u/Mae_The_Gay

My guess is either Loid will have to fake his death to avoid yor finding out he’s a spy, or Loid will quit being a spy due to not wanting to leave his family.

While it’s hard to say if Yor & Loid will ever be romantically together, they’re definitely bonded ( pun intended ) plus I also think they’re both attached to Anya and see her as their child.

I have been tested for EDS, rheumatology just said I have fibromyalgia with hyper mobility and don’t have EDS due to never having had a confirmed dislocation causing me to go to the ER. Recently saw a surgeon to ask about fixing something going on with my shoulder ( basically a tear that hasn’t healed in the 10 years of having it ) and he was asking what caused it, I said I just woke up not being able to lift my arm up and having constant shoulder pain. Tried physical therapy and it did nothing. Been complaining about it for years it’s very annoying. He asked me if I’ve been diagnosed with any connective tissue disorders, I said no I’m just hyper mobile. He had me do a couple of the classic tests ( thumb to wrist, bending pinky backwards, hyper extending my knees & elbows literally same stuff the rheumatologist did ) and he said I definitely have EDS or something similar. That it’s not just simply some extra flexibility. He thinks maybe what happened with my shoulder is my connective tissue just tears there and said surgery is unlikely to actually fix it.
He recommended more physical therapy just with a different person who specializes in hypermobility. I had to do 6 weeks of physical therapy for my insurance to cover the mri that showed the tear ( and cyst from the tear + fluid & inflammation) I don’t know how much of a difference more physical therapy would even do.. I can’t imagine it would be that different than what I was doing before except it being further away.
He also mentioned a program that specializes in EDS but it’s hours away and my insurance only covers it if you have cancer. So that’s not really an option for me.
I just want my shoulder fixed the pain is getting worse and I struggle to sleep. It’s my dominant hand too so writing, drawing, etc is difficult.

Is this a common thing or am I just unlucky?

Symptoms started at 13, woke up one day and wasn’t able to move my shoulder or neck. I was living in a country where I couldn’t go to school, have medical care, etc due to not being a citizen. After that I was homeless for a while. When I complained about the pain my family said I probably slept weird. Eventually I could mostly move my shoulder and neck. Though it always hurt, around 18 my pain was debilitating. Doctors always assumed I just slept funny. But I think once they realized it wasn’t going away they actually listened a bit.
They assumed my shoulder was dislocated, they did ultrasounds and x-rays that showed nothing. Which confused them since I can’t move my arm fully. Even went to the ER once after not sleeping for three days from pain. They gave me Tylenol and said I was fine.
Was prescribed pain medicine that didn’t do much.
Eventually met a doctor who decided she wanted an MRI done. But my insurance didn’t cover it unless I did 6 weeks of physical therapy. I did, it didn’t help the pain. The physical therapists were confused. They never heard of an issue like mine.

When I got the mri done it turned out my shoulder socket is full of fluid & the shoulder muscle is torn causing there to be a cyst from access fluid underneath.

It’s also in my dominant hand. So 10 years of constant shoulder pain.

It’s not 100% but it has tone things down. Only issue is once it wears off the pain hits me hard.

Is this a common thing?
I’m the one living with the disorder, yet people love to make it about them.
Most recent example:
Friend was saying “ you don’t know how hard it was to see you dying! It was so hard for me! “
I responded with “ i understand it’s hard to see someone you care about struggle but it’s not about you. It was my disorder, I’m the one who actually had to live with it everyday. “
Friend responded “ so you think your disorder doesn’t impact other people? “ basically calling me selfish.
Same friend “ you need to open up and make friends ! “

Like.. no.. literally I open up and apparently my existence is offensive.

I tried to explain it with “ imagine I had to watch you get beat up, it would suck for me seeing you hurt. But it would suck more for you since you would be the one getting beaten. “

Apparently I’m an asshole for having an ED. Same issue with family.

