u/PollyPiper11

I feel very alone with my symptoms, I sit most of the day just staring into nothing cos they are so bad I can’t actually function. Do others experience severe issues with their sensory nervous system ? These worsen by the day for me , eg today I have nerves burning all over body, they feel like texture of fine sand over the skin..then this horrible furry texture in my mouth..but each day i lose more sensation or they become more minuscule and they don’t return.My head is the main issue but I also don’t feel my body. I feel like there is something very wrong. And I don’t know how to get better. I feel in shock that every day it’s worse. My face looks totally different, I’ve lost most of hair and it’s drastically thinned out. I can’t take much more of this I need a sign of getting better. Starting to worry it’s much more serious or it’s getting worse and chronic like when does it end :(((

I got discharged from hospital yesterday despite feeling the worst I’ve ever been. It’s not good because I don’t feel safe at home, and since Ive got here my symptoms have drastically declined. Like now I can’t even sense myself and Im terrified, and I know it’s my brain’s interpretation of how my nervous system is behaving. All I think it’s it’s gotten more sensitized, and the more scared I get the worse it gets and I don’t know how to get better. I feel like I’m a severe case that is rare and I don’t know how to get better :(❤️‍🩹

Just wondering here if it’s even possible to get re admitted to a mental hospital once Ive been discharged? Im very unwell and believe I needed to stay longer, I did not yet get a stable medication that works for me. And I’m living back somewhere I don’t feel safe.

Are there any of you that have a sensitized nervous system here? I am exausted because this disorder seems to get worse every day for me and I feel like my nervous system is actually shutting down or getting so sensitized that now I have constant static hair, touching my skin feels like a micro numbness or tingling spreading everywhere ..like is it even possible to get the nervous system back to normal when it’s this bad. I be almost totally lost sensation or feel who I am and if I even have a body or head. It’s unreal and feels so scary that this is still happening. And unbelievable to me the doctor is saying he thinks it’s hypochondria because I believe this is life threatening. I actually do and I’m scared because this isnt normal :( I feel like my body is attacking or breaking down my nervous system because of a malfunction in my brain. It’s a horrible horrible illness and it’s making me panick

Hi, so I have a sensitized nervous system and I had a very bad reaction last time to escitalopram, they want to try me on this one instead..I had burning pain all over head and face and body, and it made things with my dpdr a lot worse. If anyone’s tried this who also has a senstive system and has had any luck?

Does anyone else have these disorders or had these and how did you recover? I posted gere a week or so ago but now it’s clear that it’s extreme CNS sensitization as I passed the phyical neuro exam. It is very scary and rapidly getting worse as I loose all sensation in my body. I only feel burning pain on my skin but it’s more like miniscule nerves and feels more like sunburn. It is really scaring me that these conditions get worse, and Ive not had a good time on antidepressants. And I keep trying them as I’m in hospital but I can’t manage long enough cos I severely reacted to the last SSRI. I wondered if it’s possible to reverse this type of damage and I’m so scared to try anything new. I didn’t know it could get this bad. Can anything natural help this kind of thing? I feel like I’m not even here but I think it’s my nervous system making me feel this way.

I feel totally de-realised and dissociated. But it's severe the nervous system is so damaged or sensitised now, I truly think I am a rare case. I feel like energy not even human. What is this?.. or more like not there, empty..and I'm just like this now..and it seems to worsen every day.. And the worst is, I don't feel my nervous system can repair, without it repairing, I have no idea how I would return back to my prior self. It is beyond what I believed could ever be possible for a human being. I just want to know if there are others like me, and have you gotten better?

Hello thought I’d ask here as im not able to get my eyes checked at the moment. Does anyone know what causes flashes of light in vision (like when someone turns the light on and off in a room) I get these 4/5 times a day. Aside from this I get grainy or glitchy vision it’s like I see tiny particles floating in the air all the time accept they are static mostly, the ones that are like lines disappear, but I’ll also see an object sort of repeat (like when you look at a bright light or the sun?) except it’s with objects. It’s a bit concerning. I do have anxiety and dpdr and I know these can cause visual disturbances/distortion. Any clues?

