u/kornukopioides

I was couchbound and feeling lots of fatigue throughout the day, so I decided to try creatine. After some days I became so full of energy.

It made me sleep better and wake up feeling so rested. I don't have to lay in bed anymore when I wake up, I can just get up in 5min of waking up. My brain fog is completely gone. I'm just so full of energy I don't even know what to do with it. Like I think it's too early to exercise but I feel like I could go for a jog if I wasn't so deconditioned from months of being bedbound.

I didn't know creatine is such a good supplement. I guess it's considered the no1 supplement for a reason. Combined with nervous system work this is so effective that I haven't even needed to try the LDN I got as a prescription.

I've got a severe case of post viral fatigue that wrecked my nervous system. I've been doing mind body work but I'm not able to move much yet. Sometimes my body starts convulsing without a reason, mostly when I'm relaxing in bed.

Is this spontaneous TRE? Is it my body releasing tension and trauma from muscles on its own? I don't feel emotionally different when it happens. Last night my toes and feet were just convulsing for an hour, as well as my hips. It's like a tremor.

Hi, I know many here have got CFS as a result of a virus such as long covid. EU just published a 4 year study on LC. What's your opinions?

My main physical symptoms are fatigue, burning skin and brain fog. It's pretty easy to respond well to them as they aren't harmful and I know my brain is in 100% control of generating these symptoms, so nothing caused by my actual body.

How do you respond well to mental symptoms though? Anxiety seems easier as you can sort of say "it's okay nervous system, lets calm down, we are safe" but what about depression and all the grief?

Some days I just try so hard to be positive but the depression encumbers me and I break down in tears. I will say things like "I just wanna get better, this would've not happened if I didn't catch that cold, it's not fair, I should be able to go outside and enjoy my pregnancy" etc. A lot of the thoughts/words are just pitying myself and being angry at others. After I cry I usually feel lighter, so I try to look at it as a good emotional release.

But man it sucks. Any advice?

BENQ MH741, I got it connected to the laptop with HDMI and the movie keeps freezing every 5sec on the projection, while continuing to play on desktop. Moving the mouse unfreezes it for another 5 seconds. I tried changing the HDMI port but no luck.

Any advice?

Või muu viiruse tekitatud raske väsimusega? 2 kuud olen voodis lamanud väsimuse ja erinevate sümptomite käes peale nohuviirust. Olen igast arstikabinetist läbi käinud, kõik uuringud on normaalsed ja konsensus on et seda ei saa ravida ja peab lihtsalt ootama paranemist.
Kas on kogemusi või teate kedagi kes seda läbi käinud?

I've been bedbound for 2 months since getting a virus. I got sick at the end of first trimester and it hasn't really seemed to get better. Doctors can't do much. Has anyone gone through this or knows about it?

Been this way since getting ill 2 months ago, would love to share experiences with nervous system work and progress if anyone is in the same situation.

Or it anyone has been in the same situation I'd love to hear personal stories too

I'm becoming better at reducing fear around physical symptoms as I know they are 100% neuroplastic. I've been having a flare for 4 days now (an adjustment period perhaps?) and the physical symptoms haven't bothered me much.

However it's the psychological symptoms that are harder not to respond with fear - malaise, poisoned feeling, doom, panic, anxiety. I use breathing and crying as a way to soothe my nervous system and it helps.

I'm wondering in overwhelming psychological symptoms instances, can it be helpful to take benzos? I take a small dose of oxazepam and it stops all symptoms (physical and psychological) for me, so I know they are ALL neuroplastic symptoms. I continue calming and assuring my body while taking a benzo and continue gentle activity expansion to convince my brain we're safe.

What do you think? Can benzos be helpful to avoid panic and fear spirals, or will they hinder real nervous system work?

For those who got CFS from a virus, have reinfections affected you? Do you fear getting reinfected? Can reinfections affect you if you already have trained your nervous system to be stable and respond well?

I managed to eliminate my physical symptoms (fatigue, burning skin, light&sound sensitivity etc) by not paying attention to them. My brain tried many other symptoms to catch my attention - headaches, muscle pain, diarrhea, tremors, etc. I knew what my brain was doing and didn't mind those symptoms either.

I've made fast improvement from bedbound dark room to moving about more and sitting up in 2 weeks. However expanding my activity brings on strong anxiety. It's like my nervous system saying "is what we're doing safe?" And I try to assure it's safe. It almost feels like some psychological PEM response, it goes away with rest. I can even feel that if it gets very strong and I start feeling fear, the physical symptoms try to return. I'm good at calming myself so they don't come back though.

Anybody been through this while expanding activity?

I was bedbound, dark room, only able to walk to bathroom, barely able to use my brain, etc. I found comfort in listening to Raelan Agle's interviews with neuroscientists and I suddenly realized my body isn't ill in any way and it's all just the wrong signals from my brain. I stopped all meds (H1&H2, propranolol, benzos, quetiapine) I started eating sweets and not caring about a perfect diet. Nothing bad happened. My physical symptoms like crushing fatigue, burning skin, malaise, PEM stopped.

Overnight I was able to tolerate light and sound again.
I started speaking more without tiring and screen time capacity grew from 1hr to 3hrs.
I smiled and laughed and hugged as much as I could to produce oxytocin and signal safety to body
I started walking and sitting up more.
I was able to watch videos again.
Yesterday I brushed my hair for the first time in 2 months! It's super long and hard to brush.
Today I'm reading a book!!! And it's not so tiring for my brain.

I told myself, lets not worry about PEM, because every time I'd so something I'd always have the anxious thought "what if this causes pem?". But pem can be caused by just anticipating it. So I said, every day at 4pm-5pm I will allow my self to worry about pem. If anxious thoughts come up outside of that timeline I'll tell myself we will think about it on its scheduled time. And by 4pm I usually forget. So I haven't really worried about pem anymore in days.

I still have psychological symptoms and I'm choosing to give them attention as I feel like they're a more direct way of my brain communicating with me. Lexapro 5mg has been a huge help and I also try to continuously relax my body and mind. I've still got a long way to go but I've seen such rapid improvement in just 2 weeks!

EDIT: I thought this was a safe subreddit to share nervous system healing based recovery. I've shared what worked for me, including the belief that works for me, in hopes of helping others but instead many react negatively to this information. I'm going to stop responding to comments, I hope everyone is able to heal as quickly as their nervous system allows them to🤍