So I was diagnosed with level 1 autism. However I feel like each level is so broad it’s not really a good descriptor in my opinion. Curious about how other people view it?
I feel like autism is such a huge spectrum 3 categories aren’t really enough to cover everything.
Who invented those categories? Where are the lines drawn? I think labels such as non-verbal, semi-verbal, high support, low support, etc much more easier to understand.

Does anyone else have really morbid humor because of their issues that able-bodied people find offensive?

For example, here’s a shower thought I thought was hilarious. However- it apparently isn’t to everyone.
>!do cannibals find people with people with Ehlers danlos more tender? Like.. in the underground human meat market are they like the human equivalent of wagyu?!<

I made a joke about >!having a babybump when I had a cyst that made me look pregnant.. which apparently was offensive to a friend!< ( who doesn’t have children nor any child losses but apparently it was a disgusting offensive joke according to her )

There was an ad I was seeing for a bit on social media on getting paid to >!lose weight!< ( probably a scam idk I didn’t look into it ) I made the joke of “ oh sh-t I could’ve been paid? I was just sent to the hospital “

Feel free to share your jokes.

So I was recently prescribed ritalin, I meet with my psychiatrist in about two weeks to discuss it and if the dose needs to be adjusted, etc..

curious what other people experience.

For me I’ve noticed that when I know what tasks I want to do ( dishes, laundry, etc ) I kind of just laser focus onto it and not get distracted by other tasks around me. Instead of the classic “ oh actually I should google this thing and double check I did this other thing and actually I should put on music, etc “ my brain thinks “ welp, there’s this other thing I also want to do but I want to prioritize the original task and just focus on that until I’m done “
I feel calmer, almost how I feel stoned? It’s weird. I just kind of walk around vibing without as much mental noise. I honestly think I could finally get my drivers license and get more of my goals done in a reasonable time now I think less.
I also learned that ritalin ( and I think adhd meds in general ) help chronic pain. I have fibromyalgia and it definitely makes my pain go down. It doesn’t do anything for my other issues like scoliosis pain though.

Down sides ( some might be temporary? If they continue by the next appointment with my phycologist I’ll bring them up )
I can feel my heart beating 24/7. It’s really weird. It goes down near the end of the day though.
I’ve been a little shakey. Not too bad though. I haven’t been feeling that hungry which is mildly annoying ( any tips for dealing with that would be cool )
Once it wears off my chronic pain also hits me like a bus. So I think I just need to learn to pace myself? Idk.

I was recently diagnosed with adhd and autism. Which explains some areas where I struggle which definitely makes me feel less messed up since it’s just my brain being wired differently and not me just being an idiot.

One huge thing I struggle with when it comes to social interaction is not knowing tmi. The most recent example:

My friend ( who thought I was already diagnosed 10 years ago ig my autism was obvious) invited me into a discord group she’s in. In it it’s mostly discussing gaming and random hobbies. I don’t really understand the jokes bc they’ve all known each other for years so I still feel kind of awkward about it.
There’s a portion of the group for venting about medical stuff. So I did. Apparently I did it wrong and a bunch of my friend’s friends were telling her I was triggering. At first when my friend said “ hey can you not talk about that it’s triggering for me “ I said ok and thanked her for telling me. She went off in our private message and it was hard to deal with. I get that she was upset about things and I made the mistake of saying “ hey, I understand it bothers you I have issues, but it bothers me more since I’m the one living with them and I vented about it in the group since nothing in the rules said it wasn’t allowed. I also put a content warning for the more sensitive bits. “ which according to her meant I don’t think her feelings are valid. She also said stuff along the lines of “ that chat isn’t made for you to vent about your chronic illnesses it’s made to complain about the occasional headache. “ I kept apologizing and apparently I’m an asshole for not following the unspoken rules.
When I apologized in the group I added “ if anyone has any issues with something I said please call me out / pm me directly instead of playing telephone “ which ig was rude. I wasn’t trying to be rude. I just dislike when people get mad I’m doing something wrong but refuse to tell me.
She’s like “ you need friends you make your chronic illnesses your personality “ and apparently me saying “ moving hurts, I can’t do things at the same level. I’m also not good at social skills. I don’t get a lot of opportunities to be social outside of a couple people like my partner who is willing to accommodate ( aka help me do tasks when I need it, be ok with taking breaks, doesn’t get mad when I need to stop doing something because I’m in pain ) but supposedly that’s an excuse and I’m using by disability as a crutch. Most of my energy goes into things like showering, cleaning, going to appointments, and I don’t always have a ton to do other things.

