chronic fatigue service in the uk? NHS

hi,

so I was referred to the PCASS (persistent conditions assessment and support service) as they state on their website they do cover suspected ME/CFS. So my doctor referred me and then about 10 days later we get a response telling me my referral was "rejected" because they didn't see how the PCASS could provide support to me and suggested it was "fatigue"...which I of course know xD

They suggested a referral to the "CFS service". But then I've heard nothing and I can't seem to find this service online. The PCASS site for my area literally states it is appropriate for ME/CFS?

Has anyone experienced this? Have you been referred to this mystery "CFS service"? I'm really confused. I'll be phoning GP on monday but trying to get as much information as possible too.

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u/flynn1597 — 4 days ago
▲ 5 r/Kofi

how do we get this to stop doing this? OBS overlay

i am at wits end :(

any help??

have tried to "interact" with source but there's nothing to click?

u/flynn1597 — 10 days ago
▲ 4 r/Dimoos

what happened to the dimoo aquarium series?

hi everyone! :3

relatively new dimoo collector here (collect other popmart IPs - mainly hirono atm but also in the past crybaby, the monsters, peach riot)!

i saw somewhere online the dimoo aquarium series but i don't have any info on it! i'm assuming discontinued but was it a certain location exclusive?

i want them so desperately haha - i love all things marine!!

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u/flynn1597 — 12 days ago

so...is it normal if creatures get IN to your cyclops or...?

just wanna be prepared in case a fricking reaper turns up or sm ;w;

i tried to move my cyclops away and it...died?!

u/flynn1597 — 12 days ago

[marketing] how to market an art small business??

hi friends,

i am struggling so so much to market my small business selling handmade accessories, jewellery + art bits ;w;

it is an absolute struggle to get anyone to click on my link to visit the website and i'm just like ?!?! what do i do?

my neurodivergent brain is very much whirring over "what am i doing wrong" and desperately wanting to fix it :(( this is the only way i can support myself and i'm just finding it so upsetting seeing views get lower and lower. it's been 2 whole months with no sales and incredibly low views.

what i do at the moment [in terms of marketing]:

> advertise online on s o c i a l s

> email marketing (newsletter subscribers)

please any advice i am desperate for help with this! :3

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u/flynn1597 — 14 days ago
▲ 3 r/ADHDUK

care adhd issues (when do they end atp)

hi everyone,

it's another "care adhd are terrible" post 💀 but in all seriousness i'm having some issues that maybe someone can shed light on? questions highlighted in bold

so i've been in titration since early march and slowly titrating up to my current elvanse dose. according to my emails i'm on "T6" i.e. appointment 6 so my next one will be T7.

my new clinician (my other one is too busy for me now ;w;) emailed post-T6 appt. and there was a bit at the bottom telling me how on RTC you get three sessions by default. i wasn't made aware of this whatsoever - they've been booking me in no problem for further follow-ups as my dose has been adjusted etc.

it says that there could be some kind of additional charge for extra sessions?! which was alarming as this is the FIRST time they've said this. i'm not settled on a dose yet so not ready for shared care and require more appointments.

Q: anyone else in titration with care adhd - how many appointments did you have? did you have to pay?!

i'm having major issues contacting them (who is surprised) but it's genuinely impossible to get them to respond to me via phone or email when i have issues in between appointments??

Q: how are people getting in contact with them? is there any hacks for it?

it causes SO much anxiety because i feel like i'm completely on my own between appointments despite them telling me to get in contact if there's any issues etc.

this is not how i thought titration would be...i feel very much unsupported especially now since i have a new clinician and they weren't very good in my last appointment at all...

