u/flynn1597

so i thought that i was making great progress on the waiting list for my assessment since when i got referred it stated 16-24 weeks on average! i'm on week 28 at the moment so i decided to go look on their website to see if they'd updated the times just so i knew where i stood (they explicitly have told people to NOT email them to ask).

clicked on my ICB and saw 78 weeks quoted. and tbh i just had a breakdown. i was crying, hyperventilating and just feeling so hopeless. i know people have waited years for an assessment but i was just going off the time i'd been told by them. i just feel really crushed because i'm struggling a lot with trying to navigate life with my (heavily suspected by medical professionals) autistic traits alongside lots of other things - my ADHD, ongoing health issues, newly diagnosed HSD.

how do people cope when waiting? the not knowing is so hard for me. i know getting a diagnosis won't suddenly make my life easier but understanding myself more will help surely - regardless if i'm diagnosed from the assessment as autistic or not.

everyday i find myself just lost in life and with no support on how to manage. i'm just frustrated and finding everything really hard so having this knockback too was just too much for me.

hi, i'm struggling with my pores seemingly getting bigger and bigger and the areas where they are very visible seem to be expanding too? it's very concentrated on my nose, around my nose, chin, forehead and cheeks (t-zone and spreading outwards). i know pores are normal but they are just getting bigger and i just feel conscious of them :(

my routine:

tea tree + salicylic cleansing pads (2 x daily as per the instructions)

medicube mild toning pore pads (every other day)

medicube pore toning pads (1-2 times per week - never on same day as mild ones - this was suggested to me by the company themselves!)

glowhub vitamin C serum daily (PM) (using it to minimise melasma on upper lip)

tea tree spot gel (as needed)

aveeno oat gel moisturiser (AM + PM) (wanting to find something new because my skin is no longer very dry but instead oily)

is my lack of a facial scrub maybe the issue? i always felt like they seemed quite harsh but anything to help improve pore appearance!

product suggestions would be amazing thank you! <3

wow. my 60mg elvanse which usually kicks in pretty well (sometimes a little shaky/overstimulated) has hit like A TONNE OF BRICKS today! i am so diabolically anxious and feeling really dissociated D:

like dang - these days really take you by surprise! it's definitely such a rollercoaster knowing how the meds might hit on any given day huh!

anyone get this now and again? how do you breathe through it if you're a super anxious person like me? i've been on my meds 6 months now but turns out i can still be blindsided by them!

hi :3

looking for some halloween themed blindboxes to unbox! 🎃

does anyone have any recs? i've opened sonny angel ones ofc + most of the halloween-coded popmart ones too!

thanks in advance! <3

genuinely at the end of my tether with careADHD at this point - i cannot wait until i'm finalised on a dose and can leave them behind!

every single review appointment i'm chasing them up for 2+ weeks before hand asking them to book it and every time it's radio silence. can't get through on the phone lines just goes dead.

i'm so exhausted from trying to figure out my dose and then this extra stress is just awful. i realise i'm very privileged to even be on meds but i did not expect this sort of terrible service ;w;

sorry for vent just close to tears EVERY single time a new appointment is needed. I need to book in my 8th appointment and they still won't tell me what happens after the 9th one - do I have to pay per session? How much is it? it's really hard bc i'm struggling to find the right dose for me (and lowkey need to take things slow due to hormones) and i'm under a lot of pressure and they refuse to tell me what happens after appointment 9 if i'm not settled.

UGH

hi everyone <3 i am struggling immensely right now and my health is declining FAST. i'm kind of at a loss of what to do in terms of 1. finding support 2. managing symptoms 3. keeping positive

summary of issues/symptoms

- chronic fatigue

- chronic plantar fasciitis + congenital valgus ankle (was never corrected during childhood)

- hypermobile knees - severe "banana" shape, pain when bending, pain when sitting too long, crunching + cracking of knees (and all joints)

- muscle adhesions throughout legs

what i've done

so far i've been to a foot + ankle clinic that want to do fascial manipulation on my legs in the hopes it will help the plantar fasciitis too (but it will cost a small fortune - which i don't have)

- self-referred to the musculoskeletal service (june) - they designated my case to the podiatry team (but i'm worried since it's not just my feet?)

- referred to chronic fatigue service (january) (after blood tests)

- use KT tape for feet + knees

- use a spiky roller on feet daily

- use a calf stretcher

i'm totally lost on what to do. i'm in a lot of pain and it feels like i'm just alone with it.

question: has anyone experienced similar symptoms willing to share their story perhaps?

or does anyone have any experience with musculoskeletal problems and being treated in the uk?

hi everyone! new to the sub but not new to panic disorder lmao! * = question begins

i've struggled with it a lot during my life but it all came to a head nov 2024 when my body just couldn't handle. had a really severe panic attack completely out of the blue - experienced symptoms like body spasms for the first time and i was convinced i was fully losing it.

i've had therapy (need more lol but ran out of nhs sessions) and tbh finding out i have adhd + potentially autism too has made a lot of sense of things for me. i am DEEPLY sensitive to my body and how it feels. this often causes panic. i've now learnt this is interoception sensitivity and i did some exposure for it which has helped. the derealisation my body goes into sometimes will still cause me panic though :( it feels like everything isn't quite right and gives me a sense of impending doom.