Another example:
I was in treatment in my teens for eating issues, I got in trouble a lot during group therapy sessions for talking about eating issues, why I developed them, my struggles, etc.. since apparently saying “ I struggle with feeling like I’m allowed food since I lived with a person who put stickers on the parts of the fridge, freezer, and cabinets saying they weren’t for me so I worry I’ll get in trouble for eating since I tend to think someone else deserves it more than I do “ is considered too triggering for group therapy. Even saying to the team “ hey the body image work doesn’t really apply to me, I don’t hate my body because I’m not thin enough I hate it because it hurts 24/7. “ apparently that’s just me being difficult and triggering.

I’ve gotten mad at therapists for it. They say ‘ express your feelings to your friends and family ‘ but when I do I do it wrong and it turns into me being an issue. Like when my therapist says “ tell that family member what they said hurt your feelings “ I get “ you’re just being sensitive things aren’t that bad “.

One of my therapy assignments to work on social anxiety stuff was to have a conversation with someone I didn’t know. Complimenting an outfit or asking a question nothing crazy. So I did. A lady was walking her dog, I told her that her dog was cute. Her response was “ ok you can go now “.

I hate talking to people, I like the idea of friends. But whenever I do something wrong they assume I did it on purpose and when I try to say “ I’m sorry I didn’t know that would be an issue, thanks for telling me. I did X because of X I misunderstood. “ is manipulative.

Want to ask about getting on medication for my ADHD and if any could also help me with autism ( sensory issues, feeling over stimulated, etc )

Trying to make a list of things to ask about.

Ik ADHD medications aren’t always needed but I’d like to ask about trying them to see if it could make doing tasks and being independent easier.

I was recently diagnosed with combined type ADHD and autism. So trying to figure out what my options are and overall just learn more.

Little back story..
After 3 days of feeling awful & being sick ( I assumed I just ate something which was making me feel sick ) I contacted a nurse line and asked for advice. She originally thought I had something going on with my appendix and told me to go to the ER. They did a CT scan and found a 4.2cm cyst on my left ovary. While the nurse said it wasn’t that big ( 4.2cm seems big but idk I looked it up and that’s a bit bigger than a walnut which seems concerning) he said to follow up with my GP.
Planning on calling my doctor’s office in the morning to see if I could get something scheduled with someone who specializes in follicular cysts to see what the options are to get fit of it. Ig usually they remove them around 5-6cm+ but I don’t want to wait for it to grow to have it removed since it’s causing me pain.
The pain isn’t bad rn since being given pain meds at the ER + some antibiotics to help the inflammation / mild infection ( which ig could be caused by the cyst? The nurse wasn’t 100% sure when he was answering my questions he was just playing telephone with me & the doctors who I never actually got to chat to )

I also learned apparently 1 in 10 people on the birth control I’m on will experience an ovarian cysts. So unsure if that somehow caused it? I went on birth control ( mirena ) because of horrible period cramps.

I have some questions for anyone who has had similar issues / any professionals here

For the doctor’s appointment is there any specific info I should give outside of what’s on my general medical chart? Like should I ask family members if they’ve experienced similar issues? Or is it not a genetic thing and wouldn’t matter?

Should I get my birth control removed? Would that help prevent further problems? Or would it not matter? If so, are there better birth control options that would stop my periods besides the pill? ( tried the pill before bled for literally a month straight it was awful I’m not doing that again ) I’ve been on mirena for around 2 years now.