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u/flynn1597 — 14 days ago

posting for my mum - humidity/heat affecting meds?

hi,

my mum is prescribed pregabalin predominantly for her severe nerve pain associated with her fibromyalgia and it's been doing amazing things for her level of pain.

but, whenever the weather gets warmer (temp. but also increased humidity) she seems to be in more pain again and struggles with feeling a bit "out of it" and just out of sorts.

anyone ever experienced this? can heat impact the meds? do they increase heat intolerance maybe?

she wants to keep on them because it's the first time her doctor has actually listened and bothered to give meds and they have been helping but she's getting despondent now with these side effects :(

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u/flynn1597 — 22 days ago

need some tips with some skin concerns?

hi there!

really needing a bit of help with my skin tbh. i feel overwhelmed with all the different advice out there so i thought i'd post a summary here + what i use and then maybe someone has some advice? my goal is to have more glowy + even skin (i.e. less texture + discolouration)!

skin issues

- large pores that seem to just be getting worse and worse (i.e. more visible) on my nose, cheeks + chin

- no idea how to prevent whiteheads so dealing with them constantly!

- skin has transitioned from very dry to oily/combination (very oily t-zone and dry patches - e.g. around my eyes) in last few months

current routine

aveeno oat gel moisturiser (twice daily)

glowhub toning pads (every other day)

medicube zero pore pads mild (daily)

medicube zero pore pads (swap them out with mild ones twice a week)

medicube zero pore 1-day serum (every other day)

any advice appreciated mainly to minimise pores + get my skin looking soft/glowy! 🥹

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u/flynn1597 — 22 days ago
▲ 2 r/SkincareAddicts+1 crossposts

[routine help] so much going on with skin - overwhelmed! help?

hi everyone - 1st post here! i hope i've tagged it correctly with the flair!

so, i have a lot of stuff going on with my skin atm and honestly i'm kind of like unsure what to do to best help improve things? so i thought "i bet there's a subreddit that could maybe help" and now i'm here!

imma split it up into easier to read sections + bold bits = key information

1. huge pores

so, my pores around my nose and across my cheeks are pretty huge. they've always been visible but recently (i've noticed them more over the past few months i guess?) they've become so huge 😅 especially on my nose + the parts at the side of my nose just before my cheeks. i regularly clean out my pores with one of those pore tools alongside using the medicube zero pore pads + zero pore serum. nothing really helps tbh - there is always gunk coming out of them and maybe that's what has made them so huge and visible??

2. lots of whiteheads

i've always had whiteheads, especially during the 2nd half of my cycle but i seem to get them more and more especially teeny ones around my nose/mouth. i'm never sure exactly what to do about them. i stick on spot stickers and hope for the best alongside using spot gel but i'm never sure what to do - is there something preventative for this?

3. dry skin transitioned to combined/oily

i've always had very dry skin [eczema etc.] but recently seems like around my nose, chin, forehead + cheeks my skin is so much oiler than before. i use the aveeno oat gel moisturiser bc it's the only one i'm not allergic too (paraffin allergy ;w;)

okay so that's the main issues. i also have scarring around my eyebrows from dermatillomania but i'm using scar tape to hopefully fade them.

does anyone have any tips on how to manage any/all of these issues?

full list of products i use:

aveeno oat gel moisturiser (twice daily)

glowhub pore pads (every other day)

medicube zero pore pads mild (daily) - swap out for the regular kind twice a week

medicube zero pore 1-day serum

what should i maybe add to help?

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u/flynn1597 — 22 days ago
▲ 8 r/ADHDUK

how to stop monetising hobbies?

hi,

i am currently struggling massively with the inability to just do hobbies without trying to monetise them :(

i cannot work so have very little ways to support myself so my brain keeps trying to monetise hobbies but the issue is then that i struggle to enjoy the activity because my brain associates it with sales or how many ppl clicked to visit a website (run a small business selling handmade things).

how do i stop this? 🥹 i want to break the cycle of my brain forcibly doing this :((

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u/flynn1597 — 23 days ago

how are we carrying our bottles?

hi everyone!

i have a 32oz flex straw wide mouth and i'm wondering how people carry them around? i normally just use the strap but was wondering if people could share how they best carry theirs!

a sling? a strap? ideally would love something that suits being attached to a bag for ease/when empty! :>

also are the boots worth getting? (i am a hydro flask newbie!)