*****anyway, recently i've had some derealisation again (i get it a lot but this was more intense) and it seems connected to the weather. in the uk atm it's been threatening storms and the pressure has been plummeting. it's made me feel dizzy, nauseous, anxious, panicky, dissociated etc. previously i'd have thought i was losing it but now i'm like...wait this is a pattern.

does anyone else experience worsened symptoms to do with weather and/or barometric changes? i feel kind of a bit alone with it atm. it's hard to explain to those who don't "get" it. trying to describe derealisation to anyone is also hard - they just look at you like "wtf are u on about" x-x

hi! i've been using discord a loooong while now but i still haven't figured some things out lol!

if i ping @/here or @/everyone in a thread will it only ping the people IN the thread or the whole server?

i wanna be able to use @/here for things that need quick attention and/or action but i don't wanna ping everyone who is online in the server - just those who are online in the thread itself!

how does it work 😭

hi everyone - hope you are all well! <3

basically i'm realising more and more that there are certain things that elvanse really helps me to focus on and other things...it does not at all 😅

*i'll preface this by saying i know 100% medication isn't a "cure-all" or is meant to be the only tool so please bear that in mind when replying

i'm finding that no matter how much i absolutely desperately try to get my brain to get started on something else (mainly creative things like art) it will still focus in on the more "admin-y" tasks.

i'm a part-time content creator for context so admin for me looks like: editing videos, making social post announcements, making graphics, uploading videos, making thumbnails, sponsored posts etc.

i'll lock IN on these but struggle massively when it comes to my executive function when i want to do something creative :/ i have SO much to do with my small business but i can only seem to get my brain to engage in the admin tasks like social posts, advertising or designing packaging etc.

has anyone else experienced this massive block with more "physical" art/creative things? i.e. painting, crafting, journalling etc.

i'm finding it really frustrating i won't lie! >:(

got my first thermal plant down powering a small base to charge power cells...and i'm like okay cool let's mine some titanium with the prawn...

oh. i forgot to depth upgrade it x-x so i can't go to the >!inactive lava zone!< for kyanite :((

oh! i'll make a moonpool w/ an upgrade panel and do it here! oh...i didn't bring ANY lubricant down here ;w;

well...guess i'm travelling alllllllllll the way back to my moonpool 😭 devastated ngl i spent so long getting down to this point after making many wrong turns and dodging the ghosties!

hi,

basically i'm a physical medium artist and i work mainly with acrylic paint but also sometimes polymer clay too.

these things are hard for me to do as i struggle with fatigue and honestly very bad executive dysfunction when it comes to physical tasks. it seems that digitally i can get a flow going much easier.

i've been creating digital designs from my own hand-painted pieces and it's been really fun to mix the mediums!

i also have an interest in creating things (i.e. animals, objects) from digital shapes alone but wasn't sure if 1. this was even considered art or if it was just graphic design and 2. if it would be okay to ever market it if i wanted to?

obvs art is very subjective and to me i'd class it as art as you're creating something using basic shapes (i.e. not anyone else's design legit just squares, circles etc.) and making it into something totally new and unique.

thoughts?

hi,

so I was referred to the PCASS (persistent conditions assessment and support service) as they state on their website they do cover suspected ME/CFS. So my doctor referred me and then about 10 days later we get a response telling me my referral was "rejected" because they didn't see how the PCASS could provide support to me and suggested it was "fatigue"...which I of course know xD

They suggested a referral to the "CFS service". But then I've heard nothing and I can't seem to find this service online. The PCASS site for my area literally states it is appropriate for ME/CFS?

Has anyone experienced this? Have you been referred to this mystery "CFS service"? I'm really confused. I'll be phoning GP on monday but trying to get as much information as possible too.

hi everyone! :3

relatively new dimoo collector here (collect other popmart IPs - mainly hirono atm but also in the past crybaby, the monsters, peach riot)!

i saw somewhere online the dimoo aquarium series but i don't have any info on it! i'm assuming discontinued but was it a certain location exclusive?

i want them so desperately haha - i love all things marine!!

hi friends,

i am struggling so so much to market my small business selling handmade accessories, jewellery + art bits ;w;

it is an absolute struggle to get anyone to click on my link to visit the website and i'm just like ?!?! what do i do?