What are the chances of it bursting? I’m kinda freaked out that it’ll pop inside me. It’s uncomfortable rn, it kinda just feels like I’m bloated on my left side. If it was to burst would it just come out of me like discharge or would I need to have it surgically vacuumed out of me? ( idk what’s inside of a follicular cyst.. I assume pus or some kind of fluid )

What can I do about the pain until I can see a doctor? Anything help? Is it like a period and I could just take pamprin or something to ease it? I haven’t been sleeping well because it feels uncomfortable.

What can I do about the nausea/vomiting and random bouts of diarrhea & urges to pee? Apparently it’s not as common of an effect but it’s sometimes a side effect of the cyst putting pressure on things. Do I just need to deal with that until it gets removed?

Am I overthinking? Apparently follicular cysts are fairly common so it makes me worry I’m overthinking it

Asked for help on r/askdocs and got nothing back. Idk what to do.

I have fibromyalgia, scoliosis, and torticollis.

I also have a 2 mm paralabral cyst along the posterior superior labrum with an underlying labral tear. A mild tendinosis within the supraspinatus at the distal insertion. & a mild subacromial/subdeltoid bursitis.

Basically my stomach has been hurting constantly. It’s mostly in my lower stomach. Lots of diarrhea / steatorrhea. At first I thought my stomach was just going through a phase like it does occasionally ( ig it’s a side effect of fibromyalgia to randomly have stomach issues? )
But it has been basically constant for 3 days. When my stomach is weird it usually last for a couple hours / a day at most.
My shoulder / back pain has been really bad too, it’s usually around a 4-7 on the pain scale but has been around 9-10. Hurts more when I breathe. The shoulder pain travels from my left shoulder down my arm & neck. So I can’t really do anything. I try holding stuff and I get shakey.
The neck pain has been giving me a horrible migraine. Which has been making me nauseous.
Light hurts so I’ve mostly been in bed. I’m so bored. I just want the pain to stop / go down to closer to what it usually is.
Medications aren’t working, they’re just making me nauseous and my stomach hurt more.

I’m curious if I should go to the ER or urgent care. Last time I went for pain ( it was my shoulder, back, and legs causing me pain to the point I didn’t sleep for like 3 days I was desperate I don’t really remember details I was really tired ) they just gave me an injection of Tylenol in my leg and said I was fine.

I don’t really want to waste energy on asking for help if they’re unable to do anything.

Asked for help on r/askdocs and got nothing back. Idk what to do.

I have fibromyalgia, scoliosis, and torticollis

I also have a 2 mm paralabral cyst along the posterior superior labrum with an underlying labral tear. A mild tendinosis within the supraspinatus at the distal insertion. & a mild subacromial/subdeltoid bursitis. So my shoulder just hurts.

Basically my stomach has been hurting constantly. It’s mostly in my lower stomach. Lots of diarrhea / steatorrhea. At first I thought my stomach was just going through a phase like it does occasionally ( ig it’s a side effect of fibromyalgia to randomly have stomach issues? )
But it has been basically constant for 3 days. When my stomach is weird it usually last for a couple hours / a day at most.
My shoulder / back pain has been really bad too, it’s usually around a 4-7 on the pain scale but has been around 9-10. Hurts more when I breathe. The shoulder pain travels from my left shoulder down my arm & neck. So I can’t really do anything. I try holding stuff and I get shakey.
The neck pain has been giving me a horrible migraine. Which has been making me nauseous.
Light hurts so I’ve mostly been in bed. I’m so bored. I just want the pain to stop / go down to closer to what it usually is.
Medications aren’t working, they’re just making me nauseous and my stomach hurt more.

I’m curious if I should go to the ER or urgent care. Last time I went for pain ( it was my shoulder, back, and legs causing me pain to the point I didn’t sleep for like 3 days I was desperate I don’t really remember details I was really tired ) they just gave me an injection of Tylenol in my leg and said I was fine.

I don’t really want to waste energy on asking for help if they’re unable to do anything.