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u/flynn1597 — 24 days ago
▲ 1 r/ADHDUK

slightly odd experience with different elvanse doses to accommodate luteal phase?

hi everyone! will provide a bit of background so the actual question will be in bold for ease <3

i'm afab (assigned female at birth) and have a menstrual cycle and honestly i have always struggled with it but more recently (last year an a half maybe) my luteal phase has been brutal. terrible mood, really low, bursting into tears, overwhelmed, bad anxiety - just like pms but x100 it felt like.

and i guess things got worse starting elvanse because the doses just did not do anything during my luteal phase and it was hellish. so my clinician decided to try 3 weeks of 50mg and 1 week of 60mg - this worked okay but it didn't allow for any flexibility as sometimes periods can be very unpredictable ;w;

so i've been trying 2 weeks 50mg and 2 weeks 60mg - and oh my GOD the 2 weeks at 60mg were amazing! no horrible symptoms, meds kept working, didn't even notice i was close to my period at all!

and then fast forward to now. my period has ended and i've been back on 50mg for 4 days now. and i'm feeling rough. migraines + tension headaches, really dissociated feeling (which triggers my panic disorder so much) - just really rubbish.

so i was wondering, has anyone experienced any side effects when reducing their meds? is that possible just from a 10mg decrease? the timing of it lines up too much that it feels like it can't be a coincidence? can't find anyone else speaking about this happening so i was like ah i will head to r/ADHDUK !! <3

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u/flynn1597 — 29 days ago

been told i'm too morally rigid and it makes people uncomfortable around me? [tldr: friendships, morality, rejection issues]

hi,

first post here kinda nervous ;w;

tldr: being labelled as a "problem" for being too morally rigid even by fellow neurodivergents and feeling sh*tty about it and unsure how to proceed

so yeah basically i've been having *a lot* of issues with friends/acquaintances lately and it feels like i'm always made out to be some kind of "problem" for other people? and honestly it hurts so much.

i've had a close friend semi-recently fall out with me because i took a moral stance on something and they thought it was way too strong and eventually opened up about how they don't like to tell me about anything now for fear i'll "cancel it" and judge them for it.

this hurt me a lot bc i honestly didn't think my take was that strong and i did express that too. they describe themselves as neurodivergent too [undiagnosed but ofc self-diagnosis is valid] and i think that hurts more bc i'm like...why can't you understand me better? you know that i'm not acting in any type of way by choice - this is who i am! they are very aware i struggle with rejection sensitivity alongside moral ocd yet still they hurt me and haven't apologised for it either. it's made me feel really uncomfortable with myself.

and recently i reacted strongly to an actual rejection and yes i may have been very emotionally charged but i was valid in doing so [others confirmed] but instead of talking about things they shut me out completely and refuse to speak to me again - despite me not actually doing anything "wrong" but just refusing to let them pretend how they handled a situation was fair or in any way a nice thing to do to a "friend" [me].

i've had many other examples too. and in all of them i haven't actually done anything "wrong" but the other person has put this label on me that i'm too morally rigid and it puts people off me. and that really f*cking hurt. and still does. i've withdrawn from people so much more since because i'm lost trust given people very close to me think i'm some kind of a problem.

i struggle a lot socially but do experience loneliness. i want to be more social but i find it hard bc people seem to be repelled by me or they think i'm a problem just for being myself and not acting poorly towards anyone?

i cry most of the time now because of it bc i don't understand what i've done so wrong that people avoid me or shut me out?

how am i meant to get through life like this? :(

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u/flynn1597 — 1 month ago

Book with a water fountain display? Takes place on/near a building with a moat and drawbridge? Water display set to music?

looking for a children's or YA novel I read in the early 2000s (the book could be older). a young girl/child is with an eccentric elderly/old man at this kind of run-down estate. there was a main building with a moat + drawbridge.

the old man was an inventor/tinkerer. he built an elaborate water display to music. all i can remember is sparkling jets of water danced in time forming shapes? the display was presented to an some kind of like audience??

genuinely losing it 😭 any thoughts appreciated!!

reddit.com
u/flynn1597 — 1 month ago

Book with a water fountain display? Takes place on/near a building with a moat and drawbridge? Water display set to music?

looking for a children's or YA novel I read in the early 2000s (the book could be older). a young girl/child is with an eccentric elderly man at this kind of run-down estate. there was a main building with a moat + drawbridge.

