Eye strain/pain, insomnia, and depression; could this be neurological?
Context: I have GAD and MDD. Anxiety had been particularly bad since April 2025 and depression since October 2025. Was improperly tapered off an SSRI I was taking (had been on it for 12 years, was told to taper off over the course of a week!) which sent me into a revolving door of psychiatric medications.
Shortly after an emotional "crash" (nonstop ugly crying and a feeling of derealization) in March, I began developing light sensitivity. At first this was triggered only by looking at screens or things that move rapidly. It was shortly after I increased the dose of the SSRI I was on at the time, Lexapro, so my psychiatrist said let's go back down and get you into see an ophthalmologist.
So I saw an ophthalmologist. Then another. Then another. Beyond checking my eyes for glaucoma and dry eye, none of them could give me an answer. I do not wear glasses and never needed them. Meanwhile, my eye strain was progressing, and it became difficult to drive without feeling some sort of pain. I invested in a heated eye mask and eye drops, but neither made much of a difference.
I switched to Trintellix. Started doing Spravato for MDD. They helped my cognitive symptoms of depression a tad but not much else. My vision really began to bother me; now my eyes are more or less hurting me all the time. My psychiatrist said serotonin can affect your vision so let's try to wean you off the Trintellix and use Rexulti as a bridge.
Results: not good. Not only are my eyes still hurting, but I occasionally have trouble seeing in the dark now. I also feel extremely sluggish, fatigued, and low; obviously could all be symptoms of depression, but I am just getting the feeling that something is "wrong." I don't know how else to describe it, but I'm suffering.
I have an awful time sleeping without trazodone and literally cannot nap. I got a sleep study done and aside from a REM latency of 11 minutes, nothing seemed out of the ordinary. I suspect this is also related to my depression.
The ONLY thing that brings any sort of relief is clonazepam, 0.5-1 mg. It temporarily takes the eye strain away. A neurologist I saw said this isn't very helpful because we don't know which aspects of the clonazepam (anti-anxiety, muscle relaxant, anti-convulsant) are working. I am acutely aware of the dangers of taking benzodiazepines for a prolonged period of time and I'm terrified that I'm going to get addicted, but my psychiatrist said if this is what's working for me then keep doing it as a bridge.
My problem is I don't know where this bridge is going. I've been in an IOP program for 5 weeks and they're all lovely people but I can't focus on the material or my peers very well because of my cognitive symptoms. I've had depression before but it did not feel like this. It just feels like something is wrong neurologically. I have a neuro-ophthalmologist appointment but that's not until October. Right now my symptoms are just feeding into my mental health in one big nasty loop.
Any suggestions, advice, or good vibes would be GREATLY appreciated...thank you.
P.S. had an MRI in June, it came back clean. I recently had a QEEG that will inform TMS treatment.