What exercise have you found to be manageable with cfs, pem?

Here in the Philippines, doctors refuse to treat me if i won't exercise. If i just tell them i exercise, they wont believe me so I will take videos of me exercising and wear a watch 24/7 even if its itchy. I've been to every hospital and doctor/specialist and they all say the same

My family also said if I won't take walks, they will grab me by the collar. I can't leave because I will be homeless and have no food to eat. There are no ambulance services here too. But I'm still lucky I'm not beaten with a hanger or a belt or if I become disobedient, they wont let me kneel on mung beans compared to other families.

Walking is so difficult withh plantar fasciitis too and my toes are turning black and my feet red and inflammed when walking.

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u/Adventurous_East_182 — 5 days ago

Pasno ba ito. Mas naniniwala yung doktor sa nanay ko (na mali mali sinabi) kaysa sa akin na mas alam ko ang katawan ko dahil ako ang pasyente

Kung sabihin kong ayaw kong pumasok nanay ko, pinipilit na dapat andun daw nanay ko. Yung clinic mismo or hospital ang nagpupumilit sakin. Di naman ako minor.

Pinagtulungan pa ako ng nanay ko at ng ENT ihiya at pagtawanan eh araw araw nga akong nahihilo at masakit tenga ko pero fake daw

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u/Adventurous_East_182 — 13 days ago

Paano ba dito sa Pilipinas based on your experience? Mas pinapakinggan at pinapaniwalaan ba ang male patient or spokesperson for a female patient or same lang naman?

Sa abroad parang ang isa sa mga laging nababasa kong problem is laging sinasabing anxiety lang or kaartehan pag babae na sobrang sakit ng period tapos kung sa lalaki kahit ano ang sakit nila, chinecheck daw ng maayos.

Iniisip ko kasi baka mas paniwalaan ako sa mga doctor's appointments ko if magsama ako ng male spokesman like a dad

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u/Adventurous_East_182 — 13 days ago

I'm thinking that this might be the only way they will prioritize my pain over fertility presevation

If i say, i have no plans to have kids and never had a boyfriend, they keep saying to rush and find a husband. So next time doctors ask, I'll just say I'm a lesbian so that my health will be the priority

Im in excruciating pain. I couldn't even walk.

Nangigisay na ako sa sakit. Minsan, nakahandusay nalang ako sa suka ko lasi nagblockout pala ako

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u/Adventurous_East_182 — 14 days ago

Does UP or other universities and DOST allow people with disabiloties and chronic illness like autoimmune diseases, cancer, etc to pursue a phd?

In life science, health, or teaching

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u/Adventurous_East_182 — 15 days ago

Okay lang kayang magshare ng chronic illness journey sa social media or I will just lose friends and acquaintances kasi baka ma bad trip sila sa sakit ko?

Problem/Goal: I am hoping that my friends and acquaintances see it and recommend me to health professionals kasi puro medical field kilala ko. Di kasi sure doctors ko kung ano daw sakit ko pero meron naman daw.

Context: Takot ako na baka may magreport sakin kasi nung nagtry ako dati magpost sa facebook, rineport ako ng family member because it's a family only fb pero di ko alam kung sino. Plano ko ipost sa ig. Tapos later on sa tiktok at youtube para baka may magkainteres at mairecommend sakin

Desperado na kasi ako kasi ilang years na akong nagsusuffer pero di masagot ng docs kahit every week ako nagpapacheck.

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u/Adventurous_East_182 — 15 days ago

Do you think doctors can doctor themselves?

Has anyone here been able to successfully treat their own chronic illness?

Or

Has anyone here become a doctor to be able to treat themselves?

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u/Adventurous_East_182 — 15 days ago

Paano ba ito. I'm so traumatized to go to doctors or talk to anyone about my health.

I was always careful with my health since young, from the food i eat, exercise, etc.

Gone to regular doctor's appointments and followed doctors orders word per word but it's still all my fault I'm so ill and disabled.

They keep saying I'm just lazy. So i complete my steps even if i cry at night covering my mouth so no one hears me because my feet hurts so bad.

Thankfully, may nagsabi na doctor ng fibromyalgia or autoimmune disease pero yung ibang doctors pinipilit na iniisip ko lang daw dahil normal labs. To the point the pi agtake ako ng psych meds which nearly ko ikinamatay kasi allergic pala ako pero nung sinabi ko sa next doctor, ayaw maniwala kaya pinilit ulit kaya nagagaw buhay ulit ako sa er.

No one, health care workers or my family cares if i die. My mom even said, why don't you kill yourself kasi wala namang cure

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u/Adventurous_East_182 — 16 days ago

Paano niyo malalaman if malapit ng mamatay ang Redmi Note 10 Pro ninyo?

If madaling malowbat, System IU notif na not responding, sobrang init, mga ilang days or months before mamatay?

More than 3 years plng siya

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u/Adventurous_East_182 — 24 days ago

Paano ba ang tamang technique para di mangamoy agad ang semi bedridden especially if sobrang nakakapagod sa patient and nagaalaga kaya once a week lang ang ligo? Yung kaya sanang gawin ng disabled caregiver.

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u/Adventurous_East_182 — 1 month ago

Paano ba tumalino? Sobrang inis na lahat ng tao sakin kasi poor ang comprehension ko and di ko rin kayang magexplain. Prone to misunderstandings. Ang option ko nalang ngayon is to withdraw from society.

Ginawa ko na ang lahat.

Triny ko pumunta sa psychiatrist and psychologist dito sa amin pero wala naman daw issue sakin. Only child lang daw ako na walang tatay. Sabi naman ng isa, intindihin ko lang daw, maiintindihan ko din.

Nung bata ako, lagi akong napapagalitan kasi may namimiss ako minsan kung nagcocoucount or pag sinabing left, sa right ako pumupunta or gumegewang

Wala akong problem sa vocab even english words. Nagbabasa din ako. The problem is in real life, kapag napagdudugtong na words into sentences, di ko laging nagegets.

Di ko rin maexpress sarili ko properly

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u/Adventurous_East_182 — 1 month ago

Does it really have an unwritten importance?

Why is it that all people I know who are able to get scholarships overseas, also leadership programs abroad, have a lot of social media followers?

Lalo na sa leadership programs na short term or membership applications. Minsan nanghihingi sila ng social media link

Is it something that I must build too? Kasi before silang magapply madami na silang followers. Cause if there are plenty of us with good grades, work experience, then what would be the tie breaker?

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u/Adventurous_East_182 — 1 month ago

For those with eczema/dermatitis/skin allergies/sensitivities etc., what is your alternative for Veet for easy hair removal for armpit and legs?

Veet stinks so bad that it feels like I'm using harmful chemicals. Are there more gentle alternatives that does the job? Yung kaya talagang alisin hair? I have very thick hair with thick strands.

Dinudugo ako sa waxing

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u/Adventurous_East_182 — 1 month ago

Looking for girls in the same boat as me. What did you?

My mom said I should stop dreaming of marrying someone or even dating someone because who would want a chronically ill woman like me?

She said I'm not rich either so no one will marry or date me for my money. She said incase I become rich, my husband will probably let me die so that his mistress will enjoy all my hard-earned money.

She also said academically smart people are dumb in love so I will probably end up kissing a man's feet. That's why she has to live long to be able to murder someone.

The thing is all my illnesses have no cure. I might not die soon but I will have to suffer from these for the rest of my life. I'm also a bit of a weirdo neurodivergent.

My mom is a solo parent and she has cancer. She told me, the only way her relatives won't throw me to the streets is if I am more useful alive that dead. Infairness to her, I have witnessed how cruel her relatives could be. When she just had her surgery, I was the only one in the hospital while I myself was hooked up to a dextrose.

I used to dream of having kid/s of my own but I already crashed that dream because it is so unfair to bring someone to this earth to suffer because of my deffective genes especially if that child would be a daughter.

I thought that maybe it would be nice to just try even once in my life to be in a relationship just for the experience. I am thinking maybe a foreigner (western) is more accepting than Filipinos. A Filipino man may accept me for who I am but their parents/mom would definitely like someone like me. My mom said, as long as I won't marry because I will be thrown put in a cold winter with divorce papers if one day that man does not love me anymore.

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u/Adventurous_East_182 — 1 month ago

Paano ba ito, feeling ko tanga tingin sakin ng mga kilala ko kasi either tinatanong nila meaning ng ganito, or kung "gets mo ba" sinabi nila. Di naman ako tanga in terms of English vocab, etc. Pero sobrang hina ko sa pagunderstand ng social cues pag hindi directly stated. Kaya naghahanap ako ng way

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u/Adventurous_East_182 — 1 month ago