the old man was an inventor/tinkerer. he built an elaborate water display to music. all i can remember is sparkling jets of water danced in time forming shapes? the display was presented to an some kind of like audience??

genuinely losing it 😭 any thoughts appreciated!!

reddit.com
u/flynn1597 — 1 month ago

how to market a small art business? pls help!

hi friends!

first post here! :>

i run a [very] small art business selling handmade jewellery, accessories, art + now also some print-on-demand pieces featuring original designs!

i have A LOT of issues trying to encourage traffic to my website :( it's been an ongoing struggle! i use social media to post about stuff + advertise but engagement is so so poor and pretty much no one actually clicks through to check out my website ;w;

does anyone have any tips at all?? i'm really enjoying expanding and making new products but they're usually not seen by anymore and definitely not purchased. it's been well over a month since my last sale and i usually average maybe 1-2 sales every few months for context.

any lil nuggets of info appreciated so so much!

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u/flynn1597 — 1 month ago
▲ 1 r/ADHDUK

care adhd clinician "out of office until further notice" ?

got this email in response back to wanting to book my next titration follow up because i only have about 9 days of meds left and i got an auto-reply that said they'd be "out of office until further notice".

trying not to panic that it might affect my titration and hoping the nhstitration and care support email gets back to me asap. the thought of phoning them again and waiting over an hour on hold is too anxiety-inducing to think of ;w;

i was unsure if "further notice" meant like an extended leave of absence or what 🤔

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u/flynn1597 — 1 month ago

skylight psychiatry timelines? &lt;3

hi friends! might be my first post here i think!

my therapist saw a lot of autistic traits in me, which have become even more heightened after starting meds for adhd.

my GP happily referred me to skylight psychiatry through the right to choose. i've filled in all their forms etc. and am now just awaiting assessment dates!

i struggle a lot with not knowing something so it's making me anxious thinking about the wait times and not knowing how long it may be!

did anyone else go through them? what was the wait times like? did you receive any communication after they received the forms (i.e. childhood, symptoms etc.)? i've had confirmation they received but nothing since.

referred: jan 2026

filled in + sent back forms: march 2026

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u/flynn1597 — 1 month ago

Book with a water fountain display? Takes place on/near a building with a moat and drawbridge? Water display set to music?

&#x200B;

looking for a children's or YA novel I read in the early 2000s (the book could be older). a young girl/child is with an eccentric elderly bearded man at this kind of run-down estate. there was a main building with a moat + drawbridge.

the old man was an inventor/tinkerer. he built an elaborate water display to music. all i can remember is sparkling jets of water danced in time forming shapes? the display was presented to an some kind of like audience??

genuinely losing it 😭 any thoughts appreciated!!

reddit.com
u/flynn1597 — 1 month ago
▲ 3 r/ADHDUK

documenting my adjusted meds luteal phase 🫶🏻

hi,

this is more so a bit of a diary entry for me hehe! wanted to document how i'm doing adjusting to the increased dose during my luteal phase + maybe it'll be semi-useful for others too <33

day 1 of 60mg:

wow. pretty intense when they kicked in. i'd experienced this before when i tried a 1 week 60/3 weeks 50 split but i guess i'd forgotten the strength of 60!

spent about an hour ish trying to keep my mind distracted bc the kick in was very intense and i felt pretty anxious/really over-energised. definitely over-stimulated as well - tolerance for anything like small noises, people etc. completely went!

it did settle down as the day went on with food, drinking ofc plenty of water + reminding myself i'm not "losing it" (those with derealisation might relate!)

day 2 of 60mg (i.e. right now):

starting to feel them kick in again now and it's intense but in a different way? still anxious a bit but dissociation is a bit stronger - unsure if this is because i have "tunnel vision" right now and i'm LOCKED IN to writing this post.

not loving the feeling but i also do know yet again i'm not "losing it". i've also had a VERY stressful + turbulent morning too so that cannot have helped!

plan for the day: hang out with people online, craft, assemble a shelf (anything mentally taxing seems to mellow out the intensity), drink loads of water + eat!! appetite suppression on 60 is so wow.

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u/flynn1597 — 1 month ago