my neurodivergent brain is very much whirring over "what am i doing wrong" and desperately wanting to fix it :(( this is the only way i can support myself and i'm just finding it so upsetting seeing views get lower and lower. it's been 2 whole months with no sales and incredibly low views.

what i do at the moment [in terms of marketing]:

&gt; advertise online on s o c i a l s

&gt; email marketing (newsletter subscribers)

please any advice i am desperate for help with this! :3

hi everyone,

it's another "care adhd are terrible" post 💀 but in all seriousness i'm having some issues that maybe someone can shed light on? questions highlighted in bold

so i've been in titration since early march and slowly titrating up to my current elvanse dose. according to my emails i'm on "T6" i.e. appointment 6 so my next one will be T7.

my new clinician (my other one is too busy for me now ;w;) emailed post-T6 appt. and there was a bit at the bottom telling me how on RTC you get three sessions by default. i wasn't made aware of this whatsoever - they've been booking me in no problem for further follow-ups as my dose has been adjusted etc.

it says that there could be some kind of additional charge for extra sessions?! which was alarming as this is the FIRST time they've said this. i'm not settled on a dose yet so not ready for shared care and require more appointments.

Q: anyone else in titration with care adhd - how many appointments did you have? did you have to pay?!

i'm having major issues contacting them (who is surprised) but it's genuinely impossible to get them to respond to me via phone or email when i have issues in between appointments??

Q: how are people getting in contact with them? is there any hacks for it?

it causes SO much anxiety because i feel like i'm completely on my own between appointments despite them telling me to get in contact if there's any issues etc.

this is not how i thought titration would be...i feel very much unsupported especially now since i have a new clinician and they weren't very good in my last appointment at all...

hi,

my mum is prescribed pregabalin predominantly for her severe nerve pain associated with her fibromyalgia and it's been doing amazing things for her level of pain.

but, whenever the weather gets warmer (temp. but also increased humidity) she seems to be in more pain again and struggles with feeling a bit "out of it" and just out of sorts.

anyone ever experienced this? can heat impact the meds? do they increase heat intolerance maybe?

she wants to keep on them because it's the first time her doctor has actually listened and bothered to give meds and they have been helping but she's getting despondent now with these side effects :(

hi there!

really needing a bit of help with my skin tbh. i feel overwhelmed with all the different advice out there so i thought i'd post a summary here + what i use and then maybe someone has some advice? my goal is to have more glowy + even skin (i.e. less texture + discolouration)!

skin issues

- large pores that seem to just be getting worse and worse (i.e. more visible) on my nose, cheeks + chin

- no idea how to prevent whiteheads so dealing with them constantly!

- skin has transitioned from very dry to oily/combination (very oily t-zone and dry patches - e.g. around my eyes) in last few months

current routine

aveeno oat gel moisturiser (twice daily)

glowhub toning pads (every other day)

medicube zero pore pads mild (daily)

medicube zero pore pads (swap them out with mild ones twice a week)

medicube zero pore 1-day serum (every other day)

any advice appreciated mainly to minimise pores + get my skin looking soft/glowy! 🥹

hi everyone - 1st post here! i hope i've tagged it correctly with the flair!

so, i have a lot of stuff going on with my skin atm and honestly i'm kind of like unsure what to do to best help improve things? so i thought "i bet there's a subreddit that could maybe help" and now i'm here!

imma split it up into easier to read sections + bold bits = key information

1. huge pores

so, my pores around my nose and across my cheeks are pretty huge. they've always been visible but recently (i've noticed them more over the past few months i guess?) they've become so huge 😅 especially on my nose + the parts at the side of my nose just before my cheeks. i regularly clean out my pores with one of those pore tools alongside using the medicube zero pore pads + zero pore serum. nothing really helps tbh - there is always gunk coming out of them and maybe that's what has made them so huge and visible??

2. lots of whiteheads

i've always had whiteheads, especially during the 2nd half of my cycle but i seem to get them more and more especially teeny ones around my nose/mouth. i'm never sure exactly what to do about them. i stick on spot stickers and hope for the best alongside using spot gel but i'm never sure what to do - is there something preventative for this?

3. dry skin transitioned to combined/oily

i've always had very dry skin [eczema etc.] but recently seems like around my nose, chin, forehead + cheeks my skin is so much oiler than before. i use the aveeno oat gel moisturiser bc it's the only one i'm not allergic too (paraffin allergy ;w;)

okay so that's the main issues. i also have scarring around my eyebrows from dermatillomania but i'm using scar tape to hopefully fade them.

does anyone have any tips on how to manage any/all of these issues?

full list of products i use:

aveeno oat gel moisturiser (twice daily)

glowhub pore pads (every other day)

medicube zero pore pads mild (daily) - swap out for the regular kind twice a week

medicube zero pore 1-day serum

what should i maybe add to help?