I am worried Ive not felt my body or head in weeks. I only feel nerves in my head which are very painful, and it’s getting me really down, im not in my body or mind it seems I just exist. But the physical has gotten so bad I’m worried about it being neurological now as well. My nervous system feels totally sensitized but it continues to worsen and I get too scared by all this so I don’t heal. I feel the nerves everywhere vibrating it’s a scary. Some of my old dpdr stuff is back too now but I have such a worn down nervous system they are like slight tremors of what I used to feel..I know the secret is to not be scared and not monitor all the time. I just need some hope there is a possibility to heal, even when your nervous system went through such a dramatic change.

I am trying not to panick as it doesn’t help with my symptoms.,..honestly i continue to be in shock at how this disorder could get any worse but it does daily and it is rapid in my case. However theres a few signs that I’m not sure if it’s even dpdr. Do you guys have a severely messed up sensory system? Is that common? Cos for me the melting away and dissolving happens but i have strong sensory symptoms like my mouth feels furry, even inside my throat and it’s hard to swallow..I have this horrid micro static symptom all over my hair and face 24/7 which is horrible and makes me feel sick..and it’s like all my atoms or molecules are becoming smaller. I also feel Ive lost most of my protective skin barrier and elasticity.. is that protects . I don’t know how to stop this,…my face burns when I touch it. Is it possible that there is another disorder of the nervous system here, that is degenerative? I know mine is sensitized but it is is so bad now and i cant stop it, and I don’t know how to explain this to a doctor, afraid they might think these are hallucinations..I just want to get well.

I'm going through what feels like a total breakdown of my nervous system. It literally feels like its being attacked daily, like I'm losing more and more physical sensation in my body and head by the hour, plus feeling like this is a potentially dangerous condition, and I'm not getting through right help.I'm in a mental health ward and they aren't taking it seriously, just tell me to wait to speak to the doctor which I am everyday but he is ignoring the physical. I feel like this could be very serious and I dont know what to do.

I wondered if anyone here as worked with herbs or found a more natural way to heal damaged nerves? Specifically interested in ones that support re growth of the myelin sheath and/or support a Central nervous system that has been over sensitized, to repair itself. Nature must have an answer :)

Following my previous post, I'm in hospital in a mental health ward, voluntary now, but ive had probably the worst experience of my life here, and I've only become more unwell since ive got here. I do have mh conditions -dpdr and anxiety, but I've had a rapid and deep decline in my nervous system simultaneously, and meds have made things exponentially worse. I'm now here voluntarily under the agreement I tried another drug, which I did and its severely harmed me. I feel hopeless and alone and desperate for neurological testing, I'm getting worse mentally as i'm physical health gets worse. And I'm probably going to be put under another section because I'm not being believed...I'm worried for my life, it does feel like what I'm going through symptom wise gets rapidly worse, but I dont know what testing to ask for :(

Ive been hospitalised for severe anxiety and dpdr, but neither of these diagnosis feel entirely right because my symptoms are massively physical, to the extent I feel like I'm going insane trying to be heard and seen and I dont know what to do. I feel like ive been dismissed so much that mentally and physically I have reached breaking point and things are rapidly declining by the day with my nervous system. But if I do anything, they just send me back here for mental health issues and I'm dismissed. I tried to get a neurologist exam privately, but because I'm in mental health ward they want a referral letter :( and doctors here aren't giving me one. I'm sorry but there are massive cross-overs with neurological and mental health conditions, it does not mean I dont have both. My sensory system is totally messed up, I feel things like electrical zaps in my head, total paresthesia over my whole body, loss of feeling/numbness in limbs, muscle weakness, cognitive decline, I get a furry feeling in my mouth, static over my whole head for weeks now, my nervous system as got so sensitised its totally breaking down and I dont know how to stop it. Mediaction makes it worse so far, I loose feeling..I can't even barely sense my head or body. But this happens when the sensations get too much, they are 24/7 and I only get relief in sleep. I am angry and scared and dont know how to go on. And I dot know what this could be cos it feels degenerative and rapid. any pointers or advice much appreciated.

