definitely wasn’t when I was being super strict. I don’t blame myself for being strict AT ALL, but it wasn’t healthy, and I’ll prioritise that now.

Potatoes are my best friend, since eating them again I’ve felt comfort - especially as an autistic person with ARFID - and I can at least have a slow release of energy my body needs.

You’re doing amazing everyday, and your body is so resilient and strong. Don’t let scary debates on things make you terrified to eat; because I understand exactly how that feels.

Good luck and I hope everyone is doing well!! <3

Hey guys. I’m really struggling with my OCD at the moment and I need some support.

About 3 years ago a friend of mine placed a rock from a ruin in my bag, and I didn’t notice until it felt weirdly heavy. I went “oh wtf” and we laughed it off, and my dumbass didn’t think to just place it back

Fast forward to now, I struggle with chronic illness that suddenly began last year and I’ve been struggling ever since.

I know the timeline doesn’t make much sense, my OCD has latched onto it and now I’m planning to place some flowers or crystals at that site as a sorry. I know it sounds completely irrational and probably isn’t anything significant but ugh, magical thinking is going nuts!!

Hi everyone.

This has been freaking me out today. About 3 years ago a friend of mine, when I visited him, placed a rock from a ruin in my bag and I didn’t notice until it felt heavy. I saw it and went “oh wtf” and we laughed it off. I didn’t even think about the fact I now have a rock from a historical site and just when on about on about our day.

I didn’t know it’s bad to take even rocks from sites like this so I didn’t even second guess placing it back, I don’t know why.

I now struggle with chronic illness and I’m so freaked out if that’s where it all started? I’m maybe heavily overthinking things but I do plan on at least placing an offering like some pretty flowers or a rock from my own home there as a sorry for taking it. If I can find it, even better!

What’s your thoughts on this? I need to calm down.

Hey everyone. I’ve been sick with Lyme and co for over a year and on and off different treatments - now opting for herbs and LDN as a booster - and I’ve finally booked in a new tattoo to make me feel more human again.

Only thing is, I’m really nervous about my immune system. I have naturally low WBC and my blood tests showed a chronic reaction to Lyme and co rather than a fresh infection.

I did have a tattoo at the very beginning of all this and I was fine. I had symptoms obviously but it wasn’t from the tattoo itself - as most my symptoms are neuro and rarely just pain.

Idk, I’m not never going to have tattoos because I trained to be a tattooist and I absolutely adore them, I’m just being super anxious and overthinking it.

What do you think?

Hi everyone! I just wanted to come here to ask if anyone else still has crazy dreams months after starting? Every night or nap I have the wildest, vivid dreams and they’re here to stay right now it seems.

Thing is though, I’m not entirely sure if I’m getting fulfilling sleep cycles because of this. I have fatigue anyway but I wake up feeling groggy and I get eyebrow twitches like I haven’t slept. I’ve tried a daytime dose but it doesn’t seem to suit me much especially when I try to titrate up (rebound pains mostly.)

I can deal with the dreams, but I wondered if this was common?

Thank you!! ❤️

Hi everyone!! 25NB and I started my period yesterday. Ever since then I’ve been feeling extremely tired, my body feels heavy, I feel out of my body (DP/DR I assume), woozy. It’s almost like I’ve been drugged or drunk.

I know for sure my hormones are raging because I was crying for stupid reasons and really angry and anxious today. My period is medium flow, not super heavy but enough to feel gross lol.

Does anyone else get this?

Hi everyone!! 25NB and I started my period yesterday. Ever since then I’ve been feeling extremely tired, my body feels heavy, I feel out of my body (DP/DR I assume), woozy. It’s almost like I’ve been drugged or drunk.

I know for sure my hormones are raging because I was crying for stupid reasons and really angry and anxious today. My period is medium flow, not super heavy but enough to feel gross lol.

Does anyone else get this?

Hey everyone!! 25NB here and I’d love to make some friends on pokemon go as I’ve recently gotten back into it and love sending gifts!!

My code is 136027758395

I hope to meet some cool ppl!! <3

Hi everyone! I have a 3cm hiatal hernia and GERD and I usually stay far away from anti-inflammatory meds due to this. I usually get told by medical professionals to not take them.

Today I went to the doctors because of an awful headache I’ve had since yesterday with intense nausea and the doc said I could in theory take ibeprofen only if it’s in tiny doses and not everyday. I’m feeling really weird about this advice. I don’t want to provoke my hernia or have a bleed, but I don’t know if I’m being TOO cautious and it’s completely okay if it’s a one off medication.

Idk, any advice would be so helpful! Thank you <3

Hi everyone. I’ve been in an episode for a few days now but only just got pain yesterday and it’s driving me nuts. I feel SO nauseous in my head, if that makes sense. My head feels tight, pain in my ears, head feels too heavy and pressure in it and full body aches (not a cold, I assume this can happen?)

Annoyingly I can only take paracetamol due to stomach problems and I’m on a cocktail of meds that don’t like to interact w most anti-sickness and migraine meds.

I’m looking for home remedies that actually work if anyone can help! I tried ginger tea before bed because I was super sick last night (no vomit, just feel sick) and I have a cold compress on my head.

If anyone can help I’d be so grateful!!

Thank you ^^

Hey guys, I’m going a lil crazy trying to figure out if anyone else has this side effect. It’s genuinely embarrassing to ask publicly despite it sounding kinda normal I guess?

So three times now during the 2 weeks I’ve started LDN I’ve woken up with an orgasm, and my dreams don’t even reflect them. It just happens. It’s so weird. It’s has rarely happened in my life but for it to happen THREE times since starting this medication is wild, like it’s got to be linked, right?

I was googling like crazy to figure out if somebody else has the same side effect. I’m on 0.1ml and I’m gonna titrate up to 0.2 tonight as instructed! This med seems to be alright, but this side effect is so bizarre!

(Disclaimer: please no weird comments - I know you’re all most likely good eggs on this sub but I always worry about sexualisation due to other subs. Thank you sm!!)

Hi everyone, 25F from the UK here and this is driving me nuts trying to remember this specific website we used in primary school when I was in year 5 for English classes.

It was a thesaurus based website where you’d type in a word you wanted to branch out onto and it would generate more words. It was in space, the website was dark and I THINK it had stars in the background. It was 3D and the words would float and bobble with lines attached to each one.

I loved this website as a little autistic, word obsessed kid so I’d love to see pictures of it again. I use to go home from school and play with it myself, so it was a website rather than a program.

This is a question for AFAB people- do you bruise more around your period? I’m glad to report I don’t have anaemia! Slight iron deficiency but nothing crazy. I bruise super easily without remembering bumping myself which I know is common with us.

But I’ve noticed more bruises and I’m due on today - I’m usually a day late which seems to be the case again!!

I’m curious to know if this happens to somebody too!! <3

Hi everyone. I’ve been diagnosed with h.pylori with some gnarly stomach problems and a huge GERD flare up. I’m not quite sure when I picked it up because I have chronic tummy problems anyway but it’s been on another level for a couple months.

I’ve started duo treatment - I know they suggest triple or quad but I’ve been on long term antibiotics for Lyme and co so my GP didn’t want to overload me too quickly. I’m on amoxicillin (which I tolerate well) and Clarithromycin (never taken before). I’m really nervous as I have medical trauma, and being chronically ill I’m always terrified of side effects.

Some encouragement and positivity would really help 🫂❤️