I miss life before I was diagnosed with epilepsy 🥺
I was diagnosed with epilepsy 2 and a half years ago. I had a frontal lobe brain tumor and had my first tonic clonic seizure. I had my tumor removed and thought it would stop the seizures but no. For a while my seizures were controlled for the most part. I would have a seizure maybe every 3 months. But within the past year, I’ve been having 2 seizures a month. I’m on 1500 mg of Keppra & 200 mg of vimpat.
I have a lot of tonic clonic seizures during sleep. I will wake up confused on my floor after rolling off my bed. My last seizure my seizure heard me fall out of bed and rolled me on my side on the floor. I miss being able to sleep without being afraid if I’m going to wake up from a seizure. I miss not having to worry about skipping medication. I miss my parents and siblings not having to worry about me constantly. I miss driving without worrying I might have a seizure. I miss not worrying about if I’m going to have a seizure at the gym, work, or out in public.
I know things can be worse. But I truly miss life before all of this.
I have only ever had tonic clonic seizures