General question, if I go to A&E will they give me an emergency scan? I'm in hospital but on a mental health ward, voluntary. Prior to this I was on section 2, and I have been complaining for weeks of severe nervous system breakdown/head pressure/complete loss of sensation in my body/vision changes, burning nerve pain all over body and just complete nervous system collapse, and these were ignored as anxiety symptoms. They are more than this. I know my own body. Question is it's impossible to get them to refer me to see a neurologist, and I have no other option but private or A&E now. Symptoms are so severe I need A&E I think.

Ive been hospitalised for severe anxiety and dpdr, but neither of these diagnosis feel entirely right because my symptoms are massively physical, to the extent I feel like I'm going insane trying to be heard and seen and I dont know what to do. I feel like ive been dismissed so much that mentally and physically I have reached breaking point and things are rapidly declining by the day with my nervous system. But if I do anything, they just send me back here for mental health issues and I'm dismissed. I tried to get a neurologist exam privately, but because I'm in mental health ward they want a referral letter :( and doctors here aren't giving me one. I'm sorry but there are massive cross-overs with neurological and mental health conditions, it does not mean I dont have both. My sensory system is totally messed up, I feel things like electrical zaps in my head, total paresthesia over my whole body, loss of feeling/numbness in limbs, muscle weakness, cognitive decline, I get a furry feeling in my mouth, static over my whole head for weeks now, my nervous system as got so sensitised its totally breaking down and I dont know how to stop it. Mediaction makes it worse so far, I loose feeling..I can't even barely sense my head or body. But this happens when the sensations get too much, they are 24/7 and I only get relief in sleep. I am angry and scared and dont know how to go on. And I dot know what this could be cos it feels degenerative and rapid. any pointers or advice much appreciated.

Ive been hospitalised for severe anxiety and dpdr, but neither of these diagnosis feel entirely right because my symptoms are massively physical, to the extent I feel like I'm going insane trying to be heard and seen and I dont know what to do. I feel like ive been dismissed so much that mentally and physically I have reached breaking point and things are rapidly declining by the day with my nervous system. But if I do anything, they just send me back here for mental health issues and I'm dismissed. I tried to get a neurologist exam privately, but because I'm in mental health ward they want a referral letter :( and doctors here aren't giving me one. I'm sorry but there are massive cross-overs with neurological and mental health conditions, it does not mean I dont have both. My sensory system is totally messed up, I feel things like electrical zaps in my head, total paresthesia over my whole body, loss of feeling/numbness in limbs, muscle weakness, cognitive decline, I get a furry feeling in my mouth, static over my whole head for weeks now, my nervous system as got so sensitised its totally breaking down and I dont know how to stop it. Mediaction makes it worse so far, I loose feeling..I can't even barely sense my head or body. But this happens when the sensations get too much, they are 24/7 and I only get relief in sleep. I am angry and scared and dont know how to go on. And I dot know what this could be cos it feels degenerative and rapid. any pointers or advice much appreciated.

Sorry I post here a lot. I feel I go through this totally alone and the doctors in this hospital actually know what dp/dr is really in depth or how to treat it. Thanks to a few people on this sub I feel much more knowledgeable and understand it better, it’s helped me feel less alone. But just when I thought it could not get any worse :( for me it feels like rapid decline. Daily. Did anyone else here have progressively worsening dp/dr? It has gotten so bad I feel I need urgent specialist care but I don’t even know what that care would he. My head is just non existent with a horrible almost wirey nerve sensations all around the surface. It’s psychologically very very hard. It makes me feel like I just I observe myself disintegrating. What the actual **** I’m angry basically, cos here that say it’s just my anxiety. Or because I haven’t been eating enough? Anxiety does trigger it of course it is just invalidating. Worried I’ll